#fragilexawareness ผลการค้นหา
Do you know the leading inherited cause of intellectual disabilities? During #FragileX Awareness Month, we're spreading the word. #fragilexawareness
Happy #WorldFragileX Day!! We did a bit of an impromptu stream to raise money for FRAXA today, but our big event was celebrated last month 💙 Please consider taking time to learn about this disorder through the FRAXA website!! fraxa.org #FragileXAwareness
Join us as we delve into the science behind Fragile X Syndrome, exploring its causes, symptoms, and potential treatments. Together, we can raise awareness and support those living with Fragile X Syndrome. Share this reel to spread knowledge and empathy! 💙 #FragileXAwareness
👉This is truly what happens when you come across people who just don’t understand what a parent goes through and are so easy to judge. ⭐️We can be like the latter. ⭐️Offer help. ⭐️You don’t need to ask too much. ⭐️Idea is you want to support. #fragilexawareness
City Centre Malls Kolkata lit up in teal for World Fragile X Day, which helped spread hope and raise awareness for Fragile X Syndrome; thank you for illuminating for our cause and supporting those with the condition! 💙 #CityCentreKolkata #FragileXAwareness #WorldFragileXDay
As National #FragileXAwareness Month comes to a close, check out the ARUP Consult Topic Fragile X (FMR1)-Associated Disorders. bit.ly/3xsZG6K
Today is Fragile X Awareness Day. Many with Fragile X experience anxiety & may avoid eye contact. Support with calm voices, gentle presence & predictable routines. Offer choices, be patient & allow extra time to process. Small adjustments make a big difference. #FragileXAwareness
The student Voice Prize promoted by Beacon for rare diseases took place yesterday and saw the participation of our president Kirsten Johnson. In the pictures one of the finalist essays addressing crucial issues for our community. #noinequalities #fragilexawareness
It's Fragile X Awareness Day! Today we celebrate those in your life impacted by Fragile X. #fragilex #fragilexsyndrome #fragilexawareness #nonprofit
Meet Chris: orange juice over coffee, logistics before 9am + leadership with heart. PCS? Ops & strategy. Home? A dad, an advocate + a trailblazer for Fragile X care. — More on Fragile X: fragilex.org.uk Connect: linkedin.com/in/chris-mcqua… — #MeetTheTeam #FragileXAwareness
Uncover how ongoing research is shaping the future of Fragile X Syndrome. Learn about advancements and promising treatments in our latest blog post. Link in bio! #FragileXAwareness studies.science37.com/the-future-of-…
Did you know that Fragile X syndrome is the leading cause of inherited intellectual disabilities? 💡 July is Fragile X Awareness month. Let's take a moment to share some important facts and raise awareness of Fragile X syndrome.🙏 #FragileX #fragilexsyndrome #fragilexawareness
So lovely to see my daughter and her tennis partner celebrated in @yorkpress today. Especially as we approach #FragileXawareness day on 10/10. #fragilextraordinary #thisgirlcan #teamsogb
National Fragile X Awareness Day - July 22 #NationalFragileXAwarenessDay #FragileXAwarenessDay #FragileXAwareness #FragileX #FragileXSyndrome #FXS #MartinBellSyndrome #CongenitalDisorder #NervousSystem #InheritedIntellectualDisability #FragileXSigns #FragileXSymptoms
NFXF Board Members visited the Fragile X Clinic at Texas Children’s Hospital. Meeting with Fragile X Clinics helps us provide better programming and resources for families living with Fragile X and the professionals who strive to serve them. #fragilex #fragilexawareness
Today, on World IVF Day, we celebrate hope and courage. Together, let's educate families on their journey towards a brighter and more inclusive future.💙 Join us to spread awareness. Dm us to know more.🙌 #WorldIVFDay #FragileXAwareness #BringingHopeToLife #Awareness #Autism
July not over yet! Shining our light for #fragilexsyndrome at the SourceKids Disability Expo in Brisvegas this weekend 🧡 July is for #fragilexawareness
We try our best to not let Fragile X "define" who Nile is. Today is Fragile X Awareness Day and we continue to be impressed by Nile's development. #FragileXAwareness
Fragile X Syndrome takes centre stage in the influential Hindi and Marathi newspaper, @saamana. This momentous feature represents a significant step forward in raising awareness and understanding about this often lesser-known condition. #fragilexawareness #India #FXS
Meet Chris: orange juice over coffee, logistics before 9am + leadership with heart. PCS? Ops & strategy. Home? A dad, an advocate + a trailblazer for Fragile X care. — More on Fragile X: fragilex.org.uk Connect: linkedin.com/in/chris-mcqua… — #MeetTheTeam #FragileXAwareness
Uncover how ongoing research is shaping the future of Fragile X Syndrome. Learn about advancements and promising treatments in our latest blog post. Link in bio! #FragileXAwareness studies.science37.com/the-future-of-…
Our Fragile X caregiver stories created with Shionogi continue with Diane, mom to eight, four of whom live with #FragileXSyndrome. Diane shares what she loves most about her “beautiful chaos” and the ways their family creates happiness. #FragileX #FragileXawareness
Happy #WorldFragileX Day!! We did a bit of an impromptu stream to raise money for FRAXA today, but our big event was celebrated last month 💙 Please consider taking time to learn about this disorder through the FRAXA website!! fraxa.org #FragileXAwareness
Today, on Fragile X Syndrome Awareness Day, we recognize the importance of early identification, genetic counseling, and ongoing research to support individuals with FXS. #FragileXAwareness #FXSResearch #GeneticTesting #PatientWorthy #EarlyIntervention
Today’s Science World Lights: World Fragile X Day #WorldFragileXDay #FragileX #FragileXAwareness
Today is Fragile X Awareness Day. Many with Fragile X experience anxiety & may avoid eye contact. Support with calm voices, gentle presence & predictable routines. Offer choices, be patient & allow extra time to process. Small adjustments make a big difference. #FragileXAwareness
We are a family on a mission to raise awareness for Fragile X Syndrome, and support Shawn. Did you know Fragile X is the top inherited cause of intellectual disability and the leading single-gene cause of autism? Let’s spread awareness! #FragileXAwareness #LearnMore
💚✨ Today is World Fragile X Day! Fragile X syndrome, the most common inherited cause of intellectual disability, affects millions globally. Let’s advocate for awareness, inclusion, and research!💡 #WorldFragileXDay #FragileXAwareness #InclusionMatters worldfragilexday.com
Today is World Fragile X Day. Join us in raising awareness about the most common inherited cause of intellectual disability and celebrating those impacted by Fragile X syndrome. #FragileXAwareness
Today is #FragileXAwareness Day 💙🧩 At Inland Respite, we support families through compassionate, in-home care tailored to every need. Because compassion connects the pieces—and that’s how we care. #InlandRespite #IDDCommunity #InclusiveSupport
#FragileXAwareness #InclusionMatters #Neurodiversity #LightItUpTeal #BrandTransNzoiaCBO #VictoryLens #KikwetuStreetFashionShow #DisabilityAwareness #TransNzoiaCares #VictoryLens #autismacceptance
Tomorrow, we raise awareness for Fragile X Syndrome and support those affected by it. 💚 Let’s spread knowledge, compassion, and hope for a brighter future! #FragileXAwareness #AneScan
In a new paper published in @NEJM the MIND Institute's Randi and Paul Hagerman call for more screening of the genetic conditions associated with Fragile X. bit.ly/3IwZPLz #fragileX #fragileXAwareness #fragileXAwarenessMonth #FXTAS #FXPOI #FXS
We’re proud to feature Kara, an FXS mom and member of our board of directors, in the next inspirational caregiver video, developed with Shionogi. 👉Hear how self-advocacy has defined their family. hubs.ly/Q03x98yq0 #FragileX #FragileXsyndrome #FragileXawareness
💙 Taking a small step as a Fragile X Awareness Partner with Fragile X India & WICCI. Because Fragile X isn’t rare, just rarely spoken about. Let’s listen, learn, and spread awareness. Watch out for more. fragilex.in #FragileXAwareness #InclusionMatters #WICCIIndia
Alongside Shionogi, we’re spotlighting caregivers this #FragileXAwarenessMonth, as they have unique experiences. Jessie, mother of 5 with #FragileXSyndrome, shares her experience and what she hopes the future of care looks like. #FragileXawareness #FragileX
Join us and Shionogi in celebrating caregivers, including Rene, this #FragileXAwarenessMonth. Together with parents like Rene, we’re working to increase understanding about living with #FragileXSyndrome. #FragileXawareness #FragileX
💚✨ July is National Fragile X Awareness Month! Fragile X syndrome is the most common inherited cause of intellectual disability. Let’s raise awareness and support research and accessibility. 🌟 #FragileXAwareness #InclusionMatters #AccessibilityForAll #FragileXSupport
As National #FragileXAwareness Month comes to a close, check out the ARUP Consult Topic Fragile X (FMR1)-Associated Disorders. bit.ly/3xsZG6K
Meet Chris: orange juice over coffee, logistics before 9am + leadership with heart. PCS? Ops & strategy. Home? A dad, an advocate + a trailblazer for Fragile X care. — More on Fragile X: fragilex.org.uk Connect: linkedin.com/in/chris-mcqua… — #MeetTheTeam #FragileXAwareness
National Fragile X Awareness Day - July 22 #NationalFragileXAwarenessDay #FragileXAwarenessDay #FragileXAwareness #FragileX #FragileXSyndrome #FXS #MartinBellSyndrome #CongenitalDisorder #NervousSystem #InheritedIntellectualDisability #FragileXSigns #FragileXSymptoms
Fragile X Awareness Day - July 22 Shop Now - store.planetayurveda.com #FragileXAwarenessDay #FragileXAwarenessDay2024 #FragileXAwareness #FragileX #FragileXDay #FXS #FragileXSyndrome #KnowFragileX #FragileXAwarenessMonth #BrainDevelopment #Symptooms #Anxiety #Seizures…
Witness the majestic India Gate lighting up in teal, as it stands in solidarity with Fragile X Awareness on World Fragile X Day. Let this vibrant display spread acceptance for the incredible individuals and families impacted by Fragile X Syndrome. #FragileXAwareness #IndiaGate
Apollo Children's Hospital Lights the Way. Witness the power of unity and compassion as they stand alongside individuals with Fragile X Syndrome and their families to support and empower by lighting up on World Fragile X day.🙌 #WorldFragileXDay #FragileXAwareness #FragileXIndia
IIT Roorkee lights up in teal on World Fragile X Day. Together, let's stand in solidarity, raise awareness, and support individuals and families affected by Fragile X Syndrome💙 Join us and raise awareness for Fragile X Syndrome. DM to know more🙌 #FragileXAwareness #IITRoorke
#FragileXAwareness #InclusionMatters #Neurodiversity #LightItUpTeal #BrandTransNzoiaCBO #VictoryLens #KikwetuStreetFashionShow #DisabilityAwareness #TransNzoiaCares #VictoryLens #autismacceptance
Shining bright on World Fragile X Day! Mumbai Sealink Toll Plaza Joins the movement to Raise Awareness on World Fragile X Day. Together, let's illuminate minds and embrace the Xtraordinary strength of individuals with Fragile X Syndrome. 💙 #FragileXAwareness #MSRDC
Did you know that Fragile X syndrome is the most common inherited cause of intellectual disability, affecting 1 in 4,000 males and 1 in 6,000 females? 👉 - emedevents.com/genetics?REFID… #FragileXAwareness #Genetics #CME #HCPeducation #MedicalGenetics #eMedEvents
As GGC turns 50, we are introducing you to some of the families we are privileged to serve. Meet Sam and learn how GGC and Dr. Carrie Buchanan have made their journey with Fragile X syndrome a little easier... #fragilexawareness #GGCat50 youtu.be/6JDPgZy7HM8
I’m a parent carer to twin sons aged 26 with fragile X syndrome. I have been all their lives and will be for the rest of my life/most of their lives, sometimes tough, often massively rewarding…today is #fragilexawareness day. Help raise the profile and #retweet @stuandmattmcd ❤️
FRAGILE X SYNDROME (FXS) DAY, JULY 22 THGO comes together to share knowledge, spread awareness, and uplift the incredible individuals and families affected by FXS Let's break the barriers. Content by @Wanzira4 Artwork by @Iampeleka #FragileXAwareness #FragileXSyndromeDay
Atal Setu Bridge in Goa Stands for Fragile X Syndrome. As the bridge lights up in teal, it symbolizes the commitment to spread awareness, foster a supportive environment, and promote inclusion. #fragilexsyndrome #fragilexawareness #worldfragilexday
Thank you @TajMahalMumbai for always supporting and raising awareness for #FragileXSyndrome. Yesterday, Taj Mahal Tower illuminated in a stunning shade of teal to shine a light on Fragile X Syndrome and raise awareness on #WorldFragileXDay! #FragileXAwareness #TajMahalTower
July is National Fragile X Awareness Month, a time to raise awareness about Fragile X syndrome - a genetic condition that leads to a range of developmental challenges: bit.ly/4eOzUe7 #pediatrics #FragileXAwareness #Genetics #meded #healthcare #eMedEvents
😮 Did you know that for Fragile X, only one parent needs to pass the gene along? Unlike many other conditions, both parents don't have to be carriers! 🧬 #FragileXAwareness #genetics
💙 Taking a small step as a Fragile X Awareness Partner with Fragile X India & WICCI. Because Fragile X isn’t rare, just rarely spoken about. Let’s listen, learn, and spread awareness. Watch out for more. fragilex.in #FragileXAwareness #InclusionMatters #WICCIIndia
Stay informed! This valuable information could help you identify potential health issues that could affect your little ones in the future. 🧐✨ #FragileXAwareness
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