supportALDS's profile picture. The Australian Leukodystrophy Support Group Inc is a voluntary, non-profit organisation supporting families and individuals affected with Leukodystrophy.

Support ALDS

@supportALDS

The Australian Leukodystrophy Support Group Inc is a voluntary, non-profit organisation supporting families and individuals affected with Leukodystrophy.

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For those in Western Australia, the Genetic and Rare Disease Network (GaRDN) is running a Rare Disease Day event... fb.me/OYmsR5gA


With Rare Disease Day coming up on the 29th of February there are some events planned around the country. Here... fb.me/7dg3EWprq


Leukodystrophy Australia is saddened to hear the passing of another warrior, young Noah Hopkins from South... fb.me/7BzWHml55


We are saddened to hear of the passing of young Nicholas Burford from Krabbe Disease in South Australia. Our... fb.me/3GtVhNE2x


Great work being done in South Australia for rare diseases... fb.me/HMIJvdhr


Hello again, it's all been happening in WA for Leukodystrophy this week. Thank you to all who came to our Family... fb.me/GxUz0Miz


Greetings All Perth turned on a gorgeous day today for the Connect Groups Awareness Day where Angela and Bron... fb.me/6S6yLf6qu


We've been busy little beavers these past few months. Still got lots to get through before the year is finished fb.me/2K2UvzTT3


Spring 2015 Newsletter - read all about it!


Tomorrow, Friday 25 September Angela and Bronwyn will be at The Connect Groups Annual Self Help and Support... fb.me/1Zd9uAr0q


The month of November will be here in no time. We would like to remind you that you have til the 20th of... fb.me/3UIL1dmH9


Thank you to the families who attended the family event yesterday at Scienceworks in Melbourne.


We are saddened to hear of the passing of Helen Hunt from Western Australia. Our thoughts go out to Helen's... fb.me/6KtBbLdOV


Don't forgot you have until the 20th of November to be in a chance to win a Lexus IS 250 Luxury (worth $61,161... fb.me/3pn0WjAoW


Hello to all our valued Members. This is a reminder of our AGM this Saturday 22 August (tomorrow) at Mary... fb.me/6If9BAIsq


Hello to all our valued Members. This is a reminder of our AGM this Saturday 22 August (tomorrow) at Mary... fb.me/C8l5IIcv


If you are not in Melbourne but wish to attend this event, there will be a web access via the GO TO MEETING... fb.me/7rZyQbZiV


Don't forgot you have the great opportunity to try to win a Lexus IS 250 Luxury (worth $61,161 includes on road... fb.me/IJbmAMyx


Don't forgot you have the great opportunity to try to win a Lexus IS 250 Luxury (worth $61,161 includes on road... fb.me/4bHtY4mFV


Western Australian families, members and friends. It is one week till the Cracking the Code - An evening with... fb.me/3LkqYgvYm


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