#pjsandprotocol search results

Supporting BED for Severe M.E. is about understanding, recognition, and inclusion in healthcare. Let's make our voices heard! #BedForSevereME #PJsAndProtocol #MEAwarenessHour

In my pyjamas, though not in bed today, for #PJsAndProtocol #BedForSevereME organised by @MEFoggyDog This is how I look most days. Hair unbrushed for days, unwashed for MUCH longer. Unbrushed teeth. But fed and out of bed! Which is more than people with Severe ME/CFS can manage

Thank you for donating and supporting #BedForSevereME today. Keep it going, please 💙🙏 mefoggydog.org/bed-for-severe… #pwME #PJsAndProtocol #MEcfs

We promised a 'live' - here it is! youtube.com/live/dkVOR8ILJ… #pwME #BedForSevereME #PJsAndProtocol

25% of people with M.E. have severe #MEcfs. There are no approved treatments, cures, or NHS protocols. This can lead to deterioration and, in some cases, be life-threatening. I'm supporting #BedForSevereME because no one should suffer like this. #PJsAndProtocol

Nearly time for lunch and a snooze. More updates later. Keep it going please 🙏 #pwME #PjsAndProtocol #BedForSevereME

Not sure what to post about #BedForSevereME? Don't forget, I've created a social media toolkit that contains shareable graphics (if you don't want to post a photo) and template posts for you to copy and paste. Resources- mefoggydog.org/bed-for-severe… #PJsAndProtocol #pwME #MEcfs

Update..... JustGiving links- mefoggydog.org/bed-for-severe… #BedForSevereME #PjsAndProtocol #pwME

Thank you to those who have already posted tributes to this 'In Loving Memory' board. Add your tribute here- mefoggydog.org/bed-for-severe… #BedForSevereME #PjsAndProtocol #pwME #SevereME

Paralysis, black-outs, coma-like states, tremors, cardiac dysfunction, inability to chew or swallow, and stroke-like episodes are just a few ‘symptoms’ of Severe M.E. Reality 👇 JustGiving links in next tweet. #BedForSevereME #PjsAndProtocol #pwME

YouTube 'live' just now. youtube.com/live/CMfh-W0fB… #pwME #BedForSevereME #PJsAndProtocol

'Tired' but 'up for' the day ahead!! Let's do this! Raise awareness of severe ME through lived experience anecdotes, wearing PJs in solidarity, and raise oodles of 💰 for @mecfsbiobank & @SmileForMEUK All info- mefoggydog.org/bed-for-severe… #BedForSevereME #PjsAndProtocol #pwME

Right now, the JustGiving totals stand at: @mecfsbiobank - £13 justgiving.com/page/bedcureme @SmileForMEUK - £25 justgiving.com/page/bedsmilef… Tomorrow is #BedForSevereME day!! mefoggydog.org/bed-for-severe… Please donate & participate if you are able to. #pwME #PJsAndProtocol #MEcfs

Your voice matters. If you live with Severe M.E., share your BED story on 29th October 2025. Let the world see your daily reality. #BEDforSevereME #pwME #PJsAndProtocol mefoggydog.org/bed-for-severe…

Your voice matters. If you live with Severe M.E., share your BED story on 29th October 2025. Let the world see your daily reality. #BEDforSevereME #pwME #PJsAndProtocol mefoggydog.org/bed-for-severe…

No NHS protocol. No cure. Severe M.E. is devastating, yet still overlooked. Help us push for change this 29th Oct. #BEDforSevereME - mefoggydog.org/bed-for-severe… #PJsAndProtocol #pwME

This survey is part of our #BedForSevereME campaign, led by Stripy Lightbulb CIC & @MEFoggyDog. We're working to improve care pathways for the most severely affected M.E patients. Share your insights 👉 stripylightbulb.com/2025/10/16/cal… #SevereME #PJsAndProtocol #NHS #MedTwitter

Knowledge is power. Learn about the realities of Severe M.E. and why BED matters. Read and engage with posts from those with Severe M.E (and their loved ones) on Oct 29th. Share what you discover. #BEDforSevereME #PJsAndProtocol #Health Campaign info - mefoggydog.org/bed-for-severe…

PJs for a purpose! On 29th Oct, wear your pyjamas to work to honour those with Severe M.E. whose BED is their everyday reality. Snap a pic, post about the campaign, & tag Info - mefoggydog.org/bed-for-severe… #BEDforSevereME #PJsAndProtocol #MEcfs

Wear your PJs to work as a fancy dress on 29th Oct 2025!! Wear your PJs in solidarity with people living with #SevereME. More info - mefoggydog.org/bed-for-severe… Fundraising for @SmileForMEUK & @mecfsbiobank #BedForSevereME #PJsAndProtocol #Business #Charity

#BEDForSevereME #PjsAndProtocol 🛌🩵

Wearing my favourite pyjamas for #BEDForSevereME #PjsAndProtocol I’ve mixed & matched with a top from Stripe&Stare and bottoms from TheWhiteCompany. They are my favourite pyjamas because they are soft & light which helps on days my whole body hurts & my skin is extra sensitive

Supporting BED for Severe M.E. is about understanding, recognition, and inclusion in healthcare. Let's make our voices heard! #BedForSevereME #PJsAndProtocol #MEAwarenessHour

BED For Severe M.E: Raising Awareness. Honouring Lives. Fueling Change. - mailchi.mp/6f2237b7570a/w… #BedForSevereME #PJsAndProtocol @smile4ME @MEcfsbiobank

25% of people with M.E. have severe #MEcfs. There are no approved treatments, cures, or NHS protocols. This can lead to deterioration and, in some cases, be life-threatening. I'm supporting #BedForSevereME because no one should suffer like this. #PJsAndProtocol

Have you gone 'local' yet? Next step for ME Foggy Dog's NHS protocol campaign can be found here - mefoggydog.org/bed-for-severe… #BedForSevereME #PjsAndProtocol #pwME #SevereMEDay

Whoop!! Fundraiser - 50/50 split between @SmileForME_xx and @mecfsbiobank The profits from badges sales is in addition to this. Thank you to all who donated in support of yesterday's #BedForSevereME campaign. #PjsAndProtocol #pwME #SevereME

Let’s make Severe M.E. visible. On 29th Oct, wear your ‘BED for Severe M.E.’ badge with pride. Every badge sold supports @SmileForMEUK and @MEcfsbiobank. Start a conversation. Buy here bit.ly/4paVqPe Spark change. #BedForSevereME #SevereME #PJsAndProtocol #pwME

@MEFoggyDog has created some great campaign resources and a complete toolkit to make it easy to support this great campaign. #BedForSevereME #PJsAndProtocol Wednesday 29th October. Raising funds and awareness for #SevereME docs.google.com/document/d/13X…

💬 “What’s that badge?” “It’s for Severe M.E. - a condition that leaves thousands bedbound.” Start the conversation. Wear the badge. Support the cause. Buy now - bit.ly/4paVqPe #BedForSevereME #PJsAndProtocol #MEAwarenessHour

4. Take part in the #BedForSevereME BED party! On Wednesday 29th October share a photo in your pjs - maybe hold a sign up You can find these in the campaign assets mefoggydog.org/bed-for-severe… Use #BedForSevereME and #PJsAndProtocol to raise the profile of 25% with #SevereME

In my pyjamas, though not in bed today, for #PJsAndProtocol #BedForSevereME organised by @MEFoggyDog This is how I look most days. Hair unbrushed for days, unwashed for MUCH longer. Unbrushed teeth. But fed and out of bed! Which is more than people with Severe ME/CFS can manage

Wear your PJs to work as a fancy dress on 29th Oct 2025!! Wear your PJs in solidarity with people living with #SevereME. More info - mefoggydog.org/bed-for-severe… Fundraising for @SmileForMEUK & @mecfsbiobank #BedForSevereME #PJsAndProtocol #Business #Charity

Paralysis, black-outs, coma-like states, tremors, cardiac dysfunction, inability to chew or swallow, and stroke-like episodes are just a few ‘symptoms’ of Severe M.E. Reality 👇 JustGiving links in next tweet. #BedForSevereME #PjsAndProtocol #pwME

Thank you to those who have already posted tributes to this 'In Loving Memory' board. Add your tribute here- mefoggydog.org/bed-for-severe… #BedForSevereME #PjsAndProtocol #pwME #SevereME

PJs for a purpose! On 29th Oct, wear your pyjamas to work to honour those with Severe M.E. whose BED is their everyday reality. Snap a pic, post about the campaign, & tag Info - mefoggydog.org/bed-for-severe… #BEDforSevereME #PJsAndProtocol #MEcfs

Right now, the JustGiving totals stand at: @mecfsbiobank - £13 justgiving.com/page/bedcureme @SmileForMEUK - £25 justgiving.com/page/bedsmilef… Tomorrow is #BedForSevereME day!! mefoggydog.org/bed-for-severe… Please donate & participate if you are able to. #pwME #PJsAndProtocol #MEcfs