#fragilexawareness search results

Meet Chris: orange juice over coffee, logistics before 9am + leadership with heart. PCS? Ops & strategy. Home? A dad, an advocate + a trailblazer for Fragile X care. — More on Fragile X: fragilex.org.uk Connect: linkedin.com/in/chris-mcqua…#MeetTheTeam #FragileXAwareness

PCSbusiness's tweet image. Meet Chris: orange juice over coffee, logistics before 9am + leadership with heart. PCS? Ops & strategy. Home? A dad, an advocate + a trailblazer for Fragile X care. 
—
More on Fragile X: fragilex.org.uk
Connect: linkedin.com/in/chris-mcqua… 
—
#MeetTheTeam #FragileXAwareness

Happy #WorldFragileX Day!! We did a bit of an impromptu stream to raise money for FRAXA today, but our big event was celebrated last month 💙 Please consider taking time to learn about this disorder through the FRAXA website!! fraxa.org #FragileXAwareness


Join us as we delve into the science behind Fragile X Syndrome, exploring its causes, symptoms, and potential treatments. Together, we can raise awareness and support those living with Fragile X Syndrome. Share this reel to spread knowledge and empathy! 💙 #FragileXAwareness


👉This is truly what happens when you come across people who just don’t understand what a parent goes through and are so easy to judge. ⭐️We can be like the latter. ⭐️Offer help. ⭐️You don’t need to ask too much. ⭐️Idea is you want to support. #fragilexawareness


Do you know the leading inherited cause of intellectual disabilities? During #FragileX Awareness Month, we're spreading the word. #fragilexawareness

kulifespan's tweet image. Do you know the leading inherited cause of intellectual disabilities? During #FragileX Awareness Month, we're spreading the word. #fragilexawareness

As National #FragileXAwareness Month comes to a close, check out the ARUP Consult Topic Fragile X (FMR1)-Associated Disorders. bit.ly/3xsZG6K

ARUPLabs's tweet image. As National #FragileXAwareness Month comes to a close, check out the ARUP Consult Topic Fragile X (FMR1)-Associated Disorders. bit.ly/3xsZG6K

We try our best to not let Fragile X "define" who Nile is. Today is Fragile X Awareness Day and we continue to be impressed by Nile's development. #FragileXAwareness

NolanStribe's tweet image. We try our best to not let Fragile X "define" who Nile is.  Today is Fragile X Awareness Day and we continue to be impressed by Nile's development. #FragileXAwareness
NolanStribe's tweet image. We try our best to not let Fragile X "define" who Nile is.  Today is Fragile X Awareness Day and we continue to be impressed by Nile's development. #FragileXAwareness
NolanStribe's tweet image. We try our best to not let Fragile X "define" who Nile is.  Today is Fragile X Awareness Day and we continue to be impressed by Nile's development. #FragileXAwareness
NolanStribe's tweet image. We try our best to not let Fragile X "define" who Nile is.  Today is Fragile X Awareness Day and we continue to be impressed by Nile's development. #FragileXAwareness

The student Voice Prize promoted by Beacon for rare diseases took place yesterday and saw the participation of our president Kirsten Johnson. In the pictures one of the finalist essays addressing crucial issues for our community. #noinequalities #fragilexawareness

FraXI_FragileX's tweet image. The student Voice Prize promoted by Beacon for rare diseases took place yesterday and saw the participation of our president Kirsten Johnson. In the pictures one of the finalist essays addressing crucial issues for our community. 
#noinequalities #fragilexawareness
FraXI_FragileX's tweet image. The student Voice Prize promoted by Beacon for rare diseases took place yesterday and saw the participation of our president Kirsten Johnson. In the pictures one of the finalist essays addressing crucial issues for our community. 
#noinequalities #fragilexawareness
FraXI_FragileX's tweet image. The student Voice Prize promoted by Beacon for rare diseases took place yesterday and saw the participation of our president Kirsten Johnson. In the pictures one of the finalist essays addressing crucial issues for our community. 
#noinequalities #fragilexawareness
FraXI_FragileX's tweet image. The student Voice Prize promoted by Beacon for rare diseases took place yesterday and saw the participation of our president Kirsten Johnson. In the pictures one of the finalist essays addressing crucial issues for our community. 
#noinequalities #fragilexawareness

Uncover how ongoing research is shaping the future of Fragile X Syndrome. Learn about advancements and promising treatments in our latest blog post. Link in bio! #FragileXAwareness studies.science37.com/the-future-of-…


Did you know that Fragile X syndrome is the leading cause of inherited intellectual disabilities? 💡 July is Fragile X Awareness month. Let's take a moment to share some important facts and raise awareness of Fragile X syndrome.🙏 #FragileX #fragilexsyndrome #fragilexawareness

RichmondCommSvc's tweet image. Did you know that Fragile X syndrome is the leading cause of inherited intellectual disabilities? 💡

July is Fragile X Awareness month. Let's take a moment to share some important facts and raise awareness of Fragile X syndrome.🙏

#FragileX #fragilexsyndrome #fragilexawareness

POV: You take your whole fam including this amazing dude who has so many struggles due to #FragileXSyndrome to see @billyjoel and then THIS happens! THANK U PIANO MAN!! #FragileX #FragileXAwareness #MyBoy


Alongside Shionogi, we’re spotlighting caregivers this #FragileXAwarenessMonth, as they have unique experiences. Jessie, mother of 5 with #FragileXSyndrome, shares her experience and what she hopes the future of care looks like. #FragileXawareness #FragileX


It's Fragile X Awareness Day! Today we celebrate those in your life impacted by Fragile X. #fragilex #fragilexsyndrome #fragilexawareness #nonprofit


Today is Fragile X Awareness Day. Many with Fragile X experience anxiety & may avoid eye contact. Support with calm voices, gentle presence & predictable routines. Offer choices, be patient & allow extra time to process. Small adjustments make a big difference. #FragileXAwareness

eitasjacksonco's tweet image. Today is Fragile X Awareness Day. Many with Fragile X experience anxiety & may avoid eye contact. Support with calm voices, gentle presence & predictable routines. Offer choices, be patient & allow extra time to process. Small adjustments make a big difference. #FragileXAwareness

FRAGILE X SYNDROME (FXS) DAY, JULY 22 THGO comes together to share knowledge, spread awareness, and uplift the incredible individuals and families affected by FXS Let's break the barriers. Content by @Wanzira4 Artwork by @Iampeleka #FragileXAwareness #FragileXSyndromeDay

humangeneticstz's tweet image. FRAGILE X SYNDROME (FXS) DAY,  JULY 22

THGO comes together to share knowledge, spread awareness, and uplift the incredible individuals and families affected by FXS  Let's break the barriers.

Content by @Wanzira4 
Artwork by @Iampeleka 

#FragileXAwareness #FragileXSyndromeDay

Today, we share with you the 5th episode of "A Day with Ben", a book to tell about FXS. With the help of Fraxi, a small blue puppet, we will better understand some common behaviours that children with this condition usually have. #fragilexawareness #togethermakingadifference


So lovely to see my daughter and her tennis partner celebrated in @yorkpress today. Especially as we approach #FragileXawareness day on 10/10. #fragilextraordinary #thisgirlcan #teamsogb

Loobylou65's tweet image. So lovely to see my daughter and her tennis partner celebrated in @yorkpress today. Especially as we approach #FragileXawareness day on 10/10. #fragilextraordinary #thisgirlcan #teamsogb

NFXF Board Members visited the Fragile X Clinic at Texas Children’s Hospital. Meeting with Fragile X Clinics helps us provide better programming and resources for families living with Fragile X and the professionals who strive to serve them. #fragilex #fragilexawareness

NFXFoundation's tweet image. NFXF Board Members visited the Fragile X Clinic at Texas Children’s Hospital. Meeting with Fragile X Clinics helps us provide better programming and resources for families living with Fragile X and the professionals who strive to serve them.
#fragilex #fragilexawareness
NFXFoundation's tweet image. NFXF Board Members visited the Fragile X Clinic at Texas Children’s Hospital. Meeting with Fragile X Clinics helps us provide better programming and resources for families living with Fragile X and the professionals who strive to serve them.
#fragilex #fragilexawareness

July is Fragile X Awareness Month. Fragile X is a rare genetic condition that causes several different developmental problems such as learning disabilities and cognitive impairment. #fragilexawareness

rdii_org's tweet image. July is Fragile X Awareness Month. Fragile X is a rare genetic condition that causes several different developmental problems such as learning disabilities and cognitive impairment. #fragilexawareness

City Centre Malls Kolkata lit up in teal for World Fragile X Day, which helped spread hope and raise awareness for Fragile X Syndrome; thank you for illuminating for our cause and supporting those with the condition! 💙 #CityCentreKolkata #FragileXAwareness #WorldFragileXDay

FragileXIndia's tweet image. City Centre Malls Kolkata lit up in teal for World Fragile X Day, which helped spread hope and raise awareness for Fragile X Syndrome; thank you for illuminating for our cause and supporting those with the condition! 💙 

#CityCentreKolkata #FragileXAwareness #WorldFragileXDay
FragileXIndia's tweet image. City Centre Malls Kolkata lit up in teal for World Fragile X Day, which helped spread hope and raise awareness for Fragile X Syndrome; thank you for illuminating for our cause and supporting those with the condition! 💙 

#CityCentreKolkata #FragileXAwareness #WorldFragileXDay

Meet Chris: orange juice over coffee, logistics before 9am + leadership with heart. PCS? Ops & strategy. Home? A dad, an advocate + a trailblazer for Fragile X care. — More on Fragile X: fragilex.org.uk Connect: linkedin.com/in/chris-mcqua…#MeetTheTeam #FragileXAwareness

PCSbusiness's tweet image. Meet Chris: orange juice over coffee, logistics before 9am + leadership with heart. PCS? Ops & strategy. Home? A dad, an advocate + a trailblazer for Fragile X care. 
—
More on Fragile X: fragilex.org.uk
Connect: linkedin.com/in/chris-mcqua… 
—
#MeetTheTeam #FragileXAwareness

Uncover how ongoing research is shaping the future of Fragile X Syndrome. Learn about advancements and promising treatments in our latest blog post. Link in bio! #FragileXAwareness studies.science37.com/the-future-of-…


Our Fragile X caregiver stories created with Shionogi continue with Diane, mom to eight, four of whom live with #FragileXSyndrome. Diane shares what she loves most about her “beautiful chaos” and the ways their family creates happiness. #FragileX #FragileXawareness


Happy #WorldFragileX Day!! We did a bit of an impromptu stream to raise money for FRAXA today, but our big event was celebrated last month 💙 Please consider taking time to learn about this disorder through the FRAXA website!! fraxa.org #FragileXAwareness


Today, on Fragile X Syndrome Awareness Day, we recognize the importance of early identification, genetic counseling, and ongoing research to support individuals with FXS. #FragileXAwareness #FXSResearch #GeneticTesting #PatientWorthy #EarlyIntervention

PatientWorthy's tweet image. Today, on Fragile X Syndrome Awareness Day, we recognize the importance of early identification, genetic counseling, and ongoing research to support individuals with FXS. 
#FragileXAwareness #FXSResearch #GeneticTesting #PatientWorthy #EarlyIntervention

Today’s Science World Lights: World Fragile X Day #WorldFragileXDay #FragileX #FragileXAwareness


Today is Fragile X Awareness Day. Many with Fragile X experience anxiety & may avoid eye contact. Support with calm voices, gentle presence & predictable routines. Offer choices, be patient & allow extra time to process. Small adjustments make a big difference. #FragileXAwareness

eitasjacksonco's tweet image. Today is Fragile X Awareness Day. Many with Fragile X experience anxiety & may avoid eye contact. Support with calm voices, gentle presence & predictable routines. Offer choices, be patient & allow extra time to process. Small adjustments make a big difference. #FragileXAwareness

We are a family on a mission to raise awareness for Fragile X Syndrome, and support Shawn. Did you know Fragile X is the top inherited cause of intellectual disability and the leading single-gene cause of autism? Let’s spread awareness! #FragileXAwareness #LearnMore


💚✨ Today is World Fragile X Day! Fragile X syndrome, the most common inherited cause of intellectual disability, affects millions globally. Let’s advocate for awareness, inclusion, and research!💡 #WorldFragileXDay #FragileXAwareness #InclusionMatters worldfragilexday.com

BlueDAG1's tweet image. 💚✨ Today is World Fragile X Day! Fragile X syndrome, the most common inherited cause of intellectual disability, affects millions globally. Let’s advocate for awareness, inclusion, and research!💡 #WorldFragileXDay #FragileXAwareness #InclusionMatters worldfragilexday.com

Today is World Fragile X Day. Join us in raising awareness about the most common inherited cause of intellectual disability and celebrating those impacted by Fragile X syndrome. #FragileXAwareness

ColumbiaGCP's tweet image. Today is World Fragile X Day. Join us in raising awareness about the most common inherited cause of intellectual disability and celebrating those impacted by Fragile X syndrome.

#FragileXAwareness

Today is #FragileXAwareness Day 💙🧩 At Inland Respite, we support families through compassionate, in-home care tailored to every need. Because compassion connects the pieces—and that’s how we care. #InlandRespite #IDDCommunity #InclusiveSupport

inlandrespite's tweet image. Today is #FragileXAwareness Day 💙🧩
At Inland Respite, we support families through compassionate, in-home care tailored to every need.

Because compassion connects the pieces—and that’s how we care.
#InlandRespite #IDDCommunity #InclusiveSupport

Tomorrow, we raise awareness for Fragile X Syndrome and support those affected by it. 💚 Let’s spread knowledge, compassion, and hope for a brighter future! #FragileXAwareness #AneScan

AneScan's tweet image. Tomorrow, we raise awareness for Fragile X Syndrome and support those affected by it. 
💚 Let’s spread knowledge, compassion, and hope for a brighter future! 

#FragileXAwareness #AneScan

We’re proud to feature Kara, an FXS mom and member of our board of directors, in the next inspirational caregiver video, developed with Shionogi. 👉Hear how self-advocacy has defined their family. hubs.ly/Q03x98yq0 #FragileX #FragileXsyndrome #FragileXawareness


💙 Taking a small step as a Fragile X Awareness Partner with Fragile X India & WICCI. Because Fragile X isn’t rare, just rarely spoken about. Let’s listen, learn, and spread awareness. Watch out for more. fragilex.in #FragileXAwareness #InclusionMatters #WICCIIndia

Anupama_Dalmia's tweet image. 💙 Taking a small step as a Fragile X Awareness Partner with Fragile X India & WICCI. Because Fragile X isn’t rare, just rarely spoken about.
Let’s listen, learn, and spread awareness. Watch out for more.
fragilex.in
#FragileXAwareness #InclusionMatters #WICCIIndia

Alongside Shionogi, we’re spotlighting caregivers this #FragileXAwarenessMonth, as they have unique experiences. Jessie, mother of 5 with #FragileXSyndrome, shares her experience and what she hopes the future of care looks like. #FragileXawareness #FragileX


Join us and Shionogi in celebrating caregivers, including Rene, this #FragileXAwarenessMonth. Together with parents like Rene, we’re working to increase understanding about living with #FragileXSyndrome. #FragileXawareness #FragileX


💚✨ July is National Fragile X Awareness Month! Fragile X syndrome is the most common inherited cause of intellectual disability. Let’s raise awareness and support research and accessibility. 🌟 #FragileXAwareness #InclusionMatters #AccessibilityForAll #FragileXSupport

BlueDAG1's tweet image. 💚✨ July is National Fragile X Awareness Month! Fragile X syndrome is the most common inherited cause of intellectual disability. Let’s raise awareness and support research and accessibility. 🌟 #FragileXAwareness #InclusionMatters #AccessibilityForAll #FragileXSupport

No results for "#fragilexawareness"

As National #FragileXAwareness Month comes to a close, check out the ARUP Consult Topic Fragile X (FMR1)-Associated Disorders. bit.ly/3xsZG6K

ARUPLabs's tweet image. As National #FragileXAwareness Month comes to a close, check out the ARUP Consult Topic Fragile X (FMR1)-Associated Disorders. bit.ly/3xsZG6K

Meet Chris: orange juice over coffee, logistics before 9am + leadership with heart. PCS? Ops & strategy. Home? A dad, an advocate + a trailblazer for Fragile X care. — More on Fragile X: fragilex.org.uk Connect: linkedin.com/in/chris-mcqua…#MeetTheTeam #FragileXAwareness

PCSbusiness's tweet image. Meet Chris: orange juice over coffee, logistics before 9am + leadership with heart. PCS? Ops & strategy. Home? A dad, an advocate + a trailblazer for Fragile X care. 
—
More on Fragile X: fragilex.org.uk
Connect: linkedin.com/in/chris-mcqua… 
—
#MeetTheTeam #FragileXAwareness

Witness the majestic India Gate lighting up in teal, as it stands in solidarity with Fragile X Awareness on World Fragile X Day. Let this vibrant display spread acceptance for the incredible individuals and families impacted by Fragile X Syndrome. #FragileXAwareness #IndiaGate

FragileXIndia's tweet image. Witness the majestic India Gate lighting up in teal, as it stands in solidarity with Fragile X Awareness on World Fragile X Day. Let this vibrant display spread acceptance for the incredible individuals and families impacted by Fragile X Syndrome.

#FragileXAwareness #IndiaGate

FRAGILE X SYNDROME (FXS) DAY, JULY 22 THGO comes together to share knowledge, spread awareness, and uplift the incredible individuals and families affected by FXS Let's break the barriers. Content by @Wanzira4 Artwork by @Iampeleka #FragileXAwareness #FragileXSyndromeDay

humangeneticstz's tweet image. FRAGILE X SYNDROME (FXS) DAY,  JULY 22

THGO comes together to share knowledge, spread awareness, and uplift the incredible individuals and families affected by FXS  Let's break the barriers.

Content by @Wanzira4 
Artwork by @Iampeleka 

#FragileXAwareness #FragileXSyndromeDay

Apollo Children's Hospital Lights the Way. Witness the power of unity and compassion as they stand alongside individuals with Fragile X Syndrome and their families to support and empower by lighting up on World Fragile X day.🙌 #WorldFragileXDay #FragileXAwareness #FragileXIndia

FragileXIndia's tweet image. Apollo Children's Hospital Lights the Way. Witness the power of unity and compassion as they stand alongside individuals with Fragile X Syndrome and their families to support and empower by lighting up on World Fragile X day.🙌

#WorldFragileXDay #FragileXAwareness #FragileXIndia

IIT Roorkee lights up in teal on World Fragile X Day. Together, let's stand in solidarity, raise awareness, and support individuals and families affected by Fragile X Syndrome💙 Join us and raise awareness for Fragile X Syndrome. DM to know more🙌 #FragileXAwareness #IITRoorke

FragileXIndia's tweet image. IIT Roorkee lights up in teal on World Fragile X Day. Together, let's stand in solidarity, raise awareness, and support individuals and families affected by Fragile X Syndrome💙

Join us and raise awareness for Fragile X Syndrome. DM to know more🙌

#FragileXAwareness #IITRoorke

Do you know the leading inherited cause of intellectual disabilities? During #FragileX Awareness Month, we're spreading the word. #fragilexawareness

kulifespan's tweet image. Do you know the leading inherited cause of intellectual disabilities? During #FragileX Awareness Month, we're spreading the word. #fragilexawareness

As GGC turns 50, we are introducing you to some of the families we are privileged to serve. Meet Sam and learn how GGC and Dr. Carrie Buchanan have made their journey with Fragile X syndrome a little easier... #fragilexawareness #GGCat50 youtu.be/6JDPgZy7HM8

GreenwoodGenCtr's tweet image. As GGC turns 50, we are introducing you to some of the families we are privileged to serve. Meet Sam and learn how GGC and Dr. Carrie Buchanan have made their journey with Fragile X syndrome a little easier... #fragilexawareness #GGCat50
youtu.be/6JDPgZy7HM8

I’m a parent carer to twin sons aged 26 with fragile X syndrome. I have been all their lives and will be for the rest of my life/most of their lives, sometimes tough, often massively rewarding…today is #fragilexawareness day. Help raise the profile and #retweet @stuandmattmcd ❤️

c_mcdonald3's tweet image. I’m a parent carer to twin sons aged 26 with fragile X syndrome. I have been all their lives and will be for the rest of my life/most of their lives, sometimes tough, often massively rewarding…today is #fragilexawareness day. Help raise the profile and #retweet @stuandmattmcd ❤️

Shining bright on World Fragile X Day! Mumbai Sealink Toll Plaza Joins the movement to Raise Awareness on World Fragile X Day. Together, let's illuminate minds and embrace the Xtraordinary strength of individuals with Fragile X Syndrome. 💙 #FragileXAwareness #MSRDC

FragileXIndia's tweet image. Shining bright on World Fragile X Day! Mumbai Sealink Toll Plaza Joins the movement to Raise Awareness on World Fragile X Day. Together, let's illuminate minds and embrace the Xtraordinary strength of individuals with Fragile X Syndrome. 💙 

#FragileXAwareness #MSRDC

Did you know that Fragile X syndrome is the most common inherited cause of intellectual disability, affecting 1 in 4,000 males and 1 in 6,000 females? 👉 - emedevents.com/genetics?REFID… #FragileXAwareness #Genetics #CME #HCPeducation #MedicalGenetics #eMedEvents

eMedEvents's tweet image. Did you know that Fragile X syndrome is the most common inherited cause of intellectual disability, affecting 1 in 4,000 males and 1 in 6,000 females?

 👉 - emedevents.com/genetics?REFID…

#FragileXAwareness #Genetics #CME #HCPeducation #MedicalGenetics #eMedEvents

Thank you @TajMahalMumbai for always supporting and raising awareness for #FragileXSyndrome. Yesterday, Taj Mahal Tower illuminated in a stunning shade of teal to shine a light on Fragile X Syndrome and raise awareness on #WorldFragileXDay! #FragileXAwareness #TajMahalTower

FragileXIndia's tweet image. Thank you @TajMahalMumbai for always supporting and raising awareness for #FragileXSyndrome. Yesterday, Taj Mahal Tower illuminated in a stunning shade of teal to shine a light on Fragile X Syndrome and raise awareness on #WorldFragileXDay! 

 #FragileXAwareness  #TajMahalTower

Fragile X syndrome is the most common form of inherited intellectual and developmental disability. Symptoms can range from barely noticeable to severe. Learn more about #FragileX symptoms, diagnosis and treatment options: ow.ly/c1fm50PiANM #FragileXAwareness

medlineplus's tweet image. Fragile X syndrome is the most common form of inherited intellectual and developmental disability. 
Symptoms can range from barely noticeable to severe. Learn more about #FragileX symptoms, diagnosis and treatment options:  ow.ly/c1fm50PiANM #FragileXAwareness

Atal Setu Bridge in Goa Stands for Fragile X Syndrome. As the bridge lights up in teal, it symbolizes the commitment to spread awareness, foster a supportive environment, and promote inclusion. #fragilexsyndrome #fragilexawareness #worldfragilexday

FragileXIndia's tweet image. Atal Setu Bridge in Goa Stands for Fragile X Syndrome. As the bridge lights up in teal, it symbolizes the commitment to spread awareness, foster a supportive environment, and promote inclusion.

#fragilexsyndrome #fragilexawareness #worldfragilexday

July is National Fragile X Awareness Month, a time to raise awareness about Fragile X syndrome - a genetic condition that leads to a range of developmental challenges: bit.ly/4eOzUe7 #pediatrics #FragileXAwareness #Genetics #meded #healthcare #eMedEvents

eMedEvents's tweet image. July is National Fragile X Awareness Month, a time to raise awareness about Fragile X syndrome - a genetic condition that leads to a range of developmental challenges:   bit.ly/4eOzUe7

#pediatrics #FragileXAwareness #Genetics #meded #healthcare #eMedEvents

GGC's clinical trials coordinator, Caleb Hinzman, spoke at last Friday's Fragile X Awareness Day event at the SC statehouse. Learn more and catch his remarks in this WIS news story! #FragileX #FragileXAwareness wistv.com/video/2023/07/…

GreenwoodGenCtr's tweet image. GGC's clinical trials coordinator, Caleb Hinzman, spoke at last Friday's Fragile X Awareness Day event at the SC statehouse. Learn more and catch his remarks in this WIS news story! #FragileX #FragileXAwareness

wistv.com/video/2023/07/…

Loading...

Something went wrong.


Something went wrong.


United States Trends