#caredotdata 搜尋結果
Clear sense on #TREs too (recommendation 3) 👇 If 'any man and his dog' is allowed to build a TRE, we'll simply end up with the farcical proliferation of so-called 'safe havens' that existed pre-#caredotdata. A small number of *mutually-accredited* TREs keeps EVERYONE honest...
“Major projects have lowered public buy-in”. No shit! Whose brilliant idea was it that the body (in some cases, the people) who pushed #caredotdata & #GPDPR - not to mention long-held #DataLake/#TargetArchitecture* ambitions - gets to define the rules? *medconfidential.org/wp-content/upl…
...and, a bit like @NHSEngland did after #caredotdata in 2014*, they've created some "advisory groups". You can read the #TermsOfReference and published 'Action notes' for the '#GPData #Check and #Challenge Advisory Group' here: digital.nhs.uk/data-and-infor… __ *Check who's missing:
@Jeremy_Hunt expects GPs to 'sell' benefits of #caredotdata "We will find better ways of communicating to the public, particularly thru GPs"
#CareDotData (plus nhs.uk & N4) have been red flagged by the Gov Major Projects Authority: goo.gl/Jopkiy
..we HAVE taken legal advice on that. #NHSTrusts don't just get to #sell copies of their patients' data - for shares in dodgy 'AI' companies, or anything else. In case they've not been paying attention (cf. #caredotdata, #GPDPR) this is precisely what destroys #trust 🤦♂️🤦♂️🤦♂️
Leeds, Blackburn, Somerset and West Hampshire CCG's chosen as pathfinders for #CareDotData goo.gl/8KacnM
Will independent review of care.data now force a complete rethink of the proposed programme #NHS #caredotdata gov.uk/government/upl…
@iantownend still no leaflet. I may now opt out in protest at being left out #caredotdata
Should a data privacy breach lead to jail time? What will it mean for #careDOTdata? @EHealthInsider goo.gl/t2ukJl
@AndrewzCooper "An Intelligent Grown-Up Debate" 2040infolawblog.com/2014/01/24/an-…. The Big Opt-Out thebigoptout.com/about-nhs-conf…. #caredata #caredotdata
is #CareDotData back on track? @hscic is confident it will be approved by Dame Fiona @Caldicott2 goo.gl/R45GWF
@misepol Also here. If this was amalgamated with other data, anonymised & available to 3rd parties ~= #caredotdata. engage.hscni.net/ECR/index.htm
...caused by the #CoverUp, like undermining #trust across the board, was in some ways even worse than what they tried to hide. Does any of this sound familiar to #caredotdata veterans? (Or at least, those who learned something?)
On #caredotdata, for example, it was not just that the programme was appallingly and #misleadingly #miscommunicated; the opt-outs were made deliberately confusing and difficult - something that *still* hadn't been addressed by the time #GPDPR was announced. The more difficult...
Hi Bilal, I'm afraid that doesn't ring any bells for me. Do you have an idea how many years ago this was, even roughly? Could it have come from a speech in the Commons during #caredotdata, for example? (I know David Davis spoke about this issue then; maybe another MP did too?)
@leaWBEF @wbefNW absolutely, thank goodness someone is going to join the dots & help move healthcare on from the paperbased 70s #caredotdata
Did @MattHancock's advisory group think this was a good idea? Where are the #IG terms? @bengoldacre @parkermoss Beginnings of #CareDotData mark 2? @jtweeterson @HPIAndyCowper @Masey_uk
Matt Hancock is to announce a partnership between the NHS and Amazon that will let patients “ask Alexa” for medical advice thetimes.co.uk/edition/news/a…
...caused by the #CoverUp, like undermining #trust across the board, was in some ways even worse than what they tried to hide. Does any of this sound familiar to #caredotdata veterans? (Or at least, those who learned something?)
..we HAVE taken legal advice on that. #NHSTrusts don't just get to #sell copies of their patients' data - for shares in dodgy 'AI' companies, or anything else. In case they've not been paying attention (cf. #caredotdata, #GPDPR) this is precisely what destroys #trust 🤦♂️🤦♂️🤦♂️
Hi Bilal, I'm afraid that doesn't ring any bells for me. Do you have an idea how many years ago this was, even roughly? Could it have come from a speech in the Commons during #caredotdata, for example? (I know David Davis spoke about this issue then; maybe another MP did too?)
...and, a bit like @NHSEngland did after #caredotdata in 2014*, they've created some "advisory groups". You can read the #TermsOfReference and published 'Action notes' for the '#GPData #Check and #Challenge Advisory Group' here: digital.nhs.uk/data-and-infor… __ *Check who's missing:
“Major projects have lowered public buy-in”. No shit! Whose brilliant idea was it that the body (in some cases, the people) who pushed #caredotdata & #GPDPR - not to mention long-held #DataLake/#TargetArchitecture* ambitions - gets to define the rules? *medconfidential.org/wp-content/upl…
...which are all eminently #engineerable, given the political will, and resourcing. So why didn't @NHSEngland learn from #caredotdata, and will they *actually* learn from #GPDPR and this Review? After all, it's not like they haven't had many of the 'blueprints' for years...
On #caredotdata, for example, it was not just that the programme was appallingly and #misleadingly #miscommunicated; the opt-outs were made deliberately confusing and difficult - something that *still* hadn't been addressed by the time #GPDPR was announced. The more difficult...
Clear sense on #TREs too (recommendation 3) 👇 If 'any man and his dog' is allowed to build a TRE, we'll simply end up with the farcical proliferation of so-called 'safe havens' that existed pre-#caredotdata. A small number of *mutually-accredited* TREs keeps EVERYONE honest...
Oh joy. "Thorny" is somewhat of an understatement! For all of the familiar hand-waving on potential 'benefits', this could all too easily turn out to be the EU's #caredotdata... More info on the #EUHealthDataSpace here: ec.europa.eu/health/ehealth…
The Health Data Space will address the thorny issue of re-using health data for ‘secondary use’ which, for the Commission, can significantly boost the innovative field of personalised medicines. @BertuzLuca and I have taken an in-depth look at the proposal euractiv.com/section/digita…
euractiv.com
LEAK: The EU Commission's data space for unleashing health data
The European Commission is set to propose a new governance framework for health data with cross-border interoperability requirements and a pan-European infrastructure in the first sectorial legisla...
It is #caredotdata all over again. If the #NHS is going to keep making these mistakes you wish they would at least make different mistakes.
‘This is the biggest data grab in the history of the health service’ says @guardian I’m all for sharing data but let’s not sneak it through without proper Comms & cause irreversible damage to trust #privacy #healthdata #nhs amp-theguardian-com.cdn.ampproject.org/c/s/amp.thegua…
Did @MattHancock's advisory group think this was a good idea? Where are the #IG terms? @bengoldacre @parkermoss Beginnings of #CareDotData mark 2? @jtweeterson @HPIAndyCowper @Masey_uk
Matt Hancock is to announce a partnership between the NHS and Amazon that will let patients “ask Alexa” for medical advice thetimes.co.uk/edition/news/a…
Just revisiting a few bits around the #caredotdata storm (never forget) and this history from @sarahknapton was excellent #datasaveslives telegraph.co.uk/science/2016/0…
Info Commissioner: There is great concern about #CareDotData in the public. Are we being invited to give blank check? #IPBill
#CareDotData (plus nhs.uk & N4) have been red flagged by the Gov Major Projects Authority: goo.gl/Jopkiy
is #CareDotData back on track? @hscic is confident it will be approved by Dame Fiona @Caldicott2 goo.gl/R45GWF
Nice piece with @tkelsey1 on #CAREdotDATA diginomica.com/2015/01/20/nhs… let's avoid all the media spin and hype about it's relaunch!
Will independent review of care.data now force a complete rethink of the proposed programme #NHS #caredotdata gov.uk/government/upl…
Should a data privacy breach lead to jail time? What will it mean for #careDOTdata? @EHealthInsider goo.gl/t2ukJl
“Major projects have lowered public buy-in”. No shit! Whose brilliant idea was it that the body (in some cases, the people) who pushed #caredotdata & #GPDPR - not to mention long-held #DataLake/#TargetArchitecture* ambitions - gets to define the rules? *medconfidential.org/wp-content/upl…
Clear sense on #TREs too (recommendation 3) 👇 If 'any man and his dog' is allowed to build a TRE, we'll simply end up with the farcical proliferation of so-called 'safe havens' that existed pre-#caredotdata. A small number of *mutually-accredited* TREs keeps EVERYONE honest...
...and, a bit like @NHSEngland did after #caredotdata in 2014*, they've created some "advisory groups". You can read the #TermsOfReference and published 'Action notes' for the '#GPData #Check and #Challenge Advisory Group' here: digital.nhs.uk/data-and-infor… __ *Check who's missing:
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