Young Dementia Network
@YoungDemNetwork
The Network is a community of people affected by young onset #dementia and professionals collaborating to improve support.
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Our short animation explains what the Young Dementia Network is, what it does and how to join, from the perspective of a person living with the condition. Please feel free to share it with your family, friends, colleagues and networks to help us grow our membership.
Do you have a child aged 11–16 who helps care for someone with #dementia? 👇 Researchers at @HealthSC_Bangor invite #YoungDementiaCarers in England or Wales to take part in a study to help shape a national peer support program. 📧 Contact Jen Roberts for more information,…
Please share this with any young dementia carer interested in participating in our research project to develop a national peer support programme @DementiaUK
Do you have a child aged 11–16 who helps care for someone with #dementia? 👇 Researchers at @HealthSC_Bangor invite #YoungDementiaCarers in England or Wales to take part in a study to help shape a national peer support program. 📧 Contact Jen Roberts for more information,…
We are continuing our series of posts where we showcase a person who has become a #dementia activist, or has been inspired by someone who is. 💜 Kenny, a person living with young onset dementia, spoke glowingly about the team at Royal London Hospital headed by Professor Fox.…
Last Friday marked Young Onset Dementia Awareness Day, a @DementiaForward initiative. 📅 #YODA You can still get involved and help raise awareness by writing to your local MP to call for improved provision and better data for young onset #dementia. Scan the QR code below to…
Bruce Willis' two young daughters 'grieve' their dad amid actor's health issues hellomagazine.com/celebrities/86… #dementia #youngonset
A research involvement opportunity for unpaid carers 👇
The University of Strathclyde is looking for unpaid carers to take part in this survey investigating the support, training and recognition needed by carers. To get involved, or find out more, visit: strathsci.qualtrics.com/jfe/form/SV_bw…
Would you like to walk in nature with other diagnosed players? Our first Come Walk With Me hub, led by former rugby player Duncan Hendry, is now open in Wirral. Email [email protected] to get involved. #ComeWalkWithMe #BePartOfTheSolution
Luke Glover's father died of familial #Alzheimer's disease when he was a child. In 2017, he was tested to see if he carried the same gene. Thankfully, the result was negative, but sadly Luke's sister Lauren tested positive and now aged 42, she is living in care home. Read…
If you or someone you care for has been scammed, here are a list of things you can do to try and rectify the situation. For more information on staying safe from scams, visit our website: dementiauk.org/information-an…
Posterior cortical atrophy (PCA) is a rare form of #dementia that people often develop between the ages of 50 and 65. Find out more 👇
The area of the brain where the damage caused by dementia occurs determines the symptoms a person might experience. In posterior cortical atrophy (PCA) nerve cells at the back of the brain are damaged, which predominantly affects vision first.
Devoted daughter speaks out to help ‘too young #dementia patients’ after dad’s tragic diagnosis at 52. Read the article: 👉nation.cymru/news/devoted-d… @NationCymru
nation.cymru
Devoted daughter speaks out to help ‘too young dementia patients’ after dad’s tragic diagnosis at 52
A devoted daughter is speaking out to raise awareness about the cruel disease that’s struck her father at a tragically young age. At just 52 years old Tony Thomas – known locally in Gaerwen on...
Our November webinar will highlight the role of social care in enabling families affected by young onset #dementia to plan for and cope with the financial challenges. 📆 Wednesday 19th November 2025 🕐 12.30-1.30pm Sign-up here: youngdementianetwork.org/news-and-event… The DYNAMIC project is…
Age-appropriate #dementia support is lacking in many parts of the UK so we are very keen to encourage people to start up groups that will cater specifically for people aged under 65. We created a resource which we have recently updated sharing suggestions and ideas to help…
Our free online series, ‘Dementia: what next?’, is designed to help you learn more about #dementia and the next steps you could take after diagnosis. Sign up here 👇 dementiauk.org/information-an…
Former broadcaster @realmissfiona was 61 when she was diagnosed with young onset Alzheimer’s disease. Having cared for her parents who both had #dementia, she was under no illusions about what it would mean for her and her family. In her memoir, Fiona and her husband, Martin…
Are you willing to share your views and experiences on living with #dementia and making financial decisions or sharing financial controls? 💸 Dr Orii McDermott would like to talk to people with dementia and their supporters about their views and experiences of making financial…
A film produced by the University of Sheffield in partnership with charity @age_uk has been launched, titled 'Living with young onset dementia: our music, our voice.' It features people living with young onset #dementia talking about their experiences and interactions with…
When @EmmaHeming's husband, actor Bruce Willis, was diagnosed with frontotemporal #dementia they were given a pamphlet and told to check back in a few months' time. Emma walked out of the doctor’s appointment feeling that her world had fallen apart. That feeling changed once she…
This free online seminar series exploring how #dementia intersects with work is running until February 2026. It will bring together researchers, experts in dementia and employment, and individuals with lived experience of dementia to discuss key topics relating to dementia and…
Are you people living with young-onset dementia, carers/supporters, professionals, researchers, and charities/organisations staff? We’re co-designing recommendations to improve social health of people living with YOD. Join us via Zoom calls to share your ideas and experience!
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