melbrycegamble's profile picture. Mom to Ginny, Executive Director and  Co-Founder at Global Foundation for Peroxisomal Disorders, rare disease advocate, non-profit leader.

Melissa Bryce

@melbrycegamble

Mom to Ginny, Executive Director and Co-Founder at Global Foundation for Peroxisomal Disorders, rare disease advocate, non-profit leader.

Melissa Bryce memposting ulang

GFPD @GlobalGenes Tribute to Champions of Hope. Incredibly inspiring night! #2017GGSummit #RARE #GFPDisHope

thegfpd's tweet image. GFPD  @GlobalGenes Tribute to Champions of Hope. Incredibly inspiring night! #2017GGSummit #RARE #GFPDisHope

Melissa Bryce memposting ulang

@GlobalFoundPD Board members presented at #2017GGsummit this week! Great connections made with other #RARE patient advocates! #GFPDisHope

thegfpd's tweet image. @GlobalFoundPD Board members presented at #2017GGsummit this week! Great connections made with other #RARE patient advocates! #GFPDisHope

Dr Chris Austin @ncats_nih_gov: Lack of Natural History data is largest reason that clinical trials for rare diseases fail. #2017ggsummit


Melissa Bryce memposting ulang
thegfpd's tweet image.

Thank you @PR_Resolute

Join us in supporting the Global Foundation for Peroxisomal Disorders and #PauseforPBD today! Visit thegfpd.org/pauseforpbd for more info!

PR_Resolute's tweet image. Join us in supporting the Global Foundation for Peroxisomal Disorders  and #PauseforPBD today! Visit thegfpd.org/pauseforpbd for more info!


I'm available for interviews this afternoon @KJRH2HD! Come learn how our #CookiesforaCause are making a difference! #PAUSEforPBD

@KJRH2HD Join us this afternoon@OkCookiemomster as 2 #mompreneurs work together to raise funds for rare childhood disease #PAUSEforPBD

thegfpd's tweet image. @KJRH2HD Join us this afternoon@OkCookiemomster as 2 #mompreneurs work together to raise funds for rare childhood disease #PAUSEforPBD


I'm available for interviews this afternoon @tulsaworld! Come learn how our #CookiesforaCause are making a difference! #PAUSEforPBD

@tulsaworld Join us this afternoon@OkCookiemomster as 2 #mompreneurs work together to raise funds for rare childhood disease #PAUSEforPBD

thegfpd's tweet image. @tulsaworld Join us this afternoon@OkCookiemomster as 2 #mompreneurs work together to raise funds for rare childhood disease #PAUSEforPBD


I'm available for interviews this afternoon @NewsOn6 ! Come learn how our #CookiesforaCause are making a difference! #PAUSEforPBD

@NewsOn6 Join us this afternoon@OkCookiemomster as 2 #mompreneurs work together to raise funds for rare childhood disease #PAUSEforPBD

thegfpd's tweet image. @NewsOn6 Join us this afternoon@OkCookiemomster as 2 #mompreneurs work together to raise funds for rare childhood disease #PAUSEforPBD


I'm available for interviews this afternoon @JournalRecord! Come learn how our #CookiesforaCause are making a difference! #PAUSEforPBD

@JournalRecord Join us this afternoon@OkCookiemomster as 2 #mompreneurs work together to raise funds for rare childhood disease #PAUSEforPBD



I'm available for interviews this afternoon @KTULNews! Come learn about how our #Cookiesforacause are making a difference!!!! #PAUSEforPBD

@KTULNews Join us this afternoon@OkCookiemomster as 2 #mompreneurs work together to raise funds for rare childhood disease #PAUSEforPBD

thegfpd's tweet image. @KTULNews Join us this afternoon@OkCookiemomster as 2 #mompreneurs work together to raise funds for rare childhood disease #PAUSEforPBD


Hi Channing! If you know anyone in Tulsa that could help us promote this story, please let me know!

@ChanningBarker Join us today @OkCookiemomster as 2 #mompreneurs work together to raise funds for rare childhood disease #PAUSEforPBD



Melissa Bryce memposting ulang

@FOX23Join us this afternoon@OkCookiemomster as 2 #mompreneurs work together to raise funds for rare childhood disease #PAUSEforPBD

thegfpd's tweet image. @FOX23Join us this afternoon@OkCookiemomster as 2 #mompreneurs work together to raise funds for rare childhood disease #PAUSEforPBD

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