Single T1D Mom
@Single___Mom
Single mom of an amazing girl with Type-1 Diabetes and Celiac
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I'm sick of hearing that "list price" of medical supplies isn't the "actual price paid." When a patient is faced with a deadlock where doctor's office and pharmacy can't get required info right for authorization, the patient has to pay "list price" to get life-saving supplies
What's impressive about GoodRX: -- It's one of the few consumer-focused health apps -- It's a quiet success story in terms of growth/revenues -- They aim to help lower-income Americans, not the rich & healthy cnbc.com/2018/06/20/goo…
I just realized that my teen took the time to record the buzzing sound of an Omnipod pod failure to play it later as a prank and it really worked :( Yes, I have a Fear of Pod Failure. FOPF is real
SEEING SOMEBODY FINALLY UNDERSTAND T1D IS THE BEST FEELING EVER
Nature just published an article about pancreas regeneration. One of the authors, Doug Melton is a #T1D dad so his work is of special interest since I know his sense of urgency is real. Nothing like living with this disease! nature.com/articles/s4158…
Will the @AllofUsResearch provide compensation for participants? or recognize the time they spend contributing data as volunteering hours? #JoinAllofUs #NIH
How can an organization that purports to “save lives and protect people” be so out of touch with the crises faced by the diabetes community? @t1international @kidfears99 @thomasgoffe @diabetesmine insulinnation.com/research/cdc-r…
Finally, an initiative to provide psychological support for individuals with diabetes. I couldn't find any provider within 100 miles though... still needs time to evolve. How to Find Experienced Mental Health Care Providers for People with Diabetes diatribe.org/how-find-exper… #T1D
diatribe.org
How to Find Experienced Mental Health Care Providers for People with Diabetes
How to Find Experienced Mental Health Care Providers for People with Diabetes
I love the #T1D community! Last night we had 2 back2back pod failures. I thought we were doomed for the night but I searched #omnipod with error ref. # 052 and 018 & found they were related to static! 3rd pod change worked by rubbing dryer sheets on the pod as others suggested!
Interesting read...Tech's Next Big Wave: Big Data Meets Biology for.tn/2FKPBSk via @FortuneMagazine
Treating Type 1 diabetes without Insurance – The #OverTheCounterT1DChallenge beyondtype1.org/treating-type-…
Medicare Part D says yes to Omnipod! Everything you need to know is at the link. ardensday.com/blog/omnimed #omnipod #diabetes @myomnipod
“Every session about diabetes should have someone living with diabetes speaking and contributing” @RenzaS once more nailing how important it is to hear the voice of lived experience. #IDF2017 #NothingAboutUsWithoutUs
Using machine learning to accelerate drug discovery and reduce costs @deepgenomics. Great keynote and story about the Spinraza drug at #NIPS2017. Another example of an amazing parent, who has a child with a genetic disorder, accelerating #digitalmedicine. Thank you @frey_brendan!
Looking at sensitive info on your phone? A new Google-developed AI can tell if someone is looking over your shoulder: bit.ly/2zIITgJ #nips2017
Amazon logistics is probably going to be the end of @amazon. Love the marketplace but delivery is no longer reliable in our area. Only 1 out of 3 orders actually showed up! Not so 'Prime' service
Sent a letter to @SeemaCMS telling her that #Omnipod coverage is important for Medicare beneficiaries. The Endocrine society already articulated this last year endocrine.org/-/media/endoso… I hope she doesn't cite costs b/c the suppliers they contract with overcharge and don't deliver
My kid strongly objects when I listen to my tech podcasts in the car, but luckily she enjoys listening to @ArdensDay talking about #T1D :)
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