English
English Indonesia Türkçe Deutsch Español Português Pусский Français Italiano Nederlands Polski العربية ไทย Tiếng Việt 繁體中文 简体中文 日本語 한국어

#kbgawareness search results

KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
Mar 30, 2022

While we are at it, to the doctors that work alongside us, who are willing to think “outside the box” we thank you for your hard work and dedication to our health and wellness on this day and every day. #KBGSyndrome #KBGAwareness #DoctorsDay #TeamKBG #everylinkmatters

KBGFdn's tweet image. While we are at it, to the doctors that work alongside us, who are willing to think “outside the box” we thank you for your hard work and dedication to our health and wellness on this day and every day. #KBGSyndrome #KBGAwareness #DoctorsDay #TeamKBG #everylinkmatters
1
2
8
0
0
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
Sep 30, 2022

Dr. Gholson Lyon, member of the KBG Foundation Scientific Advisory Board, is hosting another summit for clinicians and researchers supporting KBG patients on 10/18/22. Contact [email protected] #KBGfdn #KBGAwareness #KBGSyndrome #rarediseaseresearch #everylinkmatters

KBGFdn's tweet image. Dr. Gholson Lyon, member of the KBG Foundation Scientific Advisory Board, is hosting another summit for clinicians and researchers supporting KBG patients on 10/18/22. Contact gholsonjlyon@gmail.com #KBGfdn #KBGAwareness #KBGSyndrome #rarediseaseresearch #everylinkmatters
0
5
7
0
0
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
Jun 11, 2022

Happy KBG Syndrome Awareness Day 2022! Meet some of our family will you?! What are YOU doing today? youtu.be/ItgFBqULe7o #KBGDay2022 #KBGFamily #KBGAwareness #KBGFdn #everylinkmatters

KBGFdn's tweet image. Happy KBG Syndrome Awareness Day 2022! Meet some of our family will you?! What are YOU doing today? youtu.be/ItgFBqULe7o #KBGDay2022 #KBGFamily #KBGAwareness #KBGFdn #everylinkmatters
0
4
7
0
0
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
May 12, 2023

We honor nurses today for the comfort and gentle kindness they provide in some of our darkest moments. Your generosity will forever live in our hearts. Happy International Nurses Day to all of our “angel” nurses! #KBGSyndrome #KBGAwareness #KBGfdn #everylinkmatters

KBGFdn's tweet image. We honor nurses today for the comfort and gentle kindness they provide in some of our darkest moments. Your generosity will forever live in our hearts. Happy International Nurses Day to all of our “angel” nurses! #KBGSyndrome #KBGAwareness #KBGfdn #everylinkmatters
0
0
1
0
76
RareRevolutionM's profile picture. Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: hello@rarerevolutionmagazine.com
RARE Revolution Magazine®
@RareRevolutionM
Jun 11, 2022

This year marks the 7th year celebrating International KBG Awareness Day! The @KbgFoundation is pleased to help promote awareness and acceptance with this years theme: Family. #KBGFamily #KBGAwareness#KBGSyndrome #Everylinkmatters #TeamKBG #KBGDay2022

RareRevolutionM's tweet image. This year marks the 7th year celebrating International KBG Awareness Day! The @KbgFoundation is pleased to help promote awareness and acceptance with this years theme: Family. #KBGFamily #KBGAwareness#KBGSyndrome #Everylinkmatters #TeamKBG #KBGDay2022
RareRevolutionM's tweet image. This year marks the 7th year celebrating International KBG Awareness Day! The @KbgFoundation is pleased to help promote awareness and acceptance with this years theme: Family. #KBGFamily #KBGAwareness#KBGSyndrome #Everylinkmatters #TeamKBG #KBGDay2022
0
1
3
0
0
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
Jun 2, 2022

Maryland Governor Proclaims June 11 Is KBG Syndrome Awareness Day! kbgfoundation.com/pr-kbg-syndrom… #KBGDay2022 #KBGAwareness #KBGSyndrome #KBGfdn

KBGFdn's tweet image. Maryland Governor Proclaims June 11 Is KBG Syndrome Awareness Day! kbgfoundation.com/pr-kbg-syndrom… #KBGDay2022 #KBGAwareness #KBGSyndrome #KBGfdn
0
2
4
0
0
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
Jun 9, 2022

It can be difficult to talk to your children about KBG Syndrome. Most people haven't heard of it so where do you start? We created these coloring pages to help start the discussion. Visit kbgfoundation.com/downloadable-g… #KBGDay2022 #KBGSyndrome #KBGAwareness #everylinkmatters #KBGFdn

KBGFdn's tweet image. It can be difficult to talk to your children about KBG Syndrome. Most people haven't heard of it so where do you start? We created these coloring pages to help start the discussion. Visit kbgfoundation.com/downloadable-g… #KBGDay2022 #KBGSyndrome #KBGAwareness #everylinkmatters #KBGFdn
KBGFdn's tweet image. It can be difficult to talk to your children about KBG Syndrome. Most people haven't heard of it so where do you start? We created these coloring pages to help start the discussion. Visit kbgfoundation.com/downloadable-g… #KBGDay2022 #KBGSyndrome #KBGAwareness #everylinkmatters #KBGFdn
KBGFdn's tweet image. It can be difficult to talk to your children about KBG Syndrome. Most people haven't heard of it so where do you start? We created these coloring pages to help start the discussion. Visit kbgfoundation.com/downloadable-g… #KBGDay2022 #KBGSyndrome #KBGAwareness #everylinkmatters #KBGFdn
KBGFdn's tweet image. It can be difficult to talk to your children about KBG Syndrome. Most people haven't heard of it so where do you start? We created these coloring pages to help start the discussion. Visit kbgfoundation.com/downloadable-g… #KBGDay2022 #KBGSyndrome #KBGAwareness #everylinkmatters #KBGFdn
0
4
7
0
0
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
May 31, 2022

Dr. Gholson Lyon, is hosting the 2nd summit for clinicians and researchers supporting KBG patients on June 7, 2022. Contact [email protected] to get all the details and sign up. Read more here kbgfoundation.com/kbg-syndrome-s… #KBGfdn #KBGAwareness #KBGSyndrome #everylinkmatters

KBGFdn's tweet image. Dr. Gholson Lyon, is hosting the 2nd summit for clinicians and researchers supporting KBG patients on June 7, 2022. Contact gholsonjlyon@gmail.com to get all the details and sign up. Read more here kbgfoundation.com/kbg-syndrome-s… #KBGfdn #KBGAwareness #KBGSyndrome #everylinkmatters
0
5
8
0
0
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
May 14, 2022

On International Family Day with this updated favorite we remind you: in this KBG Family, NO ONE FIGHTS ALONE! store.kbgfoundation.com/listing/no-one… #KBGDay2022 #KBGAwareness #KBGSyndrome #everylinkmatters #KBGfdn

KBGFdn's tweet image. On International Family Day with this updated favorite we remind you: in this KBG Family, NO ONE FIGHTS ALONE! store.kbgfoundation.com/listing/no-one… #KBGDay2022 #KBGAwareness #KBGSyndrome #everylinkmatters #KBGfdn
0
1
6
0
0
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
Sep 18, 2023

Thanks Holtrop family for sharing Oliver's story! Personal stories help others feel seen and accepted. Awareness of KBG syndrome means earlier and accurate diagnosis and a treatment! tinyurl.com/KBGAwareHoltrop #KBGsyndrome #KBGfamilies #KBGawareness #everylinkmatters #ANKRD11

KBGFdn's tweet image. Thanks Holtrop family for sharing Oliver's story! Personal stories help others feel seen and accepted. Awareness of KBG syndrome means earlier and accurate diagnosis and a treatment! tinyurl.com/KBGAwareHoltrop #KBGsyndrome #KBGfamilies #KBGawareness #everylinkmatters #ANKRD11
0
3
4
0
247
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
Mar 19, 2022

In 11 minutes, Annette Maughan KBG Foundation CEO, discusses what types of seizures may present in KBG Syndrome. #TalKBG #KBGSyndrome #KBGAwareness #KBGfdn #everylinkmatters #ankrd11 On YouTube: youtu.be/MycMAz3WWMI On Spotify: open.spotify.com/episode/0GX3MW…...

KBGFdn's tweet image. In 11 minutes, Annette Maughan KBG Foundation CEO, discusses what types of seizures may present in KBG Syndrome. #TalKBG #KBGSyndrome #KBGAwareness #KBGfdn #everylinkmatters #ankrd11 On YouTube: youtu.be/MycMAz3WWMI On Spotify: open.spotify.com/episode/0GX3MW…...
0
2
2
0
0
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
Mar 12, 2022

Marla and Annette discuss what it's like getting the diagnosis and adapting to having a name for all the symptoms. #TalKBG #KBGSyndrome #KBGAwareness #KBGfdn #everylinkmatters On YouTube: youtu.be/T7yB54fJ8-8 On Spotify: open.spotify.com/episode/3TF5Nk…...

KBGFdn's tweet image. Marla and Annette discuss what it's like getting the diagnosis and adapting to having a name for all the symptoms. #TalKBG #KBGSyndrome #KBGAwareness #KBGfdn #everylinkmatters On YouTube: youtu.be/T7yB54fJ8-8 On Spotify: open.spotify.com/episode/3TF5Nk…...
0
2
1
0
0
Speedqueenie's profile picture. Former party girl & uber fruit fly trapped in a social media bubble with a cat named Biscuit 🐈 Views are all mine & nobody else's🤗 @speedqueenie on Insta 💖💫
Susan McLellan
 @Speedqueenie
Jun 18, 2020

Tomorrow is #KBGAwareness day. It's a rare genetic disorder which you can read about here. kbgfoundation.com/what-is-kbg-.h… @KBGFdn

0
0
1
0
0
KBGSyndrome's profile picture. KBG Syndrome is an ultra rare syndrome identified by a mutation in the ANKRD11 gene. 1 in 19 Million baby! This account is maintained by the KBG Foundation.
KBG Syndrome
 @KBGSyndrome
Jun 4, 2022

Whether or not you have an early diagnosis, with KBG Syndrome the key is to never give up! Rise to any challenge! #KBGFamily #KBGDay2022 #KBGAwareness #everylinkmatters #KBGfdn

KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
Jun 4, 2022

Meet another one of our family members. Nathan grew up not knowing about KBG Syndrome and he always met any challenge! Read Nathan's story at: kbgfoundation.com/stories---nath… #KBGDay2022 #KBGFamily #everylinkmatters #KBGSyndrome #KBGAwareness #KBGfdn

KBGFdn's tweet image. Meet another one of our family members. Nathan grew up not knowing about KBG Syndrome and he always met any challenge! Read Nathan's story at: kbgfoundation.com/stories---nath… #KBGDay2022 #KBGFamily #everylinkmatters #KBGSyndrome #KBGAwareness #KBGfdn
0
1
6
0
0
0
0
4
0
0
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
Feb 26, 2022

Recognizing Rare Disease Day, we present our KBG family growing in numbers everyday! Today we honor each and every one of YOU. Be brave. Be strong. Be Fearless. Be Beautifully You♥️ youtu.be/Ue5K7jy-Gik #RDD2022 #KBGAwareness #KBGfdn #everylinkmatters #KBGSyndrome

0
1
5
0
0
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
Sep 18, 2023

Thanks Holtrop family for sharing Oliver's story! Personal stories help others feel seen and accepted. Awareness of KBG syndrome means earlier and accurate diagnosis and a treatment! tinyurl.com/KBGAwareHoltrop #KBGsyndrome #KBGfamilies #KBGawareness #everylinkmatters #ANKRD11

KBGFdn's tweet image. Thanks Holtrop family for sharing Oliver's story! Personal stories help others feel seen and accepted. Awareness of KBG syndrome means earlier and accurate diagnosis and a treatment! tinyurl.com/KBGAwareHoltrop #KBGsyndrome #KBGfamilies #KBGawareness #everylinkmatters #ANKRD11
0
3
4
0
247
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
May 12, 2023

We honor nurses today for the comfort and gentle kindness they provide in some of our darkest moments. Your generosity will forever live in our hearts. Happy International Nurses Day to all of our “angel” nurses! #KBGSyndrome #KBGAwareness #KBGfdn #everylinkmatters

KBGFdn's tweet image. We honor nurses today for the comfort and gentle kindness they provide in some of our darkest moments. Your generosity will forever live in our hearts. Happy International Nurses Day to all of our “angel” nurses! #KBGSyndrome #KBGAwareness #KBGfdn #everylinkmatters
0
0
1
0
76
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
Sep 30, 2022

Dr. Gholson Lyon, member of the KBG Foundation Scientific Advisory Board, is hosting another summit for clinicians and researchers supporting KBG patients on 10/18/22. Contact [email protected] #KBGfdn #KBGAwareness #KBGSyndrome #rarediseaseresearch #everylinkmatters

KBGFdn's tweet image. Dr. Gholson Lyon, member of the KBG Foundation Scientific Advisory Board, is hosting another summit for clinicians and researchers supporting KBG patients on 10/18/22. Contact gholsonjlyon@gmail.com #KBGfdn #KBGAwareness #KBGSyndrome #rarediseaseresearch #everylinkmatters
0
5
7
0
0
RareRevolutionM's profile picture. Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: hello@rarerevolutionmagazine.com
RARE Revolution Magazine®
@RareRevolutionM
Jun 11, 2022

This year marks the 7th year celebrating International KBG Awareness Day! The @KbgFoundation is pleased to help promote awareness and acceptance with this years theme: Family. #KBGFamily #KBGAwareness#KBGSyndrome #Everylinkmatters #TeamKBG #KBGDay2022

RareRevolutionM's tweet image. This year marks the 7th year celebrating International KBG Awareness Day! The @KbgFoundation is pleased to help promote awareness and acceptance with this years theme: Family. #KBGFamily #KBGAwareness#KBGSyndrome #Everylinkmatters #TeamKBG #KBGDay2022
RareRevolutionM's tweet image. This year marks the 7th year celebrating International KBG Awareness Day! The @KbgFoundation is pleased to help promote awareness and acceptance with this years theme: Family. #KBGFamily #KBGAwareness#KBGSyndrome #Everylinkmatters #TeamKBG #KBGDay2022
0
1
3
0
0
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
Jun 11, 2022

Happy KBG Syndrome Awareness Day 2022! Meet some of our family will you?! What are YOU doing today? youtu.be/ItgFBqULe7o #KBGDay2022 #KBGFamily #KBGAwareness #KBGFdn #everylinkmatters

KBGFdn's tweet image. Happy KBG Syndrome Awareness Day 2022! Meet some of our family will you?! What are YOU doing today? youtu.be/ItgFBqULe7o #KBGDay2022 #KBGFamily #KBGAwareness #KBGFdn #everylinkmatters
0
4
7
0
0
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
Jun 9, 2022

It can be difficult to talk to your children about KBG Syndrome. Most people haven't heard of it so where do you start? We created these coloring pages to help start the discussion. Visit kbgfoundation.com/downloadable-g… #KBGDay2022 #KBGSyndrome #KBGAwareness #everylinkmatters #KBGFdn

KBGFdn's tweet image. It can be difficult to talk to your children about KBG Syndrome. Most people haven't heard of it so where do you start? We created these coloring pages to help start the discussion. Visit kbgfoundation.com/downloadable-g… #KBGDay2022 #KBGSyndrome #KBGAwareness #everylinkmatters #KBGFdn
KBGFdn's tweet image. It can be difficult to talk to your children about KBG Syndrome. Most people haven't heard of it so where do you start? We created these coloring pages to help start the discussion. Visit kbgfoundation.com/downloadable-g… #KBGDay2022 #KBGSyndrome #KBGAwareness #everylinkmatters #KBGFdn
KBGFdn's tweet image. It can be difficult to talk to your children about KBG Syndrome. Most people haven't heard of it so where do you start? We created these coloring pages to help start the discussion. Visit kbgfoundation.com/downloadable-g… #KBGDay2022 #KBGSyndrome #KBGAwareness #everylinkmatters #KBGFdn
KBGFdn's tweet image. It can be difficult to talk to your children about KBG Syndrome. Most people haven't heard of it so where do you start? We created these coloring pages to help start the discussion. Visit kbgfoundation.com/downloadable-g… #KBGDay2022 #KBGSyndrome #KBGAwareness #everylinkmatters #KBGFdn
0
4
7
0
0
KBGSyndrome's profile picture. KBG Syndrome is an ultra rare syndrome identified by a mutation in the ANKRD11 gene. 1 in 19 Million baby! This account is maintained by the KBG Foundation.
KBG Syndrome
 @KBGSyndrome
Jun 4, 2022

Whether or not you have an early diagnosis, with KBG Syndrome the key is to never give up! Rise to any challenge! #KBGFamily #KBGDay2022 #KBGAwareness #everylinkmatters #KBGfdn

KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
Jun 4, 2022

Meet another one of our family members. Nathan grew up not knowing about KBG Syndrome and he always met any challenge! Read Nathan's story at: kbgfoundation.com/stories---nath… #KBGDay2022 #KBGFamily #everylinkmatters #KBGSyndrome #KBGAwareness #KBGfdn

KBGFdn's tweet image. Meet another one of our family members. Nathan grew up not knowing about KBG Syndrome and he always met any challenge! Read Nathan's story at: kbgfoundation.com/stories---nath… #KBGDay2022 #KBGFamily #everylinkmatters #KBGSyndrome #KBGAwareness #KBGfdn
0
1
6
0
0
0
0
4
0
0
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
Jun 2, 2022

Maryland Governor Proclaims June 11 Is KBG Syndrome Awareness Day! kbgfoundation.com/pr-kbg-syndrom… #KBGDay2022 #KBGAwareness #KBGSyndrome #KBGfdn

KBGFdn's tweet image. Maryland Governor Proclaims June 11 Is KBG Syndrome Awareness Day! kbgfoundation.com/pr-kbg-syndrom… #KBGDay2022 #KBGAwareness #KBGSyndrome #KBGfdn
0
2
4
0
0
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
May 31, 2022

Dr. Gholson Lyon, is hosting the 2nd summit for clinicians and researchers supporting KBG patients on June 7, 2022. Contact [email protected] to get all the details and sign up. Read more here kbgfoundation.com/kbg-syndrome-s… #KBGfdn #KBGAwareness #KBGSyndrome #everylinkmatters

KBGFdn's tweet image. Dr. Gholson Lyon, is hosting the 2nd summit for clinicians and researchers supporting KBG patients on June 7, 2022. Contact gholsonjlyon@gmail.com to get all the details and sign up. Read more here kbgfoundation.com/kbg-syndrome-s… #KBGfdn #KBGAwareness #KBGSyndrome #everylinkmatters
0
5
8
0
0
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
May 14, 2022

On International Family Day with this updated favorite we remind you: in this KBG Family, NO ONE FIGHTS ALONE! store.kbgfoundation.com/listing/no-one… #KBGDay2022 #KBGAwareness #KBGSyndrome #everylinkmatters #KBGfdn

KBGFdn's tweet image. On International Family Day with this updated favorite we remind you: in this KBG Family, NO ONE FIGHTS ALONE! store.kbgfoundation.com/listing/no-one… #KBGDay2022 #KBGAwareness #KBGSyndrome #everylinkmatters #KBGfdn
0
1
6
0
0
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
Mar 30, 2022

While we are at it, to the doctors that work alongside us, who are willing to think “outside the box” we thank you for your hard work and dedication to our health and wellness on this day and every day. #KBGSyndrome #KBGAwareness #DoctorsDay #TeamKBG #everylinkmatters

KBGFdn's tweet image. While we are at it, to the doctors that work alongside us, who are willing to think “outside the box” we thank you for your hard work and dedication to our health and wellness on this day and every day. #KBGSyndrome #KBGAwareness #DoctorsDay #TeamKBG #everylinkmatters
1
2
8
0
0
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
Mar 19, 2022

In 11 minutes, Annette Maughan KBG Foundation CEO, discusses what types of seizures may present in KBG Syndrome. #TalKBG #KBGSyndrome #KBGAwareness #KBGfdn #everylinkmatters #ankrd11 On YouTube: youtu.be/MycMAz3WWMI On Spotify: open.spotify.com/episode/0GX3MW…...

KBGFdn's tweet image. In 11 minutes, Annette Maughan KBG Foundation CEO, discusses what types of seizures may present in KBG Syndrome. #TalKBG #KBGSyndrome #KBGAwareness #KBGfdn #everylinkmatters #ankrd11 On YouTube: youtu.be/MycMAz3WWMI On Spotify: open.spotify.com/episode/0GX3MW…...
0
2
2
0
0
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
Mar 12, 2022

Marla and Annette discuss what it's like getting the diagnosis and adapting to having a name for all the symptoms. #TalKBG #KBGSyndrome #KBGAwareness #KBGfdn #everylinkmatters On YouTube: youtu.be/T7yB54fJ8-8 On Spotify: open.spotify.com/episode/3TF5Nk…...

KBGFdn's tweet image. Marla and Annette discuss what it's like getting the diagnosis and adapting to having a name for all the symptoms. #TalKBG #KBGSyndrome #KBGAwareness #KBGfdn #everylinkmatters On YouTube: youtu.be/T7yB54fJ8-8 On Spotify: open.spotify.com/episode/3TF5Nk…...
0
2
1
0
0
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
Feb 26, 2022

Recognizing Rare Disease Day, we present our KBG family growing in numbers everyday! Today we honor each and every one of YOU. Be brave. Be strong. Be Fearless. Be Beautifully You♥️ youtu.be/Ue5K7jy-Gik #RDD2022 #KBGAwareness #KBGfdn #everylinkmatters #KBGSyndrome

0
1
5
0
0
Speedqueenie's profile picture. Former party girl & uber fruit fly trapped in a social media bubble with a cat named Biscuit 🐈 Views are all mine & nobody else's🤗 @speedqueenie on Insta 💖💫
Susan McLellan
 @Speedqueenie
Jun 18, 2020

Tomorrow is #KBGAwareness day. It's a rare genetic disorder which you can read about here. kbgfoundation.com/what-is-kbg-.h… @KBGFdn

0
0
1
0
0
No results for "#kbgawareness"
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
Mar 30, 2022

While we are at it, to the doctors that work alongside us, who are willing to think “outside the box” we thank you for your hard work and dedication to our health and wellness on this day and every day. #KBGSyndrome #KBGAwareness #DoctorsDay #TeamKBG #everylinkmatters

KBGFdn's tweet image. While we are at it, to the doctors that work alongside us, who are willing to think “outside the box” we thank you for your hard work and dedication to our health and wellness on this day and every day. #KBGSyndrome #KBGAwareness #DoctorsDay #TeamKBG #everylinkmatters
1
2
8
0
0
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
Sep 30, 2022

Dr. Gholson Lyon, member of the KBG Foundation Scientific Advisory Board, is hosting another summit for clinicians and researchers supporting KBG patients on 10/18/22. Contact [email protected] #KBGfdn #KBGAwareness #KBGSyndrome #rarediseaseresearch #everylinkmatters

KBGFdn's tweet image. Dr. Gholson Lyon, member of the KBG Foundation Scientific Advisory Board, is hosting another summit for clinicians and researchers supporting KBG patients on 10/18/22. Contact gholsonjlyon@gmail.com #KBGfdn #KBGAwareness #KBGSyndrome #rarediseaseresearch #everylinkmatters
0
5
7
0
0
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
Jun 2, 2022

Maryland Governor Proclaims June 11 Is KBG Syndrome Awareness Day! kbgfoundation.com/pr-kbg-syndrom… #KBGDay2022 #KBGAwareness #KBGSyndrome #KBGfdn

KBGFdn's tweet image. Maryland Governor Proclaims June 11 Is KBG Syndrome Awareness Day! kbgfoundation.com/pr-kbg-syndrom… #KBGDay2022 #KBGAwareness #KBGSyndrome #KBGfdn
0
2
4
0
0
RareRevolutionM's profile picture. Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: hello@rarerevolutionmagazine.com
RARE Revolution Magazine®
@RareRevolutionM
Jun 11, 2022

This year marks the 7th year celebrating International KBG Awareness Day! The @KbgFoundation is pleased to help promote awareness and acceptance with this years theme: Family. #KBGFamily #KBGAwareness#KBGSyndrome #Everylinkmatters #TeamKBG #KBGDay2022

RareRevolutionM's tweet image. This year marks the 7th year celebrating International KBG Awareness Day! The @KbgFoundation is pleased to help promote awareness and acceptance with this years theme: Family. #KBGFamily #KBGAwareness#KBGSyndrome #Everylinkmatters #TeamKBG #KBGDay2022
RareRevolutionM's tweet image. This year marks the 7th year celebrating International KBG Awareness Day! The @KbgFoundation is pleased to help promote awareness and acceptance with this years theme: Family. #KBGFamily #KBGAwareness#KBGSyndrome #Everylinkmatters #TeamKBG #KBGDay2022
0
1
3
0
0
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
May 12, 2023

We honor nurses today for the comfort and gentle kindness they provide in some of our darkest moments. Your generosity will forever live in our hearts. Happy International Nurses Day to all of our “angel” nurses! #KBGSyndrome #KBGAwareness #KBGfdn #everylinkmatters

KBGFdn's tweet image. We honor nurses today for the comfort and gentle kindness they provide in some of our darkest moments. Your generosity will forever live in our hearts. Happy International Nurses Day to all of our “angel” nurses! #KBGSyndrome #KBGAwareness #KBGfdn #everylinkmatters
0
0
1
0
76
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
May 31, 2022

Dr. Gholson Lyon, is hosting the 2nd summit for clinicians and researchers supporting KBG patients on June 7, 2022. Contact [email protected] to get all the details and sign up. Read more here kbgfoundation.com/kbg-syndrome-s… #KBGfdn #KBGAwareness #KBGSyndrome #everylinkmatters

KBGFdn's tweet image. Dr. Gholson Lyon, is hosting the 2nd summit for clinicians and researchers supporting KBG patients on June 7, 2022. Contact gholsonjlyon@gmail.com to get all the details and sign up. Read more here kbgfoundation.com/kbg-syndrome-s… #KBGfdn #KBGAwareness #KBGSyndrome #everylinkmatters
0
5
8
0
0
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
Jun 9, 2022

It can be difficult to talk to your children about KBG Syndrome. Most people haven't heard of it so where do you start? We created these coloring pages to help start the discussion. Visit kbgfoundation.com/downloadable-g… #KBGDay2022 #KBGSyndrome #KBGAwareness #everylinkmatters #KBGFdn

KBGFdn's tweet image. It can be difficult to talk to your children about KBG Syndrome. Most people haven't heard of it so where do you start? We created these coloring pages to help start the discussion. Visit kbgfoundation.com/downloadable-g… #KBGDay2022 #KBGSyndrome #KBGAwareness #everylinkmatters #KBGFdn
KBGFdn's tweet image. It can be difficult to talk to your children about KBG Syndrome. Most people haven't heard of it so where do you start? We created these coloring pages to help start the discussion. Visit kbgfoundation.com/downloadable-g… #KBGDay2022 #KBGSyndrome #KBGAwareness #everylinkmatters #KBGFdn
KBGFdn's tweet image. It can be difficult to talk to your children about KBG Syndrome. Most people haven't heard of it so where do you start? We created these coloring pages to help start the discussion. Visit kbgfoundation.com/downloadable-g… #KBGDay2022 #KBGSyndrome #KBGAwareness #everylinkmatters #KBGFdn
KBGFdn's tweet image. It can be difficult to talk to your children about KBG Syndrome. Most people haven't heard of it so where do you start? We created these coloring pages to help start the discussion. Visit kbgfoundation.com/downloadable-g… #KBGDay2022 #KBGSyndrome #KBGAwareness #everylinkmatters #KBGFdn
0
4
7
0
0
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
Jun 11, 2022

Happy KBG Syndrome Awareness Day 2022! Meet some of our family will you?! What are YOU doing today? youtu.be/ItgFBqULe7o #KBGDay2022 #KBGFamily #KBGAwareness #KBGFdn #everylinkmatters

KBGFdn's tweet image. Happy KBG Syndrome Awareness Day 2022! Meet some of our family will you?! What are YOU doing today? youtu.be/ItgFBqULe7o #KBGDay2022 #KBGFamily #KBGAwareness #KBGFdn #everylinkmatters
0
4
7
0
0
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
May 14, 2022

On International Family Day with this updated favorite we remind you: in this KBG Family, NO ONE FIGHTS ALONE! store.kbgfoundation.com/listing/no-one… #KBGDay2022 #KBGAwareness #KBGSyndrome #everylinkmatters #KBGfdn

KBGFdn's tweet image. On International Family Day with this updated favorite we remind you: in this KBG Family, NO ONE FIGHTS ALONE! store.kbgfoundation.com/listing/no-one… #KBGDay2022 #KBGAwareness #KBGSyndrome #everylinkmatters #KBGfdn
0
1
6
0
0
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
Sep 18, 2023

Thanks Holtrop family for sharing Oliver's story! Personal stories help others feel seen and accepted. Awareness of KBG syndrome means earlier and accurate diagnosis and a treatment! tinyurl.com/KBGAwareHoltrop #KBGsyndrome #KBGfamilies #KBGawareness #everylinkmatters #ANKRD11

KBGFdn's tweet image. Thanks Holtrop family for sharing Oliver's story! Personal stories help others feel seen and accepted. Awareness of KBG syndrome means earlier and accurate diagnosis and a treatment! tinyurl.com/KBGAwareHoltrop #KBGsyndrome #KBGfamilies #KBGawareness #everylinkmatters #ANKRD11
0
3
4
0
247
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
Mar 19, 2022

In 11 minutes, Annette Maughan KBG Foundation CEO, discusses what types of seizures may present in KBG Syndrome. #TalKBG #KBGSyndrome #KBGAwareness #KBGfdn #everylinkmatters #ankrd11 On YouTube: youtu.be/MycMAz3WWMI On Spotify: open.spotify.com/episode/0GX3MW…...

KBGFdn's tweet image. In 11 minutes, Annette Maughan KBG Foundation CEO, discusses what types of seizures may present in KBG Syndrome. #TalKBG #KBGSyndrome #KBGAwareness #KBGfdn #everylinkmatters #ankrd11 On YouTube: youtu.be/MycMAz3WWMI On Spotify: open.spotify.com/episode/0GX3MW…...
0
2
2
0
0
KBGFdn's profile picture. The KBG Foundation is a 501(c)(3) nonprofit, dedicated to providing support, assisting in research and advocating to raise awareness about KBG Syndrome.
KBG Foundation
 @KBGFdn
Mar 12, 2022

Marla and Annette discuss what it's like getting the diagnosis and adapting to having a name for all the symptoms. #TalKBG #KBGSyndrome #KBGAwareness #KBGfdn #everylinkmatters On YouTube: youtu.be/T7yB54fJ8-8 On Spotify: open.spotify.com/episode/3TF5Nk…...

KBGFdn's tweet image. Marla and Annette discuss what it's like getting the diagnosis and adapting to having a name for all the symptoms. #TalKBG #KBGSyndrome #KBGAwareness #KBGfdn #everylinkmatters On YouTube: youtu.be/T7yB54fJ8-8 On Spotify: open.spotify.com/episode/3TF5Nk…...
0
2
1
0
0

Something went wrong.


Something went wrong.


United States Trends