CSF Leak Awareness Ireland
@csfleakaware
Raising awareness of cerebrospinal fluid (CSF) leaks * Spontaneous Intracranial Hypotension #SIH / CSF-venous fistula *Iatrogenic Leaks / Chronic PDPH
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Upright headache? Think CSF Leak... watch this video to find out more: Upright Headache - my spinal CSF leak youtu.be/TJS2g6DNfHA via @YouTube
💥💥Hot off the presses!💥💥 Very important and practical expert consensus guidelines on diagnostic imaging in #SIH, from experts in radiology, neurosurgery, neurology, and anesthesiology. For everyone from experts to community practice. pubmed.ncbi.nlm.nih.gov/41266257/
«This case underscores the importance of considering SIH in patients presenting with atypical or positional headaches, particularly when accompanied by SDH. Early recognition and appropriate intervention are crucial to prevent complications and optimise patient outcomes. »
🚨🆕 Case Report🚨 Homayra Tanzum F, et al. (November 17, 2025) Spontaneous Intracranial Hypotension: A Commonly Missed Cause of Secondary Headache. Cureus 17(11): e97070. #SIH #MedEd 🔗cureus.com/articles/42902…
"Reporting the Degree of Certainty of CSF-Venous Fistulas in Patients with Spontaneous Intracranial Hypotension: The Duke CSF-Venous Fistula Confidence Score" doi.org/10.3174/ajnr.A… @TheAJNR @The_ASSR @TimAmrheinMD @PeterGKranz @DukeRadiology
What is it really like to experience a CSF leak? The truth is, every patient is different - and some wait years for answers, let alone treatment. In our new documentary, releasing 03 December, Dr Bern Hard tells her story. #CSFleak
Spinal CSF Leak: Bridging the Gap 2025 is three days away! Registration & agenda here: bit.ly/BTGConf2025 This year's event, presented by @AndrewCallenMD & @CUAnschutz in partnership with the Spinal CSF Leak Foundation is fully virtual & free. We hope to see you there!
"This case underscores the importance of recognizing the interplay between congenital anomalies and acquired CSF pathology. substantial gaps remain in our understanding of CSF-lymphatic interactions, particularly in the context of congenital anomalies."
"Revisiting a Rare Anomaly Described 25 Years Ago in the AJNR: A Journey from Pediatric Hemifacial Microsomia and Middle Cranial Fossa Aplasia to CSF-Lymphatic Fistula and Spontaneous Intracranial Hypotension as an Adult" doi.org/10.3174/ajnr.A… @AndrewCallenMD @The_ASSR
🚨 New Paper Alert 🚨 Do you want to know more about rebound intracranial hypertension after CVF venous embolization? Read the latest from @DukeRadiology @DukeNeurorad ajnr.org/content/early/… @issclsociety @The_ASSR @nbefera
Some lateral CSF leaks are diminutive but others are more sizable. Childhood orthostatic headaches and recent leg weakness. Imaging shows a lateral CSF leak from the left L1 nerve root that was caused by an aberrant artery of Adamkiewicz piercing the dura. @spinalCSFleak
It's a condition you may not have heard of - with truly devastating effects. Learn more about the reality of CSF leaks and why more research and funding is urgently needed. Watch the new documentary, which launches on 03 December via our YouTube channel. #CSFleak
#OnlineFirst: Unraveling the cause of microspurs in spontaneous intracranial hypotension type 1: discogenic origin or calcified Hofmann’s ligament? thejns.org/spine/view/jou…
If you’re a patient still searching for answers — or someone navigating any uncertain diagnosis — please remember: #DontLoseHope. The science is moving fast. Healing is possible. And you are not alone. 💙
• Novel treatments — from targeted patching to endovascular embolization and minimally invasive surgery — are restoring lives that were once on hold. • Growing awareness of the risks and long-term effects of post-dural puncture leaks is improving patient safety everywhere.
I’ve been reflecting on advances in spinal CSF leak care over the past five years — and I truly believe it represents one of the most rapid and transformative evolutions in modern medicine.
Chronic treatment with prednisone, dexamethasone, and methotrexate for “idiopathic hypertrophic pachymeningitis” in a patient with second half of the day headaches and normal CT-myelogram. CSF-venous fistula at T8 Should’ve read @PeterGKranz10 myths @spinalCSFleak
🧠 Join the Canadian Headache Society’s HCP Webinar Series! Topic: Spontaneous Intracranial Hypotension (SIH) 📅 Nov 21, 2025 | 12–1pm EST 🎤 Dr. Farnaz Amoozegar Register 👉 bit.ly/43CuCy3 #Neurology #CME #Headache #SIH
🚨Study supported by @spinalCSFleak doi.org/10.1111/head.1…🚨 Lumbar punctures are NO LONGER the standard for diagnosing spinal CSF leak! 📊 ~32% with SIH have NORMAL opening pressure. Symptoms + imaging now drive diagnosis. @WouterSchievink @ConnieDelineMD #SpinalCSFLeak #SIH
This remarkable video highlights how far neuroradiology has come since the first spinal CSFVF was imaged in 2014. Thanks to the skill and innovation of neuroradiologists, diagnosis and care for patients with CSF leaks has been transformed. Grateful to all advancing this field 🙏
New in JNIS: a venographic classification of the epidural plexus (EP) to guide CVF embo through EP navigation. Success: >90% (Types I–II) → 50% (Type III). Type III = longer fluoroscopy + more EP perforations → prefer segmental vein access. Clinical outcomes highly favorable.
Anatomy of a lateral leak on CTM and 0.5 CISS
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CSF Leak Association
@csfleakuk -
Spinal CSF Leak Foundation
@spinalCSFleak -
Spinal CSF Leak Canada Charitable Organization
@SpinalCSFCanada -
WouterSchievink
@WouterSchievink -
Andrew L Callen MD
@AndrewCallenMD -
CSFLeakMatters
@CSFLeakMatters -
Carolina Iten-Spinal CSFLeak Awareness Switzerland
@CarolinaIten -
Marcel Maya
@marcelmaya -
DukeNeuroradiology
@DukeNeurorad -
Simy K. Parikh
@SimyParikh -
Connie Deline
@ConnieDelineMD -
Peter Kranz
@PeterGKranz -
Lalani Carlton Jones
@NeuroradLal -
Mark Mamlouk
@MarkMamloukMD -
Prof Manjit Matharu
@Manjit_Matharu
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