#pkustrong search results
🙌🏼🙌🏼🙌🏼 About time. #pkustrong💙 #sapropterin #pkulifestyle #pkudiet #pkuproud #pkulife #abouttime #phenylketonuria #NSPKU
May is PKU awareness month. All three of my kids have this rare metabolic condition where they lack an enzyme to break down 1 amino acid in their bodies. They require a highly restricted diet and medical formula to thrive #PKUstrong
As we depart Atlanta, a final reminder of why we are all here at the #NPKUAllianceConference #pkustrong
Got this pack at clinic last week. Followed the book for one week and lost 1kg already! Bloods tomorrow but feeling a lot better. Thanks @VitafriendsPKU #healthypkuliving #pkulife #pkustrong #pku
Shout out to all the #pkumamas out there! Here's three of us using up our last exchanges with a cheeky Baileys at #NSPKU2018. We can be so proud of the hard work we put in to start our families. #pkustrong #pkulife #nspkuconference
#PKU families meeting 29.9.2019 Como, Italy. Thanks to Mevalia/Flavis #PKUstrong #Phenylketonuria #Fenilchetonuria #PHEnomenale
PKU is an inherited metabolic disease. Please visit npkua.org/donate and share our post to help us make PKU more known. Understanding, empathy, and generosity can help us get to a cure. #PKU #PKUStrong #CurePKU #NPKUA #PKUAwarenessDay #PKUAwareness
Been hit with prescription woes over the B/H weekend and away! Pharmacy still not recieved the Cooler delivery, and run out now. Managing with some samples and previous stock of Sphere! #pkuadult #pkustrong
In 3 words, how would you describe your PKU story? For example, “tough, empowered, strong” or “disciplined, listening, care.” Reply with your 3-word PKU story #PKUstrong
The NPKUA Board of Directors and Staff would like to wish everyone a very happy new year! Looking forward to 2023! #NPKUA #pku #PKUstrong #phenylketonuria
Visit NPKUA.org to learn what it’s like to live with PKU and donate. #PKUStrong #PKUStrong💙 #NPKUA #CurePKU #PKUAwarenessMonth #PKU #Phenylketonuria #MedicalNutritionEquityAct #RareDisease #RareDiseaseAwareness #MemorialDay #MemorialDayWeekend #heroes
My husband, is my greatest support in my life and I cannot wait for what is in store for us on this next chapter of our lives together. On December 3rd it is PKU Awareness day, we are stronger and we are brave! So keep up the fight...💙💪🏻 #PKUStrong #Toast2PKU
We love to hear your feedback on our products! ⭐💖 Have you tried EASY Microtabs yet? What was your experience like? Let us know how these tiny tablets can make a big difference! galenmedicalnutrition.com/products/pku-e… #phenylketonuria #lowprotein #pkustrong #pkufamily #pkuawareness…
Happy International PKU Day! 🎉 Today we celebrate the PKU community and raise awareness about this rare metabolic disorder. Together, we can support those living with PKU and we can make a difference! 💙 Spread the love! #PKUStrong #InternationalPKUDay #RareDiseaseAwareness
Shout out on National Rare Disease Day to this beautiful young lady, Haylee Wagenor, on the rarest day of the year. You’re one of a kind and PKU has nothing on you 🩷🩷🩷 #NationalRareDiseaseDay2024 #pkustrong #PKU
The NPKUA Board of Directors and Staff would like to wish everyone a very happy new year! Looking forward to 2024! #NPKUA #pku #PKUstrong #phenylketonuria
If you’ve ever met someone who has PKU, you know what strong is. They were born with an inherited metabolic disease, and they’re determined to get to a cure. Please donate at npkua.org/donate and share our post. #PKUAwarenessDay #PKUAwareness #PKUStrong #CurePKU #NPKUA
Because PKU is an inherited metabolic disease, we’ve been strong since Day 1. Please join us on our quest for a cure today on PKU Awareness Day at npkua.org/donate and share our post. #PKU #PKUStrong #CurePKU #NPKUA #PKUAwarenessDay #PKUAwareness
PKU Awareness Day is tomorrow and while PKU is inherited and you can’t catch it, you can help awareness catch attention. Visit npkua.org/donate and share our post. #PKU #PKUStrong #CurePKU #NPKUA #PKUAwarenessDay #PKUAwareness
PKU is an inherited metabolic disease. Please visit npkua.org/donate and share our post to help us make PKU more known. Understanding, empathy, and generosity can help us get to a cure. #PKU #PKUStrong #CurePKU #NPKUA #PKUAwarenessDay #PKUAwareness
Donate for Ella and 17,000 others who have PKU. And please share our post. Let’s make GivingTuesday an amazing Tuesday. npkua.org/donate #PKU #PKUStrong #NPKUA #CurePKU #GivingTuesday #GivingTuesday2023
Your generosity can help us get closer to life-changing advancements and a cure. Please donate and share our post. npkua.org/donate #PKU #PKUStrong #NPKUA #CurePKU #GivingTuesday #GivingTuesday2023
We’re on the road to a cure. Help us go full speed by donating and sharing our post today. npkua.org/donate #PKU #PKUStrong #NPKUA #CurePKU #GivingTuesday #GivingTuesday2023
On this day of giving thanks, and all days in between, the NPKUA Board of Directors and Staff are extremely grateful for our volunteers, donors and our community. From all of us at NPKUA to all of you, Happy Thanksgiving! #NPKUA #pku #PKUstrong #phenylketonuria
Your support means so much to all of us. Please share our post, and on GivingTuesday, we’d be grateful if you’d donate. npkua.org #PKU #PKUStrong #NPKUA #CurePKU #GivingTuesday #GivingTuesday2023
GivingTuesday is a few days away, and a cure for PKU isn’t far away either. Every donation gets us closer. On GivingTuesday, please support us––donate and share our post. npkua.org/donate #PKU #PKUStrong #NPKUA #CurePKU #GivingTuesday #GivingTuesday2023
Every donation puts us that much closer to a cure. On GivingTuesday, please give what you can and share our post. We appreciate whatever you can do. npkua.org #PKU #PKUStrong #NPKUA #CurePKU #GivingTuesday #GivingTuesday2023
"There are no words to express my appreciation for my family and friends who have stood by me." In this article from @TheMightySite, Angelica shares her journey receiving #PKU treatment and the effects it had on the relationships in her life. #PKUStrong bit.ly/3MI7oxn
themighty.com
When You Have a Rare Disease, You Find Out Who Your Friends Are
A woman with phenylketonuria (PKU), a rare disease that causes phenylalanine to build up in the body, writes about finding life-long friendship and support when she needed it the most.
👣Why pheet? Phe is the abbreviation for phenylalanine, the amino acid that people with PKU cannot process and is toxic with build up. #PKUAwarenessMonth #pku #pkustrong #raredisease #pkuadult #moveyourpheet
Help us create a new and improved NPKUA website! Share your thoughts by completing our quick questionnaire here: surveymonkey.com/r/TYMD666. Thank you! #pku #NPKUA #pkustrong #phenylketonuria
🙌🏼🙌🏼🙌🏼 About time. #pkustrong💙 #sapropterin #pkulifestyle #pkudiet #pkuproud #pkulife #abouttime #phenylketonuria #NSPKU
#rarejewel #pkustrong #rarequeen #specialneeds #selfacceptance #advocate #RoyaltyenRoute #OutoftheBlue #mpa2019 #intentional #inclusion #MPAKansas #PKU #MedicalNutritionEquityNOW #NewbornScreeningSavesLives
PKU is an inherited metabolic disease. Please visit npkua.org/donate and share our post to help us make PKU more known. Understanding, empathy, and generosity can help us get to a cure. #PKU #PKUStrong #CurePKU #NPKUA #PKUAwarenessDay #PKUAwareness
Visit NPKUA.org to learn what it’s like to live with PKU and donate. #PKUStrong #PKUStrong💙 #NPKUA #CurePKU #PKUAwarenessMonth #PKU #Phenylketonuria #MedicalNutritionEquityAct #RareDisease #RareDiseaseAwareness #MemorialDay #MemorialDayWeekend #heroes
Help us get to a cure by donating at NPKUA.org #PKUStrong #PKUStrong💙 #NPKUA #CurePKU #PKUAwarenessMonth #PKU #RareDisease #RareDiseaseAwareness #MedicalNutritionEquityAct
As we depart Atlanta, a final reminder of why we are all here at the #NPKUAllianceConference #pkustrong
May is PKU awareness month. All three of my kids have this rare metabolic condition where they lack an enzyme to break down 1 amino acid in their bodies. They require a highly restricted diet and medical formula to thrive #PKUstrong
The NPKUA Board of Directors and Staff would like to wish everyone a very happy new year! Looking forward to 2023! #NPKUA #pku #PKUstrong #phenylketonuria
With the Christmas season upon us 🧑🎄 read @ClairBear42's candid thoughts about the challenges of meeting new people and her top tips to approaching those difficult conversations 👉🏻 hubs.li/Q0112FqT0 #PKU #LivingwithPKU #PKUStrong #GalenMedicalNutrition
The 2022 NPKUA Conference kicks off tomorrow and has been made possible by these generous sponsors! THANK YOU! #NPKUA #Phenylketonuria #PKUStrong #RareDisease #ChallengingPKU2022
Meet 2 new members of the NPKUA Staff. We are excited to have them on board and are looking forward to the new year! #NPKUA #PKU #PKUstrong #phenylketonuria
Help us create a new and improved NPKUA website! Share your thoughts by completing our quick questionnaire here: surveymonkey.com/r/TYMD666. Thank you! #pku #NPKUA #pkustrong #phenylketonuria
I hate finger prick day. This one was tough. I wish it would get easier for her. #pkustrong #notsomuchfingerprickstrong
PKU Awareness Day is tomorrow and while PKU is inherited and you can’t catch it, you can help awareness catch attention. Visit npkua.org/donate and share our post. #PKU #PKUStrong #CurePKU #NPKUA #PKUAwarenessDay #PKUAwareness
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