aVoice4ALS's profile picture. Advocate for Amyloidosis, ALS & Rare Diseases. Enviro Justice, Foster Care & Gun Safety. Love LA sports. @EndRareDiseases on bsky

AZ Latina ☮️🌊🟦

@aVoice4ALS

Advocate for Amyloidosis, ALS & Rare Diseases. Enviro Justice, Foster Care & Gun Safety. Love LA sports. @EndRareDiseases on bsky

AZ Latina ☮️🌊🟦 已轉發

Naked mole rats have been described as walnut-filled condoms that live 30 yrs. Today’s issue @ScienceMagazine reports that their longevity may be due to mutations in a viral DNA detector called cGAS that lower inflammation & boost DNA repair 🧬 science.org/doi/10.1126/sc…


AZ Latina ☮️🌊🟦 已轉發

Check out our new paper on the genetics of Parkinson’s disease in African and African-admixed populations, now published in Brain. academic.oup.com/brain/advance-…

AkcimenFulya's tweet image. Check out our new paper on the genetics of Parkinson’s disease in African and African-admixed populations, now published in Brain. academic.oup.com/brain/advance-…

Best analysis of the @Dodgers' wheel play from Harold Reynolds of @MLBNetwork. Then, not in this clip, he went on to talk about Freddie's scoop. #MLBTonight #Dodgers #DodgersWin

The Dodgers executed a perfect wheel play to throw out Nick Castellanos at third base in the 9th inning of Game 2. Harold and Greg take to Studio 42 to break down all the moving parts and how it was pulled off. #MLBTonight



AZ Latina ☮️🌊🟦 已轉發

Support Gleason ❤️


Tough news about another professional rugby player dx'd with #ALS aka #MND. Rugby players have a 15x risk. Prayers up for Lewis Moody. abc.net.au/news/2025-10-0… #EndALS #EndMND

Sharing some news ❤️

LewisMoody7's tweet image. Sharing some news ❤️
LewisMoody7's tweet image. Sharing some news ❤️
LewisMoody7's tweet image. Sharing some news ❤️


AZ Latina ☮️🌊🟦 已轉發

.@FDACBER @SecKennedy, 95 DAYS since our #NUROWN Citizens' Petition. Survival data: #GoldStandard for FDA approvals. @DrMakaryFDA said, 'gold standard science & common sense' guide this FDA, so why do so many have to die while you delay? #NUROWN survival data UNPRECEDENTED in…


AZ Latina ☮️🌊🟦 已轉發

BREAKING NEWS The 2025 #NobelPrize in Physiology or Medicine has been awarded to Mary E. Brunkow, Fred Ramsdell and Shimon Sakaguchi “for their discoveries concerning peripheral immune tolerance.”

NobelPrize's tweet image. BREAKING NEWS
The 2025 #NobelPrize in Physiology or Medicine has been awarded to Mary E. Brunkow, Fred Ramsdell and Shimon Sakaguchi “for their discoveries concerning peripheral immune tolerance.”

AZ Latina ☮️🌊🟦 已轉發

Gill and his Veteran allies and friends are advocating hard for ALS funding and research. Together, they helped double funding for a DOD-led program from $10 to $20 million! Join their fight TODAY by pushing for the reauthorization of the ACT for ALS @ bit.ly/fundALS

iamalsorg's tweet image. Gill and his Veteran allies and friends are advocating hard for ALS funding and research. Together, they helped double funding for a DOD-led program from $10 to $20 million! 

Join their fight TODAY by pushing for the reauthorization of the ACT for ALS @ bit.ly/fundALS

AZ Latina ☮️🌊🟦 已轉發

ACT for ALS, if reauthorized and fully funded, can potentially provide THOUSANDS of people living with ALS with more access to treatments. That’s why we’re partnering with Eric Dane to push for its reauthorization next year. Join our fight TODAY @ bit.ly/fundALS


AZ Latina ☮️🌊🟦 已轉發

Schwarber 56 home runs Ohtani 55 home runs This is the first time multiple players with 55+ homers made the postseason in the same season (Raleigh, too!) which means the NLDS is the first series in postseason history with multiple players who hit 55+ HR that regular season!

A pair of NL MVP candidates. Which slugger would you rather have in the box? 🤔 (MLB x @SageUSAmerica)

MLB's tweet image. A pair of NL MVP candidates.

Which slugger would you rather have in the box? 🤔

(MLB x @SageUSAmerica)


AZ Latina ☮️🌊🟦 已轉發

Talarico: if you read the new testament, Jesus doesn't spend most of his time preaching or teaching or even praying. He spends most of his time healing the sick. Right now, we have politicians in congress with Christ follower in their Twitter bio, but they are kicking the sick…


AZ Latina ☮️🌊🟦 已轉發

Born & raised in Puerto Rico, Troy Fields is a patient rep, community leader, Bad Bunny fan, & friend helping reform EAPs for people living with ALS. THANK YOU for everything you do for I AM ALS, Troy, & Happy Hispanic Heritage Month! Are YOU a Bad Bunny fan? Comment a 🐰!


AZ Latina ☮️🌊🟦 已轉發

This is my dream for all ALS patients. First, the FDA would have to start valuing ALS lives & to treat it with the same urgency & flexibility as terminal cancer treatments. foxnews.com/health/paralyz…


AZ Latina ☮️🌊🟦 已轉發

156 years after ALS was first identified, EVERY patient endures this brutal decline. NO HOPE OF SURVIVAL @FDACBER @VPrasadMDMPH: You're dragging your feet despite vows to act at the "first sign of promise" for rare disease treatments. 91 days after the NurOwn citizen…

.@FDACBER @SecKennedy @DrMakaryFDA, 90 days since our #NUROWN Citizens' Petition @RealEricDane has a very public decline. He has progressed dramatically in the 90 DAYS. He is now wheelchair bound & struggling to speak Why the delay for a 100% PROGRESSIVE & FATAL disease?…

MinoShah's tweet image. .@FDACBER @SecKennedy @DrMakaryFDA, 90 days since our #NUROWN Citizens' Petition

@RealEricDane has a very public decline.  He has progressed dramatically in the 90 DAYS. He is now wheelchair bound & struggling to speak

Why the delay for a 100% PROGRESSIVE & FATAL disease?…


AZ Latina ☮️🌊🟦 已轉發

.@FDACBER @SecKennedy @DrMakaryFDA, 90 days since our #NUROWN Citizens' Petition @RealEricDane has a very public decline. He has progressed dramatically in the 90 DAYS. He is now wheelchair bound & struggling to speak Why the delay for a 100% PROGRESSIVE & FATAL disease?…

MinoShah's tweet image. .@FDACBER @SecKennedy @DrMakaryFDA, 90 days since our #NUROWN Citizens' Petition

@RealEricDane has a very public decline.  He has progressed dramatically in the 90 DAYS. He is now wheelchair bound & struggling to speak

Why the delay for a 100% PROGRESSIVE & FATAL disease?…

AZ Latina ☮️🌊🟦 已轉發

In a govt shutdown @US_FDA will not accept new NDAs, BLAs, will continue w/pending applications. No mass firings, Makary says. buff.ly/55wSM5I


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