StopGCT Foundation
@StopGCT
Fighting #GranulosaCellTumor (#GCT) #OvarianCancer with Information, Advocacy, Community, and Research. On: •LinkedIn •Facebook •YouTube @ stopgct
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September is #OvarianCancerAwarenessMonth! Do you want to know more about #GranulosaCellTumor? Reach out to StopGCT! We're expert advocates in this rare form of #OvarianCancer! #RareDiseases #OVCA #BeInformed facebook.com/stopgct/photos…
Today, we celebrate the life of Raj Johal, who fought #GranulosaCellTumor #OVCA. Support her cause @Ovacome . #StopGCT is allocating $5K in her memory. Mt. Snowdon and Mt. Hamilton, here we come! ovacome.org.uk/inmemoryof/raj…
#RuthBaderGinsburg was a #cancer survivor and dissented and fought to influence US #healthcare policy, patient rights and #GenderEquality. She was a champion of women everywhere. facebook.com/stopgct/photos…
#TheInternetNamesAnimals Ovarian McCancer Frog: Be alert to persistent changes vs. normal (pain/bloating/bleeding)!
Rachel Klein died last week. She helped all around her and truly made a difference! #ovca #gctwarrior
Happy New Year! At StopGCT, 2014 is #YearOfTheOvary. Please support #OvarianCancer research! #GranulosaCellTumor
StopGCT is now a 501c3 #nonprofit! Please support us with a tax-deductible #donation! Thx! paypal.com/cgi-bin/webscr…
RT @SDFatPhRMA: Alesci of @phrma: 452 medicines & vaccines in development for #raredisease phrma.org/sites/default/… #raredisease13
Moore's Law drives the rate of technological change underpinning biomedical advancement in @RareDiseases. #raredisease13 @DrugInfoAssn
The FDA has 400 approved treatments representing <5% of @RareDiseases. We are the 95%! #raredisease13 @DrugInfoAssn @US_FDA
Data, proof-of-concept, registries and natural histories are King in pharma collaboration for @RareDiseases. #raredisease13 @DrugInfoAssn
Robert Beall CFF CEO @RareDiseases: Open Access non-commercial use and rapid material transfer speeds patient solutions. #raredisease13
Collaboration from Bench to Bedside: Industry/Patient Partnerships in @RareDiseases. #raredisease13 @DrugInfoAssn
Day 3 @RareDiseases: Future Healthcare, Rare Disease Collaboration, Research Frontiers & The Next 30 Years. #raredisease13 @DrugInfoAssn
Marshall Summar: Great presentation showing how @RareDiseases yield insights into common conditions. #raredisease13 #ureacycle @DrugInfoAssn
ACA eliminates pre-existing conditions in 2014. @RareDiseases will not affect eligibility or rates. Patients have power! #raredisease13
@lanihashimoto @targetcancer @CDKL5USA @SDFatPhRMA @FMDAdvocate Social Media Photo Ninja strikes again.
The Medical Foods Equity Act seeks to bring costs of therapeutic foods for @RareDiseases in line with mfg. pricing. #raredisease13
Payer denial of effective off-label therapy in @RareDiseases: Any patient recourse or process transparency? Not so much. #raredisease13
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