The Research Loop
@TheResearchLoop
A website where Patient & Caregiver voices can transform the research process by offering feedback to researchers. Designed by a patient for patients.
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With a generous donation to keep us going, The Research Loop site will remain open. I hope others will take advantage of the opportunity to contribute to research and of the resources on the site.
Are you a #patientpartner who collaborates with #researchers on #preclinical #research projects? Pls participate or share so our team can learn from others - thx! @BMJPatientEd @PFMDwithPatient @CochraneConsumr @rheumpatient @couragesings @AnneMckenzieAM @PCORI @eupatients
Participants needed for research in patient engagement! Let us know if you would like to learn more about our ongoing interview study funded by @CIHR_IRSC Strategy for Patient Oriented Research (#SPOR) @ManojLalu @TO_dpr #patientengagement #PPI #basicscience #preclinical
Qualitative Exploration of Engaging Patients as Advisors in a Program of Evidence Synthesis bit.ly/33v0RxH "...explore views of systematic review researchers, patients, and caregivers on how to integrate patient stakeholders into a national evidence synthesis program."
I also still have @TheResearchLoop going, too. It's a way for patients and caregivers to give feedback on scientific articles they've read. And it had resources to teach patients and caregivers about research and reading articles. theresearchloop.com
You can see all our resources on our site at theresearchloop.com. And we're adding more all the time! Here are a few:
Hey Researchers! Want feedback on your articles? Let us know & we'll post it on our site for patients to review. Benefits to you include:
Loving all the feedback on research we're getting at theresearchloop.com! Make sure you register & start submitting your feedback asap!
Here are a bunch of ways patient and caregiver feedback can transform research. Make sure to offer your feedback at theresearchloop.com!
Involving the patient & caregiver voice is research is essential! theresearchloop.com
Facilitating non-tokenistic user involvement in research. New paper in BMC Research Involvement and Engagement researchinvolvement.biomedcentral.com/articles/10.11… open access!!
Delighted that our bibliographic review of the literature on patient and public involvement in health research has reached 100 citations on Google Scholar onlinelibrary.wiley.com/doi/full/10.11…
#PatientEngagement and its Evaluation Tools - Current Challenges and Future Directions (Commentary) #openaccess ncbi.nlm.nih.gov/pmc/articles/P… @BCSUPPORTUnit
What matters most to patients about primary healthcare: mixed-methods patient priority setting exercises within the PREFeR (PRioritiEs For Research) project bit.ly/2KdsVyQ #PrimaryCare 1/2
"Patients identified new topics and added depth to topics previously identified in similar exercises among policy-makers or researchers, further highlighting the importance of patient engagement in priority setting" 2/2 #PatientEngagement
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