TYA Cancer Research PSP
@TYAPSP
A research priority setting exercise with professionals, young people, and the public. What are the unknown research questions for young people with cancer?
Great to see this @hamboandlimbo . The reduction of late effects was No.2 in the Top 10 research priorities for TYA @TYAPSP @ProfFaithG @AldissSusie @drbobphillips @TeenageCancer #AYAcancer
Response-adapted omission of radiotherapy and comparison of consolidation chemotherapy in children and adolescents with intermediate-stage and advanced-stage classical Hodgkin lymphoma (EuroNet-PHL-C1): published on line today. A fine international effort sciencedirect.com/science/articl…
Anyone have a teenage & young adult research group running at the moment? Would love to hear about it if you do!! @GPriday @nuhpatientgroup @RCNResearchSoc @jmenzies1
Out today! Report on young peoples experiences of being @LindAlliance @TYAPSP Steering Group members @KristinaStaley2 Key finding: positive impact of involvement on mental health #MentalHealthAwarenessWeek With recommendations for PSPs involving young ppl bit.ly/2Xj9wBX
Our next abstract is being presented by @AldissSusie and is about analysing 'out of scope' questions identified in the @LindAlliance TYA Research Priority Setting Partnerships in order to tell the whole story of TYA experience #TYAC2019
representation of the @tyapsp original question bank! @drbobphillips you can read sorting and final questions jla.nihr.ac.uk/priority-setti… @ProfFaithG @AldissSusie #SIOP2019
Had an amazing day presenting our paper on teenage & young adult cancer research priorities to potential funders w/ @LornaAFern & @DemiMcgeachy - so much enthusiasm for the research going forward. So proud of this work & hopeful of the progress that can be made in teenage cancer
Timely that this new report on what happens after @LindAlliance priority setting exercises is out just as we bring together funders today to discuss taking forward the @TYAPSP priorities #MoreThanATop10 @ProfFaithG @LornaAFern @drbobphillips @NCRI_partners
What happens after @LindAlliance Top 10 research priority setting exercises? Read the report from @KristinaStaley2 @Sally_Crowe @Trishgreenhalgh @OxBRC to find out more bit.ly/2mayAw0 #MoreThanATop10
Fabulous to hear it has been useful for you as a funder @skohlhaas we are bringing together relevant @NCRI_partners tomorrow to discuss our @TYAPSP priorities and mobilising our TYA Top 10 @drbobphillips @ProfFaithG @AldissSusie @AmyCallaghanSNP
What happens after @LindAlliance Top 10 research priority setting exercises? Read the report from @KristinaStaley2 @Sally_Crowe @Trishgreenhalgh @OxBRC to find out more bit.ly/2mayAw0 #MoreThanATop10
First day back and off to @GermCell2019 excited to be presenting patient views on replacing CT Scans with new circulating MicroRNA blood Test @tyapsp No. 7 #LWBC No.1 @Michelle_Barts @shiv_smith @CRUKCamPaeds #GCT19
TYA James Lind out of scope questions presented by @AldissSusie shows survivors need good communication, information and honest discussions about long term effects and fertility impact #CCC19
Great talk from @AldissSusie about the ‘out of scope’ questions from @TYAPSP - great to hear nothing from this study ‘wasted’ but some important issues identified taken forward outside of the PSP
Next up is @AldissSusie discussing the 'out of scope' questions identified in the James Lind Alliance teenage and young adult cancer survey #CCC19
Looking forward to speaking at the @ChildCancerConf on Friday, sharing the important issues raised in the 'out of scope' questions from our research priority setting exercise for young people's cancer @LindAlliance @TYAPSP @CCLG_UK @AngelbethanyP
Meet the #childhoodcancer #researchers! Get close to the scientists and academics at the front line of paediatric oncology research at the @ChildCancerConf this September - places are free for parents of a child with cancer cclg.uk/2FgwhP0
At the RCN International Nursing Research Conference today? #Research2019 Come & hear @ProfFaithG presenting our @LindAlliance research priority setting exercise for young people's cancer 3.55-4.20pm, Room 3001 @drbobphillips @LornaAFern @AldissSusie @theRCN @RCNResearchSoc
Front page of @clydebankpost! @AmyCallaghanSNP from our @TYAPSP steering group shares why our top @LindAlliance priority - psychological support for young people during & after treatment is so important. Read it here: clydebankpost.co.uk/news/17840168.… @TeenageCancer @CLIC_Sargent @CwC_UK
We're proud to have partnered with @LindAlliance, @CLIC_Sargent and @CwC_UK on this brand new report which identifies where research is urgently needed to improve experiences for young people with cancer. Find out more: teenagecancertrust.org/about-us/news/…
teenagecancertrust.org
Our latest news | Teenage Cancer Trust
Our latest news | Teenage Cancer Trust
Delighted @ScotNational have covered our paper and in particular our upmost research priority of psychological support for teenage cancer patients both during & after treatment 👏🏼 @TYAPSP thenational.scot/news/17817272.…
We are proud to support @LindAlliance and the paper on research priorities for young cancer patients, published in the @bmj_latest today. Top priorities include psychological support and reducing the effects of treatment. Read more: bmjopen.bmj.com/content/9/8/e0…
bmjopen.bmj.com
Research priorities for young people with cancer: a UK priority setting partnership with the James...
Objectives To conduct a UK-wide survey of young people who have experienced cancer, carers and professionals, to identify and prioritise research questions to inform decisions of research funders and...
Out today - our paper on @LindAlliance priorities for young people's cancer. What research questions do young people, carers and professionals want answered? Top priorities: psychological support, reducing effects of treatment & trials access. Read it here bmjopen.bmj.com/content/9/8/e0…
The @tyapsp Top 10 research priorities don’t seem to be unique to UK. International data highlighting need for psychological interventions to support young people during and after treatment @ProfFaithG @drbobphillips @AldissSusie
#AYA Gen #ASCO2019 - Brinkman presents Lewin et al AYA suicide risk data, highlighting need to implement a screening intervention. No 1 research priority for TYA and professionals psychological support package during and after treatment @TYAPSP; jla.nihr.ac.uk/priority-setti…
Interesting poster on ‘Impact of cancer on physical and mental activities of daily living in young adult (YA) survivors’ Selfcare interventions No.2 in Top 10 research priorities for AYA @TYAPSP Read full report here #ASCO2019 jla.nihr.ac.uk/priority-setti…
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