eksmith69's profile picture. Rock chic at heart but also love my dance music, mature student, carer for my husband, till he died,walker of the dog and keeper of rats. always up for a laugh.

Emily O'Flaherty

@eksmith69

Rock chic at heart but also love my dance music, mature student, carer for my husband, till he died,walker of the dog and keeper of rats. always up for a laugh.

Happy heavenly birthday to my amazing husband. The third birthday without you. #MND #FTD missed and lobes always

eksmith69's tweet image. Happy heavenly birthday to my amazing husband. The third birthday without you. #MND #FTD missed and lobes always

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This is Jordie on @BBCBreakfast this morning @mndassoc

26-year-old Jordan Pilkington thought his dreams had come true when the @ManUtd Disabled Supporters Association arranged for him to meet some of his football heroes. Then captain Harry Maguire revealed an extra special surprise...



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Provide an update on the release of £50 million for MND research - Petitions let’s get this moving ⁦@mndassoc⁩ ⁦@MNDoddie5⁩ ⁦@Rob7Burrow⁩ ⁦@Jaynes__Worldpetition.parliament.uk/petitions/6289…


Love love love this @Rob7Burrow is such an inspiration, as are his family. I lost my husband to #MND aged 42. A cure needs to be found.

.@SpeakUniqueVB helped our hero @Rob7Burrow to 'bank' his own voice utilising old media footage, making it possible for him to continue to communicate when #MND robbed him of this ability that we all take for granted... ❤️ #MND #MoreNeedsDoing #AAC @CBeebiesHQ @bbcpress



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"We owe it to him, the 5,000 people living with MND and the six people diagnosed every day to get the promised funds into the hands of researchers.” #DoddieWeir thescottishsun.co.uk/news/9841278/n…


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Seeing a lot of #WhoCaresWins hashtags being spread by govt officials once again applauding our health care system without giving them a payrise. Also, wheres the £50M promised for #MND? Or do more people have to die so you can tweet how we are "Inspriational"? @RishiSunak

AnnmarieMND's tweet image. Seeing a lot of #WhoCaresWins hashtags being spread by govt officials once again applauding our health care system without giving them a payrise. Also, wheres the £50M promised for #MND? Or do more people have to die so you can tweet how we are "Inspriational"? 

@RishiSunak

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Yesterday was such a sad day for the MND community loosing our hero Doddie Weir I was diagnosed the same time as he was. My heart is breaking but I will keep fighting to find that cure 💙🧡💙 #MND #hero

JohnAda10163823's tweet image. Yesterday was such a sad day for the MND community loosing our hero Doddie Weir I was diagnosed the same time as he was. My heart is breaking but I will keep fighting to find that cure 💙🧡💙
#MND 
#hero

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SO SAD to hear about Rugby Legend Doddle Weir 💙 a true champion and such a lovely kind human being RIP Doddle 🙏 SO NOW COME ON GOVERNMENT - cut all “Red Tape” 😳and give the so called “promises” of funding of £50 million over 5 years. NO MORE DELAYS PLEASE 🙏


How cool would this be

What a great idea 💙🧡💙 #MND



This is just amazing. Not just the money but the awareness that has been raised. Well done Kev

What a great idea 💙🧡💙 #MND



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A truly special moment as @Rob7Burrow welcomes his friend Kevin Sinfield to Headingley. Thank you to all who came out to support Kevin and the #Ultra7in7 team Please donate donate.giveasyoulive.com/fundraising/ke


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We’re 2 months away from #EddieRedmayne’s birthday + have changed our account name to reflect another year passing! We’ll be doing our annual fan fundraiser leading up to Jan. 6 to honor Eddie’s 41st + support the important work of the @mndassoc, of which he is a devoted patron.


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I can not be prouder of my husband for being a part of this research which is still on going. For over 5 years now he has had to have the drug Tofersen delivered via lumber puncture and never once regretted being part of this groundbreaking research. bbc.co.uk/news/health-62…


Haveing lost my husband to mnd thanks to the inherited SOD1 gene i am very excited about this.

Some positive #MND research news: An extended clinical trial into the drug #Tofersen has found that it can slow the progression of the SOD1 inherited form of motor neuron disease. Full story below. 🔬



In a tent listening to the rain and generally chilling out with my world. Well needed. Love you @jayof7

eksmith69's tweet image. In a tent listening to the rain and generally chilling out with my world. Well needed. Love you @jayof7

I finished this book in 3 days. Amazing, inspirational and a very good read. I lost my husband in may 2020 at the age of 42 to MND. #robburrow #mnd #rainsingawarness #mnda #hero #rugby


Happy birthday. Thank you for everything you do for MND awareness. Hope you have the best day #MND #Hero

A very happy Birthday to our founder and continued inspiration, @DoddieWeir5 🥳 Here's hoping you have a wonderful day with the family, filled with laughter and maybe a Guinness or two 😉 Thank you for all you've done & continue to do for the MND community 💙💛

MNDoddie5's tweet image. A very happy Birthday to our founder and continued inspiration, @DoddieWeir5 🥳 

Here's hoping you have a wonderful day with the family, filled with laughter and maybe a Guinness or two 😉

Thank you for all you've done & continue to do for the MND community 💙💛
MNDoddie5's tweet image. A very happy Birthday to our founder and continued inspiration, @DoddieWeir5 🥳 

Here's hoping you have a wonderful day with the family, filled with laughter and maybe a Guinness or two 😉

Thank you for all you've done & continue to do for the MND community 💙💛
MNDoddie5's tweet image. A very happy Birthday to our founder and continued inspiration, @DoddieWeir5 🥳 

Here's hoping you have a wonderful day with the family, filled with laughter and maybe a Guinness or two 😉

Thank you for all you've done & continue to do for the MND community 💙💛
MNDoddie5's tweet image. A very happy Birthday to our founder and continued inspiration, @DoddieWeir5 🥳 

Here's hoping you have a wonderful day with the family, filled with laughter and maybe a Guinness or two 😉

Thank you for all you've done & continue to do for the MND community 💙💛


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