starweaver
@chronicallyfab1
tweeting & blogging about living with a whacky immune system & misfiring brain. PG 13 stream. I swear, Often times like a sailor. non illness tweets @starweaver
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Can we stop calling it “police brutality” it’s murder, M-U-R-D-E-R
Yes course. Respiratory therapists. PT OT - I dont mean to exclude anyone. If I do - please forgive the mistake!
As was pointed out to me - PAs, NPs, housekeeping, food service, techs, CNAs, CRNAs, transport, security, parking, etc. They all contribute far more than most of us (including myself) and deserve our gratitude. #NYPHeroes
I alluded to it but felt remiss that I didn’t specifically mention that the nurses, residents, and fellows are truly superstars working tirelessly under less than ideal conditions #NYPHeroes
6) Every single ICU patient (barring QTc issues) got hydroxychloroquine and it doesn’t seem to have helped. Maybe it helps for prophylaxis or in mild disease, but doesn’t appear to do anything once in ICU. It is NOT a pancea and should not be given indiscriminately. (7/10)
“Registering disabled people” reminds me of “registering Jews” to be taken to their slaughter during the holocaust. The only thing that’s registered disabled is my car
Oh my GOD can people stop asking the question “are you registered disabled?” THERE IS NO REGISTER. THERE IS NO SPECIAL LIST OF ALL THE DISABLED PEOPLE IN THE UK. THIS DOES NOT EXIST. And frankly if it did, that would be a bit dystopian.
Today is a “thank God for @lyft” Wednesday. No sleep = bad headache and I have to be in the city by 11:30. The trains are a no go with my head & so is driving so took my meds and booked my Lyft for 9:30. Will take the train home but this is such a stress reliever this morning g.
Hi twitter. Been a minute. My #chroniclife has been kicking my ass. But we’re slowly turning a corner it seems - only to find another brick wall. You know how that goes #rheumatoidarthritis #rheum
Do you remember when you joined Twitter (with this account at least. My other account is almost a decade old now)? I do! #MyTwitterAnniversary
The itch struggle is fucking real with this monitor. And I have 11 more days with it on. Antihistamines aren’t helping. Argh #chroniclife
Follow me as I get my monthly treatment for my autoimmune disease: a @Medium photo series (originally posted on my Instagram story, with a bit more commentary and detail) medium.com/series/c6a74cc…
A2: right now I have vital organ involvement in my disease (heart/lungs). I’d love to understand how they’re interconnected. #creakychats
Q2: What kind of questions about chronic disease would you like to see answered by research and/or what are some of the research topics in chronic disease that you would like to see? #CreakyChats
A1: Hope. As a life long RA patient I am running out of options. Research gives me hope for a cure, for new treatments - options to keep fighting!
Alright, let's get started! Q1: What words or feelings come to mind when you think of research? #CreakyChats
And we love you for all your hard work @CureArthritis
A3: We don’t personally participate, but we have the pleasure of funding over $1 million in #ArthritisResearch every year. There is still a lot of work to do and we’re grateful for the #CureArthritis community that helps us fund this research. #CreakyChats
My feet aren’t up just to be an asshole in a crowded terminal. My knee and ankle are on fire and this helps make it manageable before the preemptive Pain meds kick in I always take for a trip whether I need them now or not I’ll need them at some point in my flight.
Let the very awkward and obvious stares at me begin. You can’t tell but I’m sticking my tongue out at you every time I catch it happening.
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