#epilepsy search results
thank you @OllyGloverLD @DaveRobertsonMP all MPs who stood with every family devastated by #SUDEP government must act to ensure 3 decades of failure are never repeated and every life is finally protected @SudepAction #Epilepsy #CliveTreacey #PreventableDeaths #AllOurLosses 💜
SUDEP Action’s constituency @OllyGloverLD has secured a debate on SUDEP in the House of Commons for Wednesday 22nd April. The debate will take place between 2.30-10pm: parliamentlive.tv/Commons #SUDEP #epilepsy #epilepsyawareness
"I was trying to live my life like 'everyone else' and draining myself because of it." @writeamberann -- What experiences have you had trying to mask your #epilepsy? #EpilepsyAwareness brainablaze.com/blog/epilepsy-…
Do you find that the emotional support of a pet is helpful in your adaptation to #epilepsy? -- While a standard pet offers comfort and reduces the stress that can trigger seizures, they aren't trained for medical tasks like a seizure dog. #NationalPetDay #EpilepsyAwareness
When you’re first diagnosed with #epilepsy, the search for answers can feel endless. -- How good are you at following up with anything you've learned about Epilepsy with your neurologist (or ideally epileptologist)? #EpilepsyAwareness
Some people with #epilepsy might feel sensations before a larger seizure. Called an AURA, these sensations can feel differently where in the brain the errant electricity starts. -- Do you get a warning before your seizures? #EpilepsyAwareness
The human 🧠 is the most complex structure in the universe, with roughly 86 billion neurons and trillions of synaptic connections. Investing in 🧠 research isn't just about supporting people with #epilepsy, but unlocking a better quality of life for everyone. #EpilepsyAwareness
This study investigated whether preimplantation functional network perturbations in relation to interictal epileptiform discharges are associated with vagus nerve stimulation response in children with focal drug-resistant #epilepsy: hubs.la/Q046LyY40
Ever feel like your mind goes blank the second the doctor walks in? When you're managing #epilepsy, every minute of that appointment counts. Writing down one's questions before their appointment lets one focus fully on the conversation. #EpilepsyAwareness
Demanding that someone explain exactly how their condition affects their life is invasive and exhausting. Accessibility should be the default, not something people with #epilepsy have to "earn" through disclosure or explanation. #EpilepsyAwareness
Do you agree that resilience is often much more powerful tool than perfection? When breakthrough seizures occur, people with #epilepsy find the strength to keep going. #EpilepsyAwareness
A person with #epilepsy should never be force to apologize for a seizure. It’s a neurological event, not a choice. -- What is something warranted that you often find yourself apologizing about? #EpilepsyAwareness
“It ain’t what you don’t know that gets you into trouble. It’s what you know for sure that just ain’t so.” -- Mark Twain. What is something that people "know is true" about #epilepsy that just isn't? #EpilepsyAwareness
Just because a disability is invisible doesn’t mean it isn’t chronic. #epilepsy shapes every aspect of one's life every single day. -- Why do you think Epilepsy isn't considered more when people talk about chronic illness? #EpilepsyAwareness
When prescription #cannabis was legalised in 2018, the UK govt promised that children with life threatening #epilepsy would be provided for on the NHS "in the normal way". Eight years later that promise remains broken and families' average cost is £1,300 per month. This campaign
We've found the easiest way to learn about thriving while dealing with #epilepsy can't be found in a textbook, but while talking to those that have it. Our Support Group meets TOMORROW. #EpilepsyAwareness Just click the Zoom invite link included👇. brainablaze.com/epilepsy-suppo…
If you're a person with #epilepsy celebrating #NationalBeerDay, have you talked to your neurologist (or epileptologist) first? Alcohol can interfere with how your body processes anti-seizure meds, making them less effective or increasing side effects. #EpilepsyAwareness
Any advice on how to explain one's #epilepsy to a new employer or colleague without feeling like it defines your professional capability? #EpilepsyAwareness Here's our advice: brainablaze.com/the-brain-abla…
brainablaze.com
036: Careers - Not If, but When - The Brain Ablaze Epilepsy Podcast
Have you ever asked, "When is the right time to tell a prospective employer about my Epilepsy?".
Can you imagine there was a time where neurologists suggested that people with #epilepsy not exercise? It is now recognized as a vital tool for stress management and overall neurological health. -- What are some of your exercise goals? #EpilepsyAwareness
At best, #disability euphemisms are confusing; at worst, they can be insulting. Do you think that using "special needs" to describe a common neurological condition like #epilepsy can infantilize adults who are simply navigating their daily lives? #EpilepsyAwareness
thank you @OllyGloverLD @DaveRobertsonMP all MPs who stood with every family devastated by #SUDEP government must act to ensure 3 decades of failure are never repeated and every life is finally protected @SudepAction #Epilepsy #CliveTreacey #PreventableDeaths #AllOurLosses 💜
SUDEP Action’s constituency @OllyGloverLD has secured a debate on SUDEP in the House of Commons for Wednesday 22nd April. The debate will take place between 2.30-10pm: parliamentlive.tv/Commons #SUDEP #epilepsy #epilepsyawareness
Most people STILL believe this about epilepsy… 😳 SPIRITUAL POSSESSION? ❌ Don’t put anything in their mouth ❌ Don’t hold them down ✅ Keep them safe ✅ Turn them on their side This could save a life. Share it. #Epilepsy #Seizure #HealthTips #MedicalFacts #LearnOnTikTok
"I was trying to live my life like 'everyone else' and draining myself because of it." @writeamberann -- What experiences have you had trying to mask your #epilepsy? #EpilepsyAwareness brainablaze.com/blog/epilepsy-…
DYKT history shows that the population of veterans living with seizures usually spikes as soldiers return from conflict? Traumatic Brain Injuries (#TBI) from blasts or impacts are a leading cause of "acquired #epilepsy" in the military. #EpilepsyAwareness
Consider this your official invite to come and talk with Susan Wilkie, EEA President, as a mother and educational leader. ready to share her story with #epilepsy and offer pointers in navigating the school system with children living with #seizures. edmontonepilepsy.org
Any suggestions on how we can better break through the algorithm bubble and reach more people outside the #epilepsy community? #EpilepsyAwareness
Final day in Chicago! 🕒 If you haven't seen our neonatal and pediatric solutions yet, now is the time. Visit Ceribell booth #4619 to see how we're providing rapid #EEG access for the NICU and beyond! ceribell.com/neonate/ #neonatalEEG #epilepsy #NeonatalSeizures CAUTION:
Take a few minutes to discover all we have to offer as you become an @EEA #member today! edmontonepilepsy.org #epilepsy #seizures #membership
Perjalanan ini membentuk kami. Perjalanan El Nuel Journey 💜 Terima kasih sudah bersama kami. #elnueljourney #cerebralpalsy #epilepsy #parentingjourney #anakspesial #medan #indonesia #parenting
Time to start dreaming of wet days at the park! #happywednesday! #epilepsy ...and remember to be kind today!
Would you know what to do in case of an #epilepsy emergency? edmontonepilepsy.org Connect with us and discover more. Being ready to help makes all the difference! #seizures
Heads up, I was Diagnosed Epileptic from drinking #EnergyDrinks be careful with the Monster & RedBulls!!! Those drinks got me shaking in my sleep #Epilepsy
Can #AI personalize brain stimulation for drug-resistant epilepsy? A roadmap for smarter, safer, adaptive neuromodulation. doi.org/10.1002/epi.70… Free Access #epilepsy #ilae #epilepsiajourn #adaptivestimulation #drugresistantepilepsy #neuromodulation #seizureforecasting
Epilepsy affects everyone differently. Some people may find that problems with their mood can affect their epilepsy and how it is managed. How you feel may be different and your view of #epilepsy may also change over time. We have information 👉 bit.ly/4lnH24M
Familiarity varies by region: highest in Europe (76%) and South/Central America and Asia (73%), lowest in North America (50%). doi.org/10.1002/epi4.7… #epilepsy #ILAE #epilepsiaopen #autoimmuneassociatedepilepsy #autoimmuneencephalitis #neuralantibody
SLR shows caregivers of people with DS report significant mental health impacts, including depression, anxiety, fatigue, poor sleep & stress. doi.org/10.1002/epi.70… #epilepsy #ilae #epilepsiajourn #anxiety #depression #fatigue #isolation #sleepquality
📖 New article! Cenobamate + clobazam 🧠💊 and a possible pharmacogenetic link 🔬 Personalized epilepsy care is getting closer ✨ #epilepsy #cenobamate link.springer.com/article/10.100…
🗓️Session 3 at #ASPNR26, "Seizing the Image: Pediatric Epilepsy in Focus" will feature: 🧲Trista Raymer, BS, RT, MRSO highlighting important technical considerations for scanning children with #epilepsy 🕵️♂️Dr @SanjayPrabhu teaching us how to leverage advanced imaging to unveil
#Epilepsy treatment continues to evolve with real-world comparative data on newer anti-seizure medications. Emanuele Cerulli Irelli, MD, and Cynthia Armand, MD, discuss the implications for individualized epilepsy management. 🎧 Listen now: bit.ly/3MeiIFo
Among adults with newly diagnosed focal #Epilepsy, suicidality at diagnosis was associated with more than double the risk of future drug resistance vs mood or anxiety disorders alone. ja.ma/4vHg5gX
#Epilepsy incidence among US #Medicare beneficiaries aged 65 and older varied tenfold across regions and was associated with insufficient sleep, lack of vehicle access, heat index, physical inactivity, and uninsured rate. bit.ly/4rHmPZJ
Among adults with newly diagnosed focal #Epilepsy, suicidality at diagnosis was associated with more than double the risk of future drug resistance vs mood or anxiety disorders alone. ja.ma/4sCVIPS
Among children born in Brazil, this cohort study found that CZS is associated with early childhood #epilepsy-related hospital admissions, regardless of head circumference status. ja.ma/4qSBSPZ
While holistic care from a chiropractor has its place, it’s vital to remember that #epilepsy is a complex neurological condition. A talented neurologist is the only safe place to start the path toward seizure management. #EpilepsyAwareness
Ever feel like your mind goes blank the second the doctor walks in? When you're managing #epilepsy, every minute of that appointment counts. Writing down one's questions before their appointment lets one focus fully on the conversation. #EpilepsyAwareness
Functional Characterization of a De Novo SCN2A Mixed Variant Linked to Early Infantile Developmental and Epileptic Encephalopathy hubs.la/Q042M2YL0 #NeuroTwitter #Epilepsy
Do you find that the emotional support of a pet is helpful in your adaptation to #epilepsy? -- While a standard pet offers comfort and reduces the stress that can trigger seizures, they aren't trained for medical tasks like a seizure dog. #NationalPetDay #EpilepsyAwareness
This study evaluated the risk of seizure relapse in individuals who began antiseizure medication withdrawal at different time points after #epilepsy surgery: hubs.la/Q041V7zc0 #NeuroTwitter
What do the Red Skull, Agent Smith, and Elrond have in common? They are all played by a person with #epilepsy. A very Happy Birthday to Hugo Weaving! #EpilepsyAwareness Watch him tell his Epilepsy story: youtu.be/lM_Kn41hLik?si…
Intracranial neuromodulation in drug-resistant pediatric and adult #epilepsy demonstrated an acceptable safety profile across sexes and age groups. However, children and patients with 4-lead DBS systems were at increased risk of the bowstring effect: hubs.la/Q044j4Fd0
This study investigated whether preimplantation functional network perturbations in relation to interictal epileptiform discharges are associated with vagus nerve stimulation response in children with focal drug-resistant #epilepsy: hubs.la/Q046LyY40
The last scheduled Drug-resistant #Epilepsy Patient was today operated successfully at #CHUK by a team of local and int'l Neurosurgeons. The intensive week-long Epilepsy Surgery Training saw 7 Cases treated for the first time in #Rwanda, thanks to @hospitaldelmar & @RwandaHealth
Did you know that nearly 30% of people with #epilepsy cannot manage their seizures through meds alone? That's why we need to investigate other treatments because after the first two meds fail, the odds of finding another med that helps dramatically drops. #EpilepsyAwareness
Every breakthrough in #epilepsy research is a win for all 65 million of us. Unfortunately, epilepsy research gets a fraction of funding than the research for other neurological conditions that affect fewer people. -- Do you donate to research? #PurpleDay2026 #EpilepsyAwareness
What does #PurpleDay2026 mean to you? Please share your #epilepsy story, because your voice might be the exactly what someone else needs to hear today. #EpilepsyAwareness
The intersection of #epilepsy and mental health is often a quiet, heavy load. Studies show that people with Epilepsy are significantly more likely to face clinical #depression. -- Have you struggled dealing with both? #EpilepsyAwareness brainablaze.com/the-brain-abla…
Our new issue is live! Check out stories about the future of #EMG training, #GLP1s and #epilepsy risk, a combination therapy for recurrent IDH-mutant #astrocytoma, and more: hubs.la/Q043PZFj0 #NeuroTwitter #NeurologyToday
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