#sayscleroderma 搜索结果

@srfcure #SayScleroderma

It’s #WorldSclerodermaDay—a time to come together to raise awareness, fuel hope, and move toward a cure for scleroderma. Here are just a few of our incredible community members, and why they #SayScleroderma to raise awareness.

“I #SayScleroderma because although it is rare and may feel isolating, it is not one to be alone with," says Ryan M. (dx 2019). "I see organizations all over the world where the conversations are going strong, and I encourage patients new and old to jump in."

For Scout L., her mother Jackie’s experience with scleroderma is why she chooses to #SayScleroderma: to help drive research that leads to better, more personalized treatments. You can #SayScleroderma too: srfcure.org/sayscleroderma

Have you watched our #SayScleroderma film yet? 🎥 Dawn Neill from Magherafelt is one of 7 people featured. She recently spoke to @DerryNow about living with systemic sclerosis & why raising awareness matters 💜 Read more 👉 bit.ly/4eeRGHx #SclerodermaAwareness #SRUK

It’s Scleroderma Awareness Month, and Brian is telling us why he chooses to #SayScleroderma! Every action brings us one step closer to a future without scleroderma. Let’s #SayScleroderma—this month and every month—until we find a cure.

For #SclerodermaAwarenessMonth, join us to # SayScleroderma. #SayScleroderma with us—share your story, raise awareness, and help us move closer to finding a cure. Check out these resources to get started: 🔗 srfcure.org/support-us/say…

Many people with an auto-immune condition such as inflammatory arthritis also have other auto-immune conditions, so we're always happy to help our friends at @WeAreSRUK raise awareness of these. It's Scleroderma Month - we encourage you to find out more. #SayScleroderma

June is Scleroderma Awareness Month. Support SRUK by watching their #SayScleroderma video to help raise funds for research into this rare autoimmune disorder. Watch here: buff.ly/51AENgB.

This Scleroderma Awareness Month join @WeAreSRUK as it launches its #SayScleroderma film to help raise vital funds into research of the rare, autoimmune disease. 🎥 youtube.com/shorts/ZS4_SY4… #SclrodermaAwarenessMonth

As someone living with scleroderma, Tiffany P. believes in the power of research to drive change. This Scleroderma Awareness Month, she’s joining us to #SayScleroderma. Join us: srfcure.org/sayscleroderma @srfcure @scleroCA @gcscleroderma

It’s Scleroderma Awareness Month so please join SRUK as it launches its #SayScleroderma film to help raise vital funds into research of the rare, autoimmune disease buff.ly/51AENgB

🗣️ “Early diagnosis is vital.” Dawn, 43, from Northern Ireland, shares her journey with CREST syndrome in support of #SayScleroderma, raising awareness of this rare autoimmune disease. Read her story 👇 bit.ly/3ZMAnaD #SclerodermaAwarenessMonth

🎬 Our powerful new film is shining a light on scleroderma, a rare, life-altering autoimmune disease. Beth, 31, stars in #SayScleroderma to share her journey with systemic sclerosis and raise awareness. 📰 Read her story here: bit.ly/3HnkfpJ #SclerodermaAwarenessMonth

Just to say ... I have this ... #SayScleroderma #SclerodermaAwarenessMonth Please RT to help raise awareness

I have this #SayScleroderma

🎗️June is #SclerodermaAwarenessMonth! Around 19,000 people in the UK live with this rare autoimmune disease. Help us spread the word, share our #SayScleroderma film and support vital research 💙 bit.ly/4jmAr7X #SRUK #Scleroderma

It’s #SclerodermaAwarenessMonth—are you ready to spread the word? #SayScleroderma because awareness leads to earlier diagnoses, better treatment, & more research toward a cure. Join us: srfcure.org/sayscleroderma @srfcure @scleroCA @gcscleroderma

The countdown is on ⏳ Scleroderma Awareness Month kicks off soon in June! Get ready! Scleroderma Awareness Month is right around the corner. Explore our #SayScleroderma toolkit and learn how you can make a difference this June: srfcure.org/support-us/say…

I guess today is rare disease day so uhh #SayScleroderma

#RareDiseaseDay #SayScleroderma

Thank you all for an INCREDIBLE #SclerodermaAwarenessMonth. Join us in giving a big shout out to another amazing effort—our collaborators at Scleroderma Outreach Northwest successfully made June the official #SclerodermaAwarenessMonth of Idaho! #SayScleroderma

Today is #RareDiseaseDay. In the U.S. alone, more than 25 million people are affected by rare diseases. #Scleroderma, or systemic sclerosis, is considered a rare disease as it affects approximately 100,000 of those people. #SayScleroderma #ShowYourStripes

#SclerodermaAwarenessMonth is here. Join us and #SayScleroderma, so that everyone knows what this diseases is and does. Lack of awareness causes delays in treatments and diagnosis. But together, we can change this. Visit our website to learn more: srfcure.org/sayscleroderma

Amazon has announced that they are discontinuing AmazonSmile on February 20, 2023. To everyone who prioritized the SRF while you shopped, thank you. You've helped us accelerate the pace of research—bringing us closer to finding a cure. #sayscleroderma #sclerodermaresearch

There's still time to sign up for our #SclerodermaAwarenessMonth event "Collaborating for a Cure," the SRF Patient Forum on June 6th at 9:00 am PDT/12:00 pm EDT! Register now at bit.ly/collab4cure23R… #SayScleroderma

Rare Disease Day is here: Today, we are coming together to #SayScleroderma and shine a light on the 300,000 people in the U.S. living with scleroderma.

#GivingTuesday is tomorrow! 💙 Join us in raising funds and awareness for scleroderma research. Donate: bit.ly/3CKpyxb Or spread the word about scleroderma on social media! Add the SRF #SayScleroderma frame to your profile picture: bit.ly/4fLVcZQ

For #SclerodermaAwarenessMonth, join us to # SayScleroderma. #SayScleroderma with us—share your story, raise awareness, and help us move closer to finding a cure. Check out these resources to get started: 🔗 srfcure.org/support-us/say…

It’s #WorldSclerodermaDay—a time to come together to raise awareness, fuel hope, and move toward a cure for scleroderma. Here are just a few of our incredible community members, and why they #SayScleroderma to raise awareness.

Coming up soon—February is Rare Disease Awareness Month. It's a time for us to come together and share what it means to live with a rare disease, like scleroderma. Join us on social media to share stories and information. #SayScleroderma

Scleroderma is an autoimmune and rheumatic disease that causes inflammation in the skin and other areas of the body and involves many systems. June is National Scleroderma Awareness Month. To learn more, visit @scleroderma #SayScleroderma

Throughout June, we invited you to join us in the #SayScleroderma campaign. Although Scleroderma Awareness Month has ended, it's important to remember that this effort does not have to stop here. Let's keep the momentum going—stay engaged, and continue to #SayScleroderma.

As someone living with scleroderma, Tiffany P. believes in the power of research to drive change. This Scleroderma Awareness Month, she’s joining us to #SayScleroderma. Join us: srfcure.org/sayscleroderma @srfcure @scleroCA @gcscleroderma

Why does Hồng Thư #SayScleroderma? “Many people feel like I am different from before, but have no clue about what I am suffering from,” she explains. “I #SayScleroderma to raise awareness so that more people learn about this disease.” Read her story: srfcure.org/living-with-sc…

I was diagnosed with this disease in 2011 within about 2-3 months after returning from a deployment. I'm almost 12 years in ith it now. A crazy condition, but grateful to still be alive. It's been a journey. #SayScleroderma #SclerodermaAwarenessMonth

Why does Jennifer #SayScleroderma? 📣 “I #SayScleroderma because, although it is a rare disease, it affects many people and should not take years for patients to receive a diagnosis," she says. Read the full story here: bit.ly/3VDac4y

It’s #SclerodermaAwarenessMonth—are you ready to spread the word? #SayScleroderma because awareness leads to earlier diagnoses, better treatment, & more research toward a cure. Join us: srfcure.org/sayscleroderma @srfcure @scleroCA @gcscleroderma

What exactly is scleroderma, and how does it affect people? Scleroderma is best thought of as a single, yet complex disease that can progress in two main types: Systemic and Localized. Learn more about scleroderma and how to #SayScleroderma this month: bit.ly/45gjUw4

“I #SayScleroderma because although it is rare and may feel isolating, it is not one to be alone with," says Ryan M. (dx 2019). "I see organizations all over the world where the conversations are going strong, and I encourage patients new and old to jump in."