#pcpld2020 search results
‘Your heart should be behind the care you are giving’ @lloraFinlay reminds us of the importance of listening... using your ears, your eyes, your heart, your mind #PCPLD2020
Yes! Yes! Yes! Thank you @PCPLDnetwork #PCPLD2020 for clearly explaining about DNAR. Information is essential to decision making. #noblanketdnar #learningdisability #selfadvocacy #dignityineol
#PCPLD2020 Amazing to be one of 2000 delegates! Shows what an important topic (and webinar) this is @TuffreyWijne @drkathrynmannix @IloraFinlay @PCPLDnetwork
A reminder of dying is a normal part of living. Let’s talk more openly about how to make it a good end of life #PCPLD2020
We are very happy to join the @PCPLDnetwork event via Teams today which focuses on palliative care, planning ahead, and end of life support for people with learning disabilities #PCPLD2020 #EqualityForAll
How can you asses distress in people with severe communication difficulties? Find out in the first of our new webinar series, this Tuesday at 12.30. Great speakers... Here’s a taster. It’s not too late to book! #PCPLD2020 pcpld.org/events-and-con…
One of our nurses Katie is attending PCPLD webinar End of Life care for people with Learning Disabilities. A beautiful moment at the beginning just 1 minute to remember anyone who may have lost their lives this year #letsremembertogether @TuffreyWijne hosting #pcpld2020
Thank you so much to the @PCPLDnetwork for a fantastic webinar on palliative care for people with learning disabilities. Planning to take this learning into my workplace service improvement project #PCPLD2020 #ThisIsNursing
Professor Irene Tuffrey-Wijne discussing EoL care for and with People with Learning Disabilitiea. It’s essential we remember to plan how to support a dying person and a good death #PCPLD2020 Why where, with who etc
#DisDAT -No assumption about how an individual reacts to distress -Document signs/ behaviour when content and distressed - Distress passport can be shared between settings -Ability to adapt monitoring page for individual orgs To download: bit.ly/2UciXSy #PCPLD2020
“I knew there was something very wrong with me...I went to see my doctor and he said there’s nothing wrong with me, but I knew that something was seriously wrong.” Amanda Cresswell opens #PCPLD2020 webinar and in conversation with @TuffreyWijne shares her story.
Another excellent slide by @TuffreyWijne . 3 cornerstone question to consider for end of life care plans. @PCPLDnetwork #PCPLD2020
Often, pain scale tools are used for individuals displaying distress...but what if that isn’t pain? What alternative tools could health care professionals use to document distress, compare with content behaviour and see if there is a pattern to the distress? #DisDAT #PCPLD2020
“I know that you’re not allowed to say it, but she had become like part of my family and I couldn’t help that because I spent five days a week with her for two years.” #PCPLD2020
Gain an understanding what is important to a person with learning disabilities by using these prompts #PCPLD2020 ⬇️⬇️⬇️
Thankyou for your fabulous webinairs.. I have made sure we have shared with all of our 'Partners in Care' network #PCPLD2020
Great to see the Irish perspective. @moomugs post is badly needed across all Services for people with disabilities @StMichaelsHouse @NatFedVolBodies #shapingtheRNIDfuture #pcpld2020
Exciting webinar ahead..#pcpld2020
Welcome to our speakers & attendees from the PCPLD webinar team! @TuffreyWijne is chairing the webinar with @gemma_allen1 @sharonprowse71 & @astravolemova behind the scenes. If you’re one of the 2,000+ joining today, please engage in the live chatbox & use #PCPLD if tweeting!
“I know that you’re not allowed to say it, but she had become like part of my family and I couldn’t help that because I spent five days a week with her for two years.” #PCPLD2020
As one of the delegates stated at the end of today’s @PCPLDnetwork webinar. THIS is the way to end an event. 👇🏻 #PCPLD2020 Hey Jude - Sing Out Choir in lockdown/virtual choir youtu.be/nJQjXkWsT9c via @YouTube
A phenomenal 1221 people joined us today! All videos from #PCPLD2020 webinar will be available via our YouTube channel at 16:30: bit.ly/2IqwDqN
Thoughts after the #PCPLD2020 webinar today - the DisDAT can clarify how distress is communicated and help rationalise onward referrals/ advocate for further investigations to find out 'what's wrong'. This can be part of the hospital passport!
I've used the #DisDAT for years even before I became a nurse, it's really useful to evidence when someone just isn't feeling themselves #PCPLD2020 I think everyone should have one!
#DisDAT -No assumption about how an individual reacts to distress -Document signs/ behaviour when content and distressed - Distress passport can be shared between settings -Ability to adapt monitoring page for individual orgs To download: bit.ly/2UciXSy #PCPLD2020
As is our tradition we close #PCPLD2020 webinar with a song from the people who matter. Thank you @singout_choir for allowing us to share your video. A wonderful example of socially connecting people with a learning disability whilst physically apart. youtu.be/nJQjXkWsT9c
youtube.com
YouTube
Hey Jude - Sing Out Choir in lockdown/virtual choir
"I knew something was wrong...my hair was greasy..I was short of breath...the doctor didn't believe me..I collapsed..something was done..one doctor..took me under his wing..gave me the right chemo..luckily the tumour shrunk" • true story frm an amazing woman with LD #PCPLD2020
Not all deaths are expected or planned for, what happens when death is unexpected and how can we prepare for this? We are delighted to invite Professor Jane Bernal to speak at our next webinar on 8 December. We will also hear real life stories followed by Q&A. #PCPLD2020
In addition, we have recently launched a new #podcast series. Join @TuffreyWijne and @gemma_allen1 in conversation with people with learning disabilities as they discuss death, dying and grief: bit.ly/3eGeWPI #PCPLD2020
A heartfelt thank you to Amanda, Claude, Lynn and Dorothy for sharing their stories and knowledge with us all today. We would also like to thank our website manager Anastaysia and @KUStGeorges who enable these events to run smoothly! #PCPLD2020
Excellent presentation from #PCPLD2020. Very informative session on how to assess distress in people with communication difficulties. #Communication #DisDAT #ImprovingPractice
Distress signals generally do not change according to the cause. Important to record and explore context. DISDAT. #PCPLD2020
Such important information being shared in this webinar today- make sure you watch the recording when it become available! #PCPLD2020
This is your reminder to join PCPLD Network webinar, tomorrow at 12:30 bit.ly/36k5oGn 1,000+ delegates will be joining, please post questions for our speakers & share your thoughts in the live #Chatbox. Twitter followers use #PCPLD2020 - keep the conversation going!
disdat.co.uk I’ve used the form but hadn’t realised that the website also had monitoring tools. #PCPLD2020
Apologies for the technical issues, this is now resolved. All videos will be available shortly. #PCPLD2020
“Distress may be hidden-BUT it is never silent” Important take home message, for more information visit disdat.co.uk If you are viewing this webinar live on MSTeams please post any questions in the live chat box. #PCPLD2020
Two very different case studies where #DisDAT was used to gain knowledge about distress. Results from both sets of assessments indicated a definite pattern to both Freddie and Betty’s pattern of distress. #PCPLD2020
@PCPLDnetwork #PCPLD2020 “life has stopped and I had to find myself”So very proud of Vince sharing his thoughts and experiences around #covid19
Yes! Yes! Yes! Thank you @PCPLDnetwork #PCPLD2020 for clearly explaining about DNAR. Information is essential to decision making. #noblanketdnar #learningdisability #selfadvocacy #dignityineol
Webinar now! Assessing distress and discomfort in people with difficulty communicating. Looking forward to this! #PCPLD2020
#PCPLD2020 Amazing to be one of 2000 delegates! Shows what an important topic (and webinar) this is @TuffreyWijne @drkathrynmannix @IloraFinlay @PCPLDnetwork
‘Your heart should be behind the care you are giving’ @lloraFinlay reminds us of the importance of listening... using your ears, your eyes, your heart, your mind #PCPLD2020
We are very happy to join the @PCPLDnetwork event via Teams today which focuses on palliative care, planning ahead, and end of life support for people with learning disabilities #PCPLD2020 #EqualityForAll
“I knew there was something very wrong with me...I went to see my doctor and he said there’s nothing wrong with me, but I knew that something was seriously wrong.” Amanda Cresswell opens #PCPLD2020 webinar and in conversation with @TuffreyWijne shares her story.
@PCPLDnetwork #PCPLD2020 listening to Amanda’s health story. #communication #healthrecording @HealthLD #healthcalendar 💪🏻
One of our nurses Katie is attending PCPLD webinar End of Life care for people with Learning Disabilities. A beautiful moment at the beginning just 1 minute to remember anyone who may have lost their lives this year #letsremembertogether @TuffreyWijne hosting #pcpld2020
Advance care planning from @Open_Future shared at the #PCPLD2020 great messages to remind ourselves that people have their likes and needs and we may know them BUT how do we share this effectively so others know when you are not around.
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