WhatTheCF's profile picture. The only way to live with Cystic Fibrosis is with no fear, good health insurance, and a vile sense of humor. 🤘💩🖕🤣 My name is Jenn and I have CF.

WhatTheCF

@WhatTheCF

The only way to live with Cystic Fibrosis is with no fear, good health insurance, and a vile sense of humor. 🤘💩🖕🤣 My name is Jenn and I have CF.

WhatTheCF reposted

"Guilt doesn't only flare up on the bad days; it spills over into the good ones, too. People often think in binaries; you're either sick or you're not. But with this disease, you're sick and you're not." on.cff.org/2GjpzJk


Never really 100% sure if I'm telling someone "I love you", "rock n roll" or "hang ten" but at least it's all positive vibes, right? 🤟🤘🤙#isitjustme #noncfpost #iloveyou #rocknroll #hangten #totallytubular #WednesdayWisdom


2 months late, but YES! 1000% yes. My exact reaction when I found out about this BS movie. #cysticfibrosis #FiveFeetApart #idontneedyourpity google.com/podcasts?feed=…


A very handy skill to have when representing a person with #CF. While I haven't seen #FiveFeetApart the movie (obvs), I did read the book and that super fun aspect of #cysticfibrosis was pretty much a non-issue. Kills the romance I guess ... #CFlife


Fantastic! @G17Esiason Been stuck in the "related posts" vortex for about an hour now. gunnaresiason.com/dont-say-that-…


If you got out of bed today, you did your meds, and you gave it your all even though you felt like 110% shit, you're doing okay. And if you didn't do any of that, tomorrow is another day. #onedayatatime #fakeittillyoumakeit #hereslookingatyoukid #positivevibes #cysticfibrosis


When your significant other asks mid- meal if you've already taken your enzymes. Cause that's true love. Also, I swallow enzymes like a ninja. #truelove #cflove #itsthelittlethings #CFlife #cysticfibrosis #anythingispossible #cfawareness


My immediate gut check reaction to finding out there's a movie coming out about teens with #cysticfibrosis? People better not start looking at me all "poor fucking you." Ain't nobody got time for that. #fivefeetapart #therealCFlife


WhatTheCF reposted

@achdandme thought you might find this interesting. I really hope the film #fivefeetapart doesnt make the general public feel sorry for those with CF but shows those with the illness living happy, mostly normal life's! Realistic awareness is always best teenvogue.com/story/what-you…

teenvogue.com

What It's Really Like to Live With Cystic Fibrosis

"Not all awareness is good awareness."


As someone who has #CF and a strong desire to live life to the fullest, it's very difficult to be around people who DON'T want to grab life by the horns. #JustDoIt #CysticFibrosis #youonlygetonelife #noregrets Here's to grabbing 2019 by the balls! #NewYearsEve2018


WhatTheCF reposted

Find the humour in difficult situations 😉 #cfpositivity

CFpossitivity's tweet image. Find the humour in difficult situations 😉 #cfpositivity

Loving this blog by @thevftos. For example: theviewfromtheotherside.com/history-behind… Incidentally, "salty tasting skin" is one of the symptoms of #CF that I find most humorous. Because, you know, the safest way to identify a sick person is by licking them. #WhatTheCF #CFsymptoms #SaltyAF


Loading...

Something went wrong.


Something went wrong.