Steph Douglas
@StephsHealth
I have fibromyalgia, chiari malformation, IIH, migraines, sinus tachycardia and psoriasis.... I want to raise empathy and awareness!!
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Reallllly cba with Physio later on after been up all night #InsomniaSucks ..... Luckily it's not til afternoon #PureLaziness
Struggling with #moodchanges on #diamox #acetezolomide for #IIH Now reducing dose again as couldn't handle higher dose :(
My excuse to listen to olly murs, Justin beiber, and one direction instagram.com/p/Y8xeApK1CA/
Sharing this pic bcos it made me laugh.... tho thats bad bcos that makes my symptoms worse..... #IIH #Fightforacure
'jamais arriere' #NEVERBEHIND read into it what you will but I read into it... always look forward as the past will only hold regret
A bit about me- Healths a lil crazy especially the #neurological stuff #Fightforacure life's a battle worth fighting
Laid on the sofa with a blanket, heating on 2 cardigans & still feel shivering. Appetite also gone im refusing pudding & had 1meal all day
Kelsey molly & jo are havin great fun watching @onedirection kelsey will be loving @NiallOfficial @thelgarena
Update about #Chiari from the last #MRI (done during hospital stay)... not confirmed by NS but from what I can gather it hasn't got worse :)
still no date for the #OPERATION.... knowing my luck it will come through and be on my birthday or something #STENT #IIH
Kelsey is desperate to go see @onedirection even begging Uncle AJ to take her to Berlin to see them in May... unfortunately that cant happen
Anyone selling 2 #onedirection tickets #capitalfmarena nottingham or nr east midlands let me know... For a distraught 6yrold #niallhoranfan
Enjoying been back at mum n dads for a while after the hospital stay..... Soon ill be up to staying at my flat again!
Complained to ward sister bout standard on ward... Drug chart not filled in, name n DoB not asked for when drugs handed over #NHScomplaints
MRV booked in for the 17th March.... checking the CSF flow to my brain or something like that :/
Anyone have #healthtips for #chiarimigraine #headache #IIH & #neckpain either medications or non medical options?? Feeling pretty desperate
walking to bed is that tiring that getting into bed & laying down is too much effort... sat here ten mins now and moving isn't an option :(
#rarediseasesday please RT this pic show support for #chiari awareness #neurologicaldisorder #toomuch raintocontain
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