#reachforawareness ผลการค้นหา

Check out this coffee with clinics video showcasing the team at the UNC Huntington's Disease Clinic. Do you have questions about finding care closest to you or a clinic you'd like us to visit? Let us know! buff.ly/3Yn6jm0 #HDReach #ReachForHope #ReachForAwareness #curehd

📢 Durham Meetup Update! The Durham meetup scheduled for this Wednesday is cancelled. We’ll miss seeing you this month, but we’re excited to reconnect at our next meetup on July 23. Mark your calendars! #HDReach #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease

Exciting progress! uniQure has aligned with the FDA on key steps toward a Q1 2026 BLA submission for AMT-130, bringing us closer to a potential first-ever disease-modifying gene therapy for Huntington’s disease. uniqure.com/investors-medi… #HDReach #ReachForHope #ReachForAwareness

💙 As Huntington’s Disease Awareness Month comes to a close, we want to take a moment to say a heartfelt thank you 💙 YOU made a difference — and we are so grateful. Let’s carry this energy forward and continue to #ReachForAwareness every day — not just in May. 💪

ICYMI: PTC Therapeutics announced that the Phase 2 PIVOT-HD study of PTC518 in Huntington's disease patients met its primary endpoint. #HDReach #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease #hd #HuntingtonsDisease hdyo.org/a/857-ptc518-p…

ICYMI: Good news! uniQure’s gene therapy AMT-130 shows slowing of Huntington’s disease progression in Phase I/II trials, earning FDA RMAT designation and paving the way for accelerated approval. #HDReach #ReachForHope #ReachForAwareness #curehd #curejhd uniqure.com/investors-medi…

Important Information regarding tonight's Meetup: CHARLOTTE: CANCELLED TONIGHT! See you Wednesday, May 14th. WINSTON-SALEM: Still on! WS Register: buff.ly/Z72UdsK 💙💜 #HDReach #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd

Huge thanks to everyone who made our annual Education Day on April 6th a success! 🙌 We had 116 amazing attendees and couldn’t have done it without the support of volunteers, sponsors, and many more! #HDReach #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease

Check out what we discovered at the Trevi Fountain in Rome, Italy! Can you guess where our journey will take us next? #HDReach #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd

A friendly reminder that Vanderbilt's HD Clinic Virtual Happy Hour is every Tuesday 6:00p – 7:00 pm ET. hdreach.org/community/even… #HDReach #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd

Check out this coffee with clinics video showcasing the team at the UNC Huntington's Disease Clinic. Do you have questions about finding care closest to you or a clinic you'd like us to visit? Let us know! buff.ly/3Yn6jm0 #HDReach #ReachForHope #ReachForAwareness #curehd

We’re excited to welcome Rick Giurlando to the HD Reach Board! 💙 Rick is helping us streamline our communication systems to better connect with our community. Welcome aboard, Rick! 🌟 #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease buff.ly/3Zwx2x5

YOU can win an oceanfront getaway in Myrtle Beach, SC! Imagine being steps away from shoreside pools and the Atlantic Ocean. Raffle Tickets hdreach.org/conference/raf… #HDReach #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease #huntingtonsdisease

Important Information regarding tonight's meetups: CHARLOTTE: POSTPONED to Tuesday, Feb 18th. WINSTON-SALEM: CANCELLED! See you in March. WILMINGTON: Still on! 💙💜 #HDReach #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd

YOU can win an oceanfront getaway in Myrtle Beach, SC! Imagine being steps away from shoreside pools and the Atlantic Ocean. Raffle Tickets hdreach.org/conference/raf… #HDReach #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease #huntingtonsdisease

YOU can win an oceanfront getaway in Myrtle Beach, SC! Imagine being steps away from shoreside pools and the Atlantic Ocean. Raffle Tickets hdreach.org/conference/raf… #HDReach #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease #huntingtonsdisease

Please enjoy this video montage. We are so proud of our year in review. And so THANKFUL for your support in making it all possible. It all matters and it all makes a difference to the families we serve. youtu.be/rOzDL2gyhio?si… #HDReach #ReachForHope #ReachForAwareness #curehd

Grant DeHaven shares his personal journey with Huntington's Disease (HD) and offers practical advice for families facing similar challenges. youtu.be/JjE5obakOg8 #HDReach #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons

Virtual Warmth: Join Us for a Hot Cocoa Meetup on December 19th at 6:00 PM ET. Let's share stories and laughter! RSVP Today! hdreach.org/connect-resour… #HDReach #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd

Thanksgiving cheer from your friends at HD Reach! We're closed today and tomorrow. Enjoy the celebrations! 🍁🦃 #HDReach #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd

Check out what we discovered at the Trevi Fountain in Rome, Italy! Can you guess where our journey will take us next? #HDReach #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd

Thanksgiving cheer from your friends at HD Reach! We're closed today and tomorrow. Enjoy the celebrations! 🍁🦃 #HDReach #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd

Important Information regarding tonight's meetups: CHARLOTTE: POSTPONED to Tuesday, Feb 18th. WINSTON-SALEM: CANCELLED! See you in March. WILMINGTON: Still on! 💙💜 #HDReach #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd

A friendly reminder that Vanderbilt's HD Clinic Virtual Happy Hour is every Tuesday 6:00p – 7:00 pm ET. hdreach.org/community/even… #HDReach #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd

💙 As Huntington’s Disease Awareness Month comes to a close, we want to take a moment to say a heartfelt thank you 💙 YOU made a difference — and we are so grateful. Let’s carry this energy forward and continue to #ReachForAwareness every day — not just in May. 💪

Do you have a loved one in a long-term care facility, or have a relationship with a long-term care facility that you wish had more knowledge about Huntington’s disease? Check out our upcoming virtual in-service! hdreach.org/connect-resour… #HDReach #ReachForHope #ReachForAwareness

Exciting progress! uniQure has aligned with the FDA on key steps toward a Q1 2026 BLA submission for AMT-130, bringing us closer to a potential first-ever disease-modifying gene therapy for Huntington’s disease. uniqure.com/investors-medi… #HDReach #ReachForHope #ReachForAwareness

We have recently been awarded a Candid Platinum Seal of Transparency! Visit our nonprofit profile to stay updated on our progress. Discover more about our impact here: guidestar.org/profile/shared… #HDReach #ReachForHope #ReachForAwareness #raredisease #huntingtonsdisease

📢 Durham Meetup Update! The Durham meetup scheduled for this Wednesday is cancelled. We’ll miss seeing you this month, but we’re excited to reconnect at our next meetup on July 23. Mark your calendars! #HDReach #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease

YOU can win an oceanfront getaway in Myrtle Beach, SC! Imagine being steps away from shoreside pools and the Atlantic Ocean. Raffle Tickets hdreach.org/conference/raf… #HDReach #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease #huntingtonsdisease

Important Information regarding tonight's Meetup: CHARLOTTE: CANCELLED TONIGHT! See you Wednesday, May 14th. WINSTON-SALEM: Still on! WS Register: buff.ly/Z72UdsK 💙💜 #HDReach #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd

Are you a long-term care facility or adult day center looking for more education about caring for Huntington’s disease patients? If your answer is YES, please see our upcoming virtual in-service on October 17th! buff.ly/3UwLJO0 #HDReach #ReachForHope #ReachForAwareness

ICYMI: PTC Therapeutics announced that the Phase 2 PIVOT-HD study of PTC518 in Huntington's disease patients met its primary endpoint. #HDReach #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease #hd #HuntingtonsDisease hdyo.org/a/857-ptc518-p…

We’re excited to welcome Rick Giurlando to the HD Reach Board! 💙 Rick is helping us streamline our communication systems to better connect with our community. Welcome aboard, Rick! 🌟 #ReachForHope #ReachForAwareness #curehd #curejhd #raredisease buff.ly/3Zwx2x5

ICYMI: Good news! uniQure’s gene therapy AMT-130 shows slowing of Huntington’s disease progression in Phase I/II trials, earning FDA RMAT designation and paving the way for accelerated approval. #HDReach #ReachForHope #ReachForAwareness #curehd #curejhd uniqure.com/investors-medi…