Jessica
@TenaciousJess
Stage IV colon cancer patient. Mom of 3. Wife. Runner. Lover of the outdoors. Clinical Trial participant. Equity and access ally. LIVING with cancer. Go Ags!
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If you go into a place people HAVE to go (especially for cancer care), just put your dang mask on over your mouth AND nose. It's a weird power flex to go around a bunch of cancer patients & nonverbally communicate your confidence in your health. This isn't your moment, cover up.
Dear @ASCO @esmo @AACR Can we have a ribbon/badge for Trial Particpants? Not sure what the color is for *** Fearless *** #GI22 @AdvocateCollab @marklewismd @TenaciousJess @KRASKickers @EnvRhet @itsnot_pink @coffeemommy @BrendaS104 @Globeseek @gulleyj1 @skopetz @FightCRC
This whole thread is awesome. I would proudly wear those badges. I know people will live longer because I volunteered. Now let's find another one to help me and the rest of us who said "yes" to early phase/monotherapy trials.
When I first thought of this, I was thinking of girl scout badges for my friend. @TenaciousJess FiH Interventional trial Kras g12c (or targeted trial) Reported research Practice changing (one day)
Why did I have to be insulted, berated & abused on an @AmericanAir flight AA2935 because I asked the person behind me to put on a mask? Thank God for flight attendant Luis. He tried, but plane forced to land in OKCity because folks 👏🏽 won’t 👏🏽 wear 👏🏽a 👏🏽mask!!! #COVID19
It takes a special kind of human to attend these conferences knowing that you'll learn more about what doesn't work than does in a disease you are actively trying to survive and staying hopeful. Kudos to all the patient advocates who have become proficient at compartmentalizing.
Loved the discussion on oligometastatic disease & the mention of consideration of age as a factor in choosing treatment. As we see more young people being diagnosed, we must remember what the HOPE of making it to milestones (ie. child's graduation) can do for the spirit.
KRISTAL-1 trial presented at #GI22 is really surprising: 100% of DCR in PDAC/BTC with KRAS G12C mutation. Hopefully in the near future the personalized medicine for PDAC will not be the exception. 🙂BRCAm1/2 germ: 5-7%; 🥺MMRd:<5%; 😐NRG1-fusion <1%; 😃KRASm:90% 😶KRAS G12C<1%
In fact, this virtual meeting might be our best chance to make them feel included :) And finally, don't forget the visuals grab eyeballs. MEMES ARE NOT UNPROFESSIONAL. and this is a hill I'll die on. Have a super meeting & let's celebrate making progress in cancer care! end/
My 11 year-old is currently obsessed with @planetmoney & its my favorite thing. Have you ever listened to an 11 year old talk about real world applications of economics? It's amazing. Thanks planet money for the awesome reporting that keeps him engaged in learning.
It makes more sense to discuss whether a specific patient could be curable than discussing whether #stage4 cancer is curable.
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