googleplex1001's profile picture. Stem cell transplant recipient, Support and Outreach Manager at @AplasticAnaemia and supporter of @AnthonyNolan. All views are my own.

Sam Williams

@googleplex1001

Stem cell transplant recipient, Support and Outreach Manager at @AplasticAnaemia and supporter of @AnthonyNolan. All views are my own.

Really looking forward to finally reading Shirley Nolan’s autobiography this weekend! Such a wonderful And timely re-release to celebrate fifty years of @AnthonyNolan saving lives. Soon to be on the shelves at @StaffsLibraries @HednesfordLib once I’ve finished reading it 📗

googleplex1001's tweet image. Really looking forward to finally reading Shirley Nolan’s autobiography this weekend! Such a wonderful
And timely re-release to celebrate fifty years of @AnthonyNolan saving lives.

Soon to be on the shelves at @StaffsLibraries @HednesfordLib once I’ve finished reading it 📗

Looking forward to a busy day, recruiting new potential stem cell donor to the @AnthonyNolan register at @PrideInLondon today! Come along to see us at a Trafalgar Square, next to Canada House and say hi! 🏳️‍🌈

googleplex1001's tweet image. Looking forward to a busy day, recruiting new potential stem cell donor to the @AnthonyNolan register at @PrideInLondon today! Come along to see us at a Trafalgar Square, next to Canada House and say hi! 🏳️‍🌈

Sam Williams reposted

"I wish they would understand that every day is different that we are not lazy and that we are all trying our best. Just because what I have is not cancer does not mean it is not serious!" - Claire #RareDiseaseDay #RareDiseaseDay2024 #aplasticanaemia

AplasticAnaemia's tweet image. "I wish they would understand that every day is different that we are not lazy and that we are all trying our best. Just because what I have is not cancer does not mean it is not serious!" - Claire #RareDiseaseDay #RareDiseaseDay2024 #aplasticanaemia

Sam Williams reposted

What do you wish people understood about your Super Rare condition? "I'm still me." - Paula, living with Dyskeratosis Congenita, a rare genetic disorder #RareDiseaseDay #RareDiseaseDay2024 @DC_Action

AplasticAnaemia's tweet image. What do you wish people understood about your Super Rare condition? "I'm still me." - Paula, living with Dyskeratosis Congenita, a rare genetic disorder 
#RareDiseaseDay #RareDiseaseDay2024 @DC_Action

Sam Williams reposted

What do you wish people understood about your Super Rare condition? @fanconihope @PNHSupport @CharitySdsuk @CAnaemiaNetwork @AplasticAnaemia @DC_Action

AplasticAnaemia's tweet image. What do you wish people understood about your Super Rare condition?

@fanconihope  @PNHSupport  @CharitySdsuk  @CAnaemiaNetwork @AplasticAnaemia @DC_Action

Hi @PostOffice, would it be possible for you to confirm what the in-branch rate would be if I wanted to purchase around £100 worth of Bahrain Dinar, please?


Sam Williams reposted

📢 NEWS: Belumosudil has been approved by NICE for chronic GvHD We’ve been calling for better access to GvHD treatments for a long time, so we’re delighted that a new treatment option will now be available to patients across the UK who have not responded to other therapies.

AnthonyNolan's tweet image. 📢 NEWS: Belumosudil has been approved by NICE for chronic GvHD  
 
We’ve been calling for better access to GvHD treatments for a long time, so we’re delighted that a new treatment option will now be available to patients across the UK who have not responded to other therapies.

Hi @easyJet, I’m currently waiting for the delayed EZY 338 BHX-EDI flight. Could you shed any light on the reason for the delay please? Thank you :)


Honoured to be at the Olly Wilkes Memorial Tournament at St George’s Park with @simonwilkes13 @FinnTheFabulou1 and @rianc_harvey to raise awareness of the @AnthonyNolan stem cell register. Here’s to signing up lots of new potential donors! 💚🖤💚

googleplex1001's tweet image. Honoured to be at the Olly Wilkes Memorial Tournament at St George’s Park with @simonwilkes13 @FinnTheFabulou1 and @rianc_harvey to raise awareness of the @AnthonyNolan stem cell register. Here’s to signing up lots of new potential donors! 💚🖤💚

Sam Williams reposted

The Better Together for Healthy Bone Marrow Alliance is committed to using the findings of the newly launched #RareVoices report to inform their focus for change and lobbying moving forwards. Read the commitments and recommendations of the report here➡️ bit.ly/3eRNus

AplasticAnaemia's tweet image. The Better Together for Healthy Bone Marrow Alliance is committed to using the findings of the newly launched #RareVoices report to inform their focus for change and lobbying moving forwards. Read the commitments and recommendations of the report here➡️ bit.ly/3eRNus
AplasticAnaemia's tweet image. The Better Together for Healthy Bone Marrow Alliance is committed to using the findings of the newly launched #RareVoices report to inform their focus for change and lobbying moving forwards. Read the commitments and recommendations of the report here➡️ bit.ly/3eRNus
AplasticAnaemia's tweet image. The Better Together for Healthy Bone Marrow Alliance is committed to using the findings of the newly launched #RareVoices report to inform their focus for change and lobbying moving forwards. Read the commitments and recommendations of the report here➡️ bit.ly/3eRNus
AplasticAnaemia's tweet image. The Better Together for Healthy Bone Marrow Alliance is committed to using the findings of the newly launched #RareVoices report to inform their focus for change and lobbying moving forwards. Read the commitments and recommendations of the report here➡️ bit.ly/3eRNus

Sam Williams reposted

We are dedicated to using the findings of the newly launched #RareVoices report to make a difference moving forwards. See our commitments below, and to read in full, click here➡️ bit.ly/3eRNus

AplasticAnaemia's tweet image. We are dedicated to using the findings of the newly launched #RareVoices report to make a difference moving forwards. See our commitments below, and to read in full, click here➡️ bit.ly/3eRNus

Sam Williams reposted

The new #RareVoices report by the Better Together for Healthy Bone Marrow Alliance found that 83% of those surveyed wanted access to current research about their condition, new treatments, and treatment methods. Read more here ➡️ bit.ly/RareV

AplasticAnaemia's tweet image. The new #RareVoices report by the Better Together for Healthy Bone Marrow Alliance found that 83% of those surveyed wanted access to current research about their condition, new treatments, and treatment methods. Read more here ➡️ bit.ly/RareV

Sam Williams reposted

The #RareVoices report found that many people affected by rare bone marrow conditions face significant challenges when trying to navigate the healthcare system. Discover more below ⬇️ bit.ly/RareV

AplasticAnaemia's tweet image. The #RareVoices report found that many people affected by rare bone marrow conditions face significant challenges when trying to navigate the healthcare system. Discover more below ⬇️ bit.ly/RareV
AplasticAnaemia's tweet image. The #RareVoices report found that many people affected by rare bone marrow conditions face significant challenges when trying to navigate the healthcare system. Discover more below ⬇️ bit.ly/RareV

Sam Williams reposted

The new #RareVoices report by the Better Together for Healthy Bone Marrow Alliance found that 53% of respondents reported always or often feeling anxious. Read more here ➡️ bit.ly/RareV

AplasticAnaemia's tweet image. The new #RareVoices report by the Better Together for Healthy Bone Marrow Alliance found that 53% of respondents reported always or often feeling anxious. Read more here ➡️ bit.ly/RareV
AplasticAnaemia's tweet image. The new #RareVoices report by the Better Together for Healthy Bone Marrow Alliance found that 53% of respondents reported always or often feeling anxious. Read more here ➡️ bit.ly/RareV
AplasticAnaemia's tweet image. The new #RareVoices report by the Better Together for Healthy Bone Marrow Alliance found that 53% of respondents reported always or often feeling anxious. Read more here ➡️ bit.ly/RareV

Sam Williams reposted

Today we’re launching #RareVoices - a new report based on the first ever national community survey of people affected by rare bone marrow conditions. Stay tuned as we uncover important insights. Read the report here ➡️ bit.ly/RareV

AplasticAnaemia's tweet image. Today we’re launching #RareVoices - a new report based on the first ever national community survey of people affected by rare bone marrow conditions. Stay tuned as we uncover important insights. Read the report here ➡️ bit.ly/RareV

Really excited to be a part of the Olly Wilkes Memorial Football Tournament this year, helping to promote @AnthonyNolan and sign people up to the stem cell register. Massive thanks to @simonwilkes13 and family for inviting me 💚🖤💚

⚽️🏴󠁧󠁢󠁥󠁮󠁧󠁿⚽️🏴󠁧󠁢󠁥󠁮󠁧󠁿⚽️🏴󠁧󠁢󠁥󠁮󠁧󠁿⚽️🏴󠁧󠁢󠁥󠁮󠁧󠁿⚽️🏴󠁧󠁢󠁥󠁮󠁧󠁿⚽️🏴󠁧󠁢󠁥󠁮󠁧󠁿⚽️🏴󠁧󠁢󠁥󠁮󠁧󠁿⚽️🏴󠁧󠁢󠁥󠁮󠁧󠁿⚽️🏴󠁧󠁢󠁥󠁮󠁧󠁿 JUST 20 DAYS TO GO. All 24 teams entered into "Our Olly's" Memorial Football Tournament 2023 have now submitted their Players List & Supporter Lists, some wonderful surprises on the Players lists i might add…. tbc

simonwilkes13's tweet image. ⚽️🏴󠁧󠁢󠁥󠁮󠁧󠁿⚽️🏴󠁧󠁢󠁥󠁮󠁧󠁿⚽️🏴󠁧󠁢󠁥󠁮󠁧󠁿⚽️🏴󠁧󠁢󠁥󠁮󠁧󠁿⚽️🏴󠁧󠁢󠁥󠁮󠁧󠁿⚽️🏴󠁧󠁢󠁥󠁮󠁧󠁿⚽️🏴󠁧󠁢󠁥󠁮󠁧󠁿⚽️🏴󠁧󠁢󠁥󠁮󠁧󠁿⚽️🏴󠁧󠁢󠁥󠁮󠁧󠁿
JUST 20 DAYS TO GO.

All 24 teams entered into "Our Olly's" Memorial Football Tournament 2023 have now submitted their Players List & Supporter Lists, some wonderful surprises on the Players lists i might add…. tbc


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