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supportcjd's profile picture. UK Charity providing emotional and practical support for Creutzfeldt-Jakob Disease (CJD) http://justgiving.com/cjdsupport Charity No. 1097173 #CJD #Prion

CJD Support Network UK

@supportcjd

UK Charity providing emotional and practical support for Creutzfeldt-Jakob Disease (CJD) http://justgiving.com/cjdsupport Charity No. 1097173 #CJD #Prion

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CJD Support Network UK
 @supportcjd
11.11.

We are the only UK charity dedicated to all forms of CJD and prion disease. We offer emotional and practical support to affected individuals and those at increased risk. You can donate at justgiving.com/charity/cjdsup… Thank you for visiting us on X.

supportcjd's tweet image. We are the only UK charity dedicated to all forms of CJD and prion disease. We offer emotional and practical support to affected individuals and those at increased risk. You can donate at justgiving.com/charity/cjdsup… Thank you for visiting us on X.
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CJD Support Network UK
 @supportcjd
12.11.

We are bringing International CJD Awareness Day to an end on our socials. Thank you for reading sharing or sharing. Thinking of everyone affected by prion diseases, appreciating the carers and supporters, thanking the researchers for hope. #CJDAwareness #PrionDiseaseAwareness

supportcjd's tweet image. We are bringing International CJD Awareness Day to an end on our socials. Thank you for reading sharing or sharing. Thinking of everyone affected by prion diseases, appreciating the carers and supporters, thanking the researchers for hope. #CJDAwareness #PrionDiseaseAwareness
supportcjd's tweet image. We are bringing International CJD Awareness Day to an end on our socials. Thank you for reading sharing or sharing. Thinking of everyone affected by prion diseases, appreciating the carers and supporters, thanking the researchers for hope. #CJDAwareness #PrionDiseaseAwareness
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supportcjd's profile picture.
CJD Support Network UK
 @supportcjd
12.11.

Raising #CJDAwareness and #PrionDiseaseAwareness is helped by connections with other groups. These do invaluable work supporting rare disease charities and CJD support groups. 💛 @GeneticAll_UK Genetic Alliance UK @RareBeacon Beacon for Rare Diseases cjdisa.com

supportcjd's tweet image. Raising #CJDAwareness and #PrionDiseaseAwareness is helped by connections with other groups. These do invaluable work supporting rare disease charities and CJD support groups. 💛 @GeneticAll_UK Genetic Alliance UK @RareBeacon Beacon for Rare Diseases cjdisa.com
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supportcjd's profile picture.
CJD Support Network UK
 @supportcjd
12.11.

Challenge events, head shaves, crafts and quizzes; we have been privileged to be the beneficiary of the community's fundraising efforts. This allows us to support more people as more people are affected, alongside existing friends. #CJDAwareness #PrionDiseaseAwareness

supportcjd's tweet image. Challenge events, head shaves, crafts and quizzes; we have been privileged to be the beneficiary of the community's fundraising efforts. This allows us to support more people as more people are affected, alongside existing friends. #CJDAwareness #PrionDiseaseAwareness
supportcjd's tweet image. Challenge events, head shaves, crafts and quizzes; we have been privileged to be the beneficiary of the community's fundraising efforts. This allows us to support more people as more people are affected, alongside existing friends. #CJDAwareness #PrionDiseaseAwareness
supportcjd's tweet image. Challenge events, head shaves, crafts and quizzes; we have been privileged to be the beneficiary of the community's fundraising efforts. This allows us to support more people as more people are affected, alongside existing friends. #CJDAwareness #PrionDiseaseAwareness
supportcjd's tweet image. Challenge events, head shaves, crafts and quizzes; we have been privileged to be the beneficiary of the community's fundraising efforts. This allows us to support more people as more people are affected, alongside existing friends. #CJDAwareness #PrionDiseaseAwareness
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supportcjd's profile picture.
CJD Support Network UK
 @supportcjd
12.11.

Each year we create a video to remember loved ones lost to CJD and prion disease in the UK. Thank you to those who have shared photos with us. In loving memory. 💛 #CJDAwareness #PrionDiseaseAwareness youtu.be/a_8kJj-d6Iw

supportcjd's tweet card. 2025 In Memory Video for International CJD Awareness Day

youtube.com

YouTube

2025 In Memory Video for International CJD Awareness Day

Quelle: youtube.com
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supportcjd's profile picture.
CJD Support Network UK
 @supportcjd
12.11.

From designing tote bags to writing letters, Dave is an active supporter of our charity. Dave is also at an increased risk of iatrogenic CJD. We are a resource for people affected by and at risk of all forms of prion disease in the UK. #CJDAwareness #PrionDiseaseAwareness

supportcjd's tweet image. From designing tote bags to writing letters, Dave is an active supporter of our charity. Dave is also at an increased risk of iatrogenic CJD. We are a resource for people affected by and at risk of all forms of prion disease in the UK. #CJDAwareness #PrionDiseaseAwareness
supportcjd's tweet image. From designing tote bags to writing letters, Dave is an active supporter of our charity. Dave is also at an increased risk of iatrogenic CJD. We are a resource for people affected by and at risk of all forms of prion disease in the UK. #CJDAwareness #PrionDiseaseAwareness
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CJD Support Network UK
 @supportcjd
12.11.

Today our fellow UK organisation @curecjdcampaign launch an international fundraising effort. Whilst we focus on support, community and information for those affected, their focus is research. We are pleased to share their informative thread: #CJDAwareness #PrionDiseaseAwareness

curecjdcampaign's profile picture. To raise funds to develop a cure for prion diseases (CJD, GSS, IFF), and support PRN100 clinical trial phase II. With your support it will happen! https://t.co/DOF9eoe9la
The Cure CJD Campaign
 @curecjdcampaign
12.11.

🧬 The Cure CJD Campaign launches an international fundraising effort to raise £9 million for Phase II clinical trial of #PRN100 — the most promising treatment ever developed for prion diseases. Read the full Press Release: curecjd.org/wp-content/upl… #CJD #PrionDiseases #PRN100

curecjdcampaign's tweet image. 🧬 The Cure CJD Campaign launches an international fundraising effort to raise £9 million for Phase II clinical trial of #PRN100 — the most promising treatment ever developed for prion diseases. Read the full Press Release: curecjd.org/wp-content/upl… #CJD #PrionDiseases #PRN100
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supportcjd's profile picture.
CJD Support Network UK
 @supportcjd
12.11.

There are no approved prion disease treatments however international researchers like gatebio.com @SangamoTx @prionalliance @ionispharma @MRC_Prion give hope. For treatments being assessed/considered, visit: cjdisa.com/research/clini… #CJDAwareness #PrionDiseaseAwareness

supportcjd's tweet image. There are no approved prion disease treatments however international researchers like gatebio.com @SangamoTx @prionalliance @ionispharma @MRC_Prion give hope. For treatments being assessed/considered, visit: cjdisa.com/research/clini… #CJDAwareness #PrionDiseaseAwareness
supportcjd's tweet image. There are no approved prion disease treatments however international researchers like gatebio.com @SangamoTx @prionalliance @ionispharma @MRC_Prion give hope. For treatments being assessed/considered, visit: cjdisa.com/research/clini… #CJDAwareness #PrionDiseaseAwareness
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supportcjd's profile picture.
CJD Support Network UK
 @supportcjd
12.11.

Today, we are Globally United as a CJD and Prion Disease community. This📽️represents members of the CJD International Support Alliance. CJDISA assists the development of new organisations around the world💛 #CJDAwareness #PrionDiseaseAwareness youtu.be/208hHboo55I

supportcjd's tweet card. 'Globally United for prion disease awareness' - CJDISA International...

youtube.com

YouTube

'Globally United for prion disease awareness' - CJDISA International...

Quelle: youtube.com
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supportcjd's profile picture.
CJD Support Network UK
 @supportcjd
12.11.

We are a proud member of the CJD International Support Alliance, bringing together CJD support organisations across the world. They produced this useful infographic of how the three types of CJD fit together under the umbrella of 'CJD'. #CJDAwareness #PrionDiseaseAwareness

supportcjd's tweet image. We are a proud member of the CJD International Support Alliance, bringing together CJD support organisations across the world. They produced this useful infographic of how the three types of CJD fit together under the umbrella of 'CJD'. #CJDAwareness #PrionDiseaseAwareness
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supportcjd's profile picture.
CJD Support Network UK
 @supportcjd
12.11.

In the UK scientists are actively researching CJD and ways to cure it. We, the CJD Support Network, focus on support for those affected and information for all, and @cureCJDcampaign works to raise money for research: curecjd.org #CJDAwareness #PrionDiseaseAwareness

supportcjd's tweet image. In the UK scientists are actively researching CJD and ways to cure it. We, the CJD Support Network, focus on support for those affected and information for all, and @cureCJDcampaign works to raise money for research: curecjd.org #CJDAwareness #PrionDiseaseAwareness
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supportcjd's profile picture.
CJD Support Network UK
 @supportcjd
12.11.

What are CJD and prion diseases? Prion disease starts when these normal proteins in the brain misfold and build up, causing damage. CJD and prion diseases are rare, progressive and currently always fatal, with no existing treatments. #CJDAwareness #PrionDiseaseAwareness

supportcjd's tweet image. What are CJD and prion diseases? Prion disease starts when these normal proteins in the brain misfold and build up, causing damage. CJD and prion diseases are rare, progressive and currently always fatal, with no existing treatments. #CJDAwareness #PrionDiseaseAwareness
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supportcjd's profile picture.
CJD Support Network UK
 @supportcjd
12.11.

We are proud to recognise International Creutzfeld-Jakob Disease Awareness Day today. Members of the global prion disease community come together to raise awareness of CJD and prion diseases, highlight support and recognise ongoing research. #CJDAwareness #PrionDiseaseAwareness

supportcjd's tweet image. We are proud to recognise International Creutzfeld-Jakob Disease Awareness Day today. Members of the global prion disease community come together to raise awareness of CJD and prion diseases, highlight support and recognise ongoing research. #CJDAwareness #PrionDiseaseAwareness
supportcjd's tweet image. We are proud to recognise International Creutzfeld-Jakob Disease Awareness Day today. Members of the global prion disease community come together to raise awareness of CJD and prion diseases, highlight support and recognise ongoing research. #CJDAwareness #PrionDiseaseAwareness
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supportcjd's profile picture.
CJD Support Network UK
 @supportcjd
10.11.

12th November is International CJD Awareness Day. This is a day when members of the prion disease community around the world come together to raise awareness of CJD and prion diseases, highlight the available support and recognise ongoing research. We rviv.ly/miQxI2

supportcjd's tweet card. 12th November is International CJD Awareness Day. This is a day when members of the prion disease community around the world come together to raise awareness
International CJD Awareness Day 2025 - Social Media Resources — CJD Support Network
Quelle: cjdsupport.co.uk
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CJD Support Network UK
 @supportcjd
29.10.

On a beautiful day in July, Claverley Cricket Club hosted a match to raise funds for the CJD Support Network in memory of Louise Barnes.  Claverley Legends took on Penn Legends and the game was well fought with good humour.  Onlookers enjoyed their rviv.ly/zM0jEh

supportcjd's tweet card. On a beautiful day in July, Claverley Cricket Club hosted a match to raise funds for the CJD Support Network in memory of Louise Barnes.  Claverley Legends
Claverley Cricket Club Fundraising Match in Memory of Louise Barnes — CJD Support Network
Quelle: cjdsupport.co.uk
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NHS_Lothian's profile picture.
NHS Lothian
 @NHS_Lothian
30.05.

The UK wide NHS nursing team are here to support patients diagnosed with Creutzfeldt-Jakob Disease (CJD) as well as the local professionals involved in their journey. Get in touch by emailing [email protected] @supportcjd #NHSScotland @NHSEngland

NHS_Lothian's tweet image. The UK wide NHS nursing team are here to support patients diagnosed with Creutzfeldt-Jakob Disease (CJD) as well as the local professionals involved in their journey. Get in touch by emailing loth.specialistncjd@nhs.scot @supportcjd #NHSScotland @NHSEngland
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supportcjd's profile picture.
CJD Support Network UK
 @supportcjd
06.06.

You may’ve noticed we’ve been a little quieter than usual. We’re currently recruiting a new National Coordinator & focusing on a smooth handover. Our support services remain active: 📞 0800 774 7317 (Tues & Fri, 8am–6pm) 📧 [email protected] 💬 cjdsupport.co.uk/support-events/

supportcjd's tweet image. You may’ve noticed we’ve been a little quieter than usual. We’re currently recruiting a new National Coordinator & focusing on a smooth handover. Our support services remain active: 📞 0800 774 7317 (Tues & Fri, 8am–6pm) 📧 support@cjdsupport.co.uk 💬 cjdsupport.co.uk/support-events/
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supportcjd's profile picture.
CJD Support Network UK
 @supportcjd
13.05.

📢 Job still open! We’re aiming to interview for the National Coordinator role at @CJDsupport w/c 26 May — so if you're planning to apply, get your application in soon! 🔗 cjdsupport.co.uk/job-opportunit… Please share 💛

supportcjd's tweet card. The CJD Support Network is seeking applicants for the role of National Coordinator. This largely autonomous role offers the opportunity to make a meaningful
[This vacancy is now closed] Job opportunity: CJD Support Network National Coordinator — CJD...
Quelle: cjdsupport.co.uk
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supportcjd's profile picture.
CJD Support Network UK
 @supportcjd
06.05.

📢 The CJD Support Network is recruiting for National Coordinator📢 🔗 Learn more & apply: cjdsupport.co.uk/job-opportunit… 💛 Please share!

supportcjd's tweet image. 📢 The CJD Support Network is recruiting for National Coordinator📢 🔗 Learn more & apply: cjdsupport.co.uk/job-opportunit… 💛 Please share!
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supportcjd's profile picture.
CJD Support Network UK
 @supportcjd
15.04.

📢 We're having intermittent email issues. You may experience problems sending to or receiving from our email addresses. We are working to resolve the issue as quickly as possible. Feel free to reach out to us by telephone (0800 774 7317) or social media with urgent messages.

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Rare Disease Implementation Network

@NHSW_RDIG
Jeremy_Miles's profile picture. MS for Neath - AS Castell-nedd. Cabinet Secretary for Health & Social Care - Ysgrifennydd Cabinet Iechyd/Gofal Cymdeithasol: @WGHealthandCare

Jeremy Miles

@Jeremy_Miles
JGriffithsLab's profile picture. Welsh Labour MS for Newport East & Severnside. For Local Government & Housing committee work click @SeneddLGHousing. Grandad, County fan and keen park-runner.

John Griffiths MS

@JGriffithsLab
GlobalGenes's profile picture. Empowering the Next Generation Rare Disease Advocate. Merged with RARE-X Dec. 2022. #CareAboutRare

Global Genes

@GlobalGenes
camraredisease's profile picture. Improving outcomes for those living with rare conditions. Also find us at: https://t.co/kZWskP9Ojj

Cambridge Rare Disease Network (CamRARE)

@camraredisease
eurordis's profile picture. An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.

EURORDIS-Rare Diseases Europe

@eurordis
SangamoTx's profile picture. Committed to translating our ground-breaking science into genomic medicines that transform patients’ lives.

Sangamo Therapeutics

@SangamoTx
nina_ober's profile picture. Biotech | Drug Discovery | San Francisco via 🇧🇷 🇬🇧 | literary fiction | wine | backpacking | running

Nina Oberbeck

@nina_ober
TheBrainCharity's profile picture. We help people with ALL neurological conditions to live longer, healthier, happier lives. 🧠 Practical advice 🧠 Emotional support 🧠 Championing neurodiversity

The Brain Charity

@TheBrainCharity
BarriersDown's profile picture. BDB is a network of organisations working together to improve the lives of people from marginalised communities and addressing health inequalities.

Breaking Down Barriers

@BarriersDown
ChildGrowthUK's profile picture. Going forward the Child Growth Foundation will not be posting here on X. You can find us on a number of alternative social media platforms.

Child Growth Foundation

@ChildGrowthUK
raritylifemag's profile picture. A new online publication that offers those affected by rare disease, disability & cancer the opportunity to unify & share our collective experience.

Rarity Life

@raritylifemag
RareBeacon's profile picture. Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.

Beacon for Rare Diseases

@RareBeacon
GregMulholland1's profile picture. Campaigner 📢 singer-songwriter @summercrossband & singer/rhythm guitarist with @Lowtownband 🎶🎵 #Otley Ambassador. Pub work see @thepubchampion

Greg Mulholland

@GregMulholland1
BBCRadioCymru's profile picture. Y newyddion a gwybodaeth diweddaraf am raglenni BBC Radio Cymru • Newyddion @BBCCymruFyw • Chwaraeon @BBCChwaraeonRC Lawrlwythwch @BBCSounds i wrando'n rhywle!

Radio Cymru

@BBCRadioCymru
LibbyLibbyjim's profile picture. NHS Renal Nurse…Mother of 2 gorgeous individuals…Crazy cat lady of 3 tiddles…All my own views

Libby Critchers

@LibbyLibbyjim
hv_johnson's profile picture.

Helen Johnson

@hv_johnson
MedicsForRare's profile picture. This account is no longer active, please continue to follow our work on Instagram and Bluesky! @medicsforrare

MedicsforRareDisease

@MedicsForRare
UMN_MNPRO's profile picture. MNPRO - A multidisciplinary think-tank atmosphere building and supporting strategic partnerships in neurodegenerative disease study - CWD, CJD, AD, PD, ALS

Minnesota Center for Prion Research & Outreach

@UMN_MNPRO
UCSF's profile picture. UC San Francisco is the leading university exclusively focused on health. @UCSF on Instagram, Facebook, LinkedIn and YouTube

UC San Francisco

@UCSF
populimediauk's profile picture. Fueling digital success, one click at a time 🚀 | Your partner in online marketing solutions 📈 | Crafting compelling narratives for the digital age 📣

Populi Media

@populimediauk
StAnnesCollege's profile picture. St Anne's is committed to keeping our world-wide community of students, fellows, staff, alumnæ and friends in touch with each other, and with the College.

St Anne's College

@StAnnesCollege
debbieyobs1's profile picture.

Debbie Yobs

@debbieyobs1
HopeforCjd's profile picture. Lost our beautiful Mum to CJD in October 2021. A vile, rapid & brutal disease. We need to find some hope & a cure and help those patients and families 💛

HopeforCJD

@HopeforCjd
HaticeKurucu's profile picture. Neurologist

Hatice Kurucu King

@HaticeKurucu
10xCh1's profile picture. We are a project supported by Friends of the Earth to make Chester City #10xGreener https://t.co/8cfgZVXRCr

10xGreenerCH1

@10xCh1
FundEverywhere's profile picture. Because every fundraiser deserves to be supported at work 💙 Conferences I Community I Membership I Training - all online Hosted on @Everywhere_Plus

Fundraising Everywhere

@FundEverywhere
GeneticAll_UK's profile picture. National charity working for everyone affected by genetic, rare and undiagnosed conditions. We run the campaign Rare Disease UK and support network @SWAN_UK.

Genetic Alliance UK

@GeneticAll_UK
UCLHCharity's profile picture. We're the official charity supporting patients, staff and research at University College London Hospitals (UCLH) NHS Foundation Trust

UCLH Charity

@UCLHCharity
mariecurieuk's profile picture. We’re the UK’s leading end of life charity. Hospice care and support, research and campaigns. Whatever the illness, we’re with you to the end 💛

Marie Curie

@mariecurieuk
ourhousegrief's profile picture. Building a world where no one grieves alone. OUR HOUSE provides grief support services, education, resources, and hope to the Los Angeles community. 💜

OUR HOUSE Grief

@ourhousegrief
SianWeather's profile picture. TV presenter, journalist, weather reporter, travel & food writer. Columnist,awards & functions host. Agent: julia@championtalent.co.uk

Siân Lloyd

@SianWeather
DrDJLlewellyn's profile picture. Professor @UniofExeter, Fellow @TuringInst, Director @DemonNetworkUK, @ISTAART Council, @alzheimerssoc Grant Board

Prof David Llewellyn

@DrDJLlewellyn
lindamagTV's profile picture. Founder @goodgrieftrust Bringing UK bereavement services together under one umbrella. Tailored signposting from day one. Points of Light Award winner

Linda Magistris OBE

@lindamagTV
age_uk's profile picture. We believe every older person should be valued and included. Let's change how we age 💜

Age UK

@age_uk
DementiaUK's profile picture. We’re the UK’s only specialist dementia nursing charity, providing life-changing support for everyone who needs it.

Dementia UK

@DementiaUK
alzheimerssoc's profile picture. Individuals can’t end the devastation of dementia alone. It will take a society to beat dementia.

Alzheimer's Society

@alzheimerssoc
TyPawb's profile picture. Lleoliad Marchnadoedd, celfyddydau a chymuned arobryn yng nghanol Wrecsam Award winning markets, arts & community venue in the heart of Wrexham

Tŷ Pawb

@TyPawb
dontsendmeacard's profile picture. Send charity ecards and give the cost of greeting cards to a cause you care about!

DontSendMeACard.com

@dontsendmeacard
ageuksheffield's profile picture. We are an independent charity providing a range of services for people over 50 in Sheffield. We support older people to live fulfilling and independent lives

Age UK Sheffield

@ageuksheffield
samaritans's profile picture. Our free helpline is available round the clock on 116 123. Our X account is not staffed 24/7 and we cannot offer support here.

Samaritans

@samaritans
BigGive's profile picture. We are here to double the difference we can all make in the world. Whatever your cause, whatever your passion - make double the difference.

Big Give

@BigGive
ChrystalPaddock's profile picture. Mommy, engineer, educator! Raising #CJDawareness BSc, BEd, MEd, PEng she/her 🇨🇦

Chrystal (she/her)

@ChrystalPaddock

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