#pwn4pwn risultati di ricerca
๐ At PWN4PWN, we're building a future where people with sleep disorders are seen, supported & celebrated. From safer skies with our TSA Patient Toolkit, to new careers through the JOBS Project, our mission is alive in action, and the best is yet to come. #PWN4PWN #Narcolepsy
๐ Big congrats to Grace Schimmel for completing one of our JOBS Project courses, thanks to our friends at @udemy. Consistency beats intensity. Onward. #Narcolepsy #IH #PWN4PWN #KeepGoing
After taking time to get situated in this new season, we're thrilled to share that our Creative Director @AlanBarryBush and CEO @fireflyjane welcomed their daughter Eliana on Oct 6 (7 lbs โข 19ยฝ in). Her name in Hebrew means "God's answered prayer." ๐ #PWN4PWN #Grace #NewLife
31 weeks pregnant. 100g glucose test. Narcolepsy + baby = no joke ๐ #NarcolepsyAwareness #PregnancyJourney #PWN4PWN
Happy Halloween from #PWN4PWN! ๐ Some battles happen in the dark, but for people with narcolepsy, they happen every day. This Halloween, we celebrate every dreamer still fighting to stay awake... literally and spiritually. ๐ Live #BeyondTheSleep โ youtu.be/S4RnmKEzFIQ
Huge thanks to our friends at @trendcommunity for this thoughtful bouquet welcoming baby Eliana ๐ Your support reminds us: every small act of kindness helps the world wake up. ๐ #PWN4PWN #NarcolepsyAwareness #TrendCommunity
๐ฅ The Beyond the Sleep After-Party just dropped! ๐ Dan shared the heart behind the song. @fireflyjane & @AlanBarryBush brought laughs. ๐ Thanks to all our volunteers + everyone who tuned in! ๐ Replay here: youtu.be/xTppM4QTpq8 #BeyondTheSleep #WorldNarcolepsyDay #pwn4pwn
Behind every anthem... there's a movement. ๐ You've seen the trailer. Now see how we made it happen. Spoiler alert: We had a lot of fun filming this ๐ธ๐ฅ #BeyondTheSleep #Fight4Rest #PWN4PWN #Narcolepsy #Hypersomnia #BehindTheScenes #SneakPeek
๐ TONIGHT ๐ ๐ถ Beyond the Sleep premieres for World Narcolepsy Day. ๐ Sept 22 | 7pm ET | YouTube Foo Fighters energy. Purpose-driven heart. ๐ ๐ Set a reminder now: linktr.ee/pwn4pwn #BeyondTheSleep #WorldNarcolepsyDay #pwn4pwn
๐ Next #NapChat: Sept 3 @ 8:30PM EDT! Join us as Dan Liss shares his personal story about navigating the ups & downs of #Narcolepsy. Check out Dan's last NapChat feature here: bit.ly/47JO3be A safe space to connect, listen & support ๐ Donโt miss it โ #PWN4PWN
๐ฌ Lights! Camera! Visibility! The real faces of Beyond the Sleep. Theyโve lived the fatigue, the misdiagnoses, the silence. Now theyโre front & center with something to say. ๐ฅ Premiering Sept 22 ๐ Watch the trailer: youtu.be/q4tRqdI1K4o #Fight4Rest #BeyondTheSleep #PWN4PWN
Falling asleep at the wheel is terrifying. For those with #Narcolepsy or #IH, nighttime driving anxiety is real โ itโs not carelessness, itโs neurological. ๐ Awareness & support matter so no one has to choose between safety & independence. bit.ly/4oVv43Q #PWN4PWN
Clinicians: PWN4PWNโs Doctors Resource Page is now live. Share peerโsupported tools like NapChat, Med Info Cards, & more with your narcolepsy & IH patients. Collaborate, learn, and help reduce diagnostic delays. #PWN4PWN #NarcolepsyCare #IHawareness bit.ly/41gOnu7
You may be dating someone with #Narcolepsy ifโฆ. #pwn4pwn @ Temple Terrace, Florida instagram.com/p/CoAVUo5O6q3/โฆ
Alejandro had sleep paralysis at 5. He wasnโt diagnosed until 38. โณ Heโs had seasons of thriving & seasons of struggle. Even with a diagnosis, there are still good & bad days โ but now he has answers & support. bit.ly/4mykSN1๐ #NarcolepsyAwareness #IHawareness #PWN4PWN
youtube.com
YouTube
Narcolepsy Diagnosis at 38: My Struggle with Sleep Paralysis!
Kids with narcolepsy or IH arenโt โlazy.โ Their symptoms are real. ๐ Believe them. Advocate fiercely until they get the care they need. Early recognition changes lives. #PWN4PWN #NarcolepsyAwareness #IHAwareness bit.ly/41PgsZB
youtube.com
YouTube
Youth Need To Be Believed! Sleep Care on pwn4pwn.org
Interesting to see where this goes and if it will lead to equality for all. #narcolepsynews #pwn4pwn
Happy Halloween from #PWN4PWN! ๐ Some battles happen in the dark, but for people with narcolepsy, they happen every day. This Halloween, we celebrate every dreamer still fighting to stay awake... literally and spiritually. ๐ Live #BeyondTheSleep โ youtu.be/S4RnmKEzFIQ
๐ Big congrats to Grace Schimmel for completing one of our JOBS Project courses, thanks to our friends at @udemy. Consistency beats intensity. Onward. #Narcolepsy #IH #PWN4PWN #KeepGoing
Huge thanks to our friends at @trendcommunity for this thoughtful bouquet welcoming baby Eliana ๐ Your support reminds us: every small act of kindness helps the world wake up. ๐ #PWN4PWN #NarcolepsyAwareness #TrendCommunity
After taking time to get situated in this new season, we're thrilled to share that our Creative Director @AlanBarryBush and CEO @fireflyjane welcomed their daughter Eliana on Oct 6 (7 lbs โข 19ยฝ in). Her name in Hebrew means "God's answered prayer." ๐ #PWN4PWN #Grace #NewLife
๐ At PWN4PWN, we're building a future where people with sleep disorders are seen, supported & celebrated. From safer skies with our TSA Patient Toolkit, to new careers through the JOBS Project, our mission is alive in action, and the best is yet to come. #PWN4PWN #Narcolepsy
๐ฅ The Beyond the Sleep After-Party just dropped! ๐ Dan shared the heart behind the song. @fireflyjane & @AlanBarryBush brought laughs. ๐ Thanks to all our volunteers + everyone who tuned in! ๐ Replay here: youtu.be/xTppM4QTpq8 #BeyondTheSleep #WorldNarcolepsyDay #pwn4pwn
๐ TONIGHT ๐ ๐ถ Beyond the Sleep premieres for World Narcolepsy Day. ๐ Sept 22 | 7pm ET | YouTube Foo Fighters energy. Purpose-driven heart. ๐ ๐ Set a reminder now: linktr.ee/pwn4pwn #BeyondTheSleep #WorldNarcolepsyDay #pwn4pwn
31 weeks pregnant. 100g glucose test. Narcolepsy + baby = no joke ๐ #NarcolepsyAwareness #PregnancyJourney #PWN4PWN
Falling asleep at the wheel is terrifying. For those with #Narcolepsy or #IH, nighttime driving anxiety is real โ itโs not carelessness, itโs neurological. ๐ Awareness & support matter so no one has to choose between safety & independence. bit.ly/4oVv43Q #PWN4PWN
๐ฌ Lights! Camera! Visibility! The real faces of Beyond the Sleep. Theyโve lived the fatigue, the misdiagnoses, the silence. Now theyโre front & center with something to say. ๐ฅ Premiering Sept 22 ๐ Watch the trailer: youtu.be/q4tRqdI1K4o #Fight4Rest #BeyondTheSleep #PWN4PWN
๐ Next #NapChat: Tonight @ 8:30PM EDT! Join us as Dan Liss shares his personal story about navigating the ups & downs of #Narcolepsy. A safe space to connect, listen & support ๐ Check out Dan's last NapChat feature here: bit.ly/47JO3be Donโt miss it โ #PWN4PWN
Behind every anthem... there's a movement. ๐ You've seen the trailer. Now see how we made it happen. Spoiler alert: We had a lot of fun filming this ๐ธ๐ฅ #BeyondTheSleep #Fight4Rest #PWN4PWN #Narcolepsy #Hypersomnia #BehindTheScenes #SneakPeek
Alejandro had sleep paralysis at 5. He wasnโt diagnosed until 38. โณ Heโs had seasons of thriving & seasons of struggle. Even with a diagnosis, there are still good & bad days โ but now he has answers & support. bit.ly/4mykSN1๐ #NarcolepsyAwareness #IHawareness #PWN4PWN
youtube.com
YouTube
Narcolepsy Diagnosis at 38: My Struggle with Sleep Paralysis!
Clinicians: PWN4PWNโs Doctors Resource Page is now live. Share peerโsupported tools like NapChat, Med Info Cards, & more with your narcolepsy & IH patients. Collaborate, learn, and help reduce diagnostic delays. #PWN4PWN #NarcolepsyCare #IHawareness bit.ly/41gOnu7
๐ Next #NapChat: Sept 3 @ 8:30PM EDT! Join us as Dan Liss shares his personal story about navigating the ups & downs of #Narcolepsy. Check out Dan's last NapChat feature here: bit.ly/47JO3be A safe space to connect, listen & support ๐ Donโt miss it โ #PWN4PWN
Kids with narcolepsy or IH arenโt โlazy.โ Their symptoms are real. ๐ Believe them. Advocate fiercely until they get the care they need. Early recognition changes lives. #PWN4PWN #NarcolepsyAwareness #IHAwareness bit.ly/41PgsZB
youtube.com
YouTube
Youth Need To Be Believed! Sleep Care on pwn4pwn.org
Narcolepsy โ laziness. Itโs a neurological condition w/ cataplexy, sleep paralysis & more. Letโs stop the misconceptions. #WorldNarcolepsyDay is Sept 22. #PWN4PWN #ProjectSleep #NeurodivergentVoices
1 in 2,000 people have narcolepsy, but most go undiagnosed for years. World Narcolepsy Day is Sept 22 โ help us raise awareness and end the stigma. #WorldNarcolepsyDay #PWN4PWN #SleepDisorders
Tonight, 8:30 PM EDT: Join Sam Velu & the JOBS Project to uncover your top 5 work values and how to use them to make career moves that truly fit. Register Here: bit.ly/3Hgpsjz #CareerGrowth #WorkValues #PWN4PWN
In 2021โ2022, Teresa traveled the world solo during her sabbatical โ and in the process, overcame burnout. ๐โจ Her story reminds us that sometimes, the best way to heal is to step away and explore. bit.ly/3Jb87Jw ๐ #PWN4PWN #BurnoutRecovery #SoloTravel
youtube.com
YouTube
Solo Travel Adventure: Exploring Jemaa el-Fnaa Square During Sabbat...
After taking time to get situated in this new season, we're thrilled to share that our Creative Director @AlanBarryBush and CEO @fireflyjane welcomed their daughter Eliana on Oct 6 (7 lbs โข 19ยฝ in). Her name in Hebrew means "God's answered prayer." ๐ #PWN4PWN #Grace #NewLife
๐ At PWN4PWN, we're building a future where people with sleep disorders are seen, supported & celebrated. From safer skies with our TSA Patient Toolkit, to new careers through the JOBS Project, our mission is alive in action, and the best is yet to come. #PWN4PWN #Narcolepsy
๐ Big congrats to Grace Schimmel for completing one of our JOBS Project courses, thanks to our friends at @udemy. Consistency beats intensity. Onward. #Narcolepsy #IH #PWN4PWN #KeepGoing
๐ฅ The Beyond the Sleep After-Party just dropped! ๐ Dan shared the heart behind the song. @fireflyjane & @AlanBarryBush brought laughs. ๐ Thanks to all our volunteers + everyone who tuned in! ๐ Replay here: youtu.be/xTppM4QTpq8 #BeyondTheSleep #WorldNarcolepsyDay #pwn4pwn
Huge thanks to our friends at @trendcommunity for this thoughtful bouquet welcoming baby Eliana ๐ Your support reminds us: every small act of kindness helps the world wake up. ๐ #PWN4PWN #NarcolepsyAwareness #TrendCommunity
Narcolepsy โ laziness. Itโs a neurological condition w/ cataplexy, sleep paralysis & more. Letโs stop the misconceptions. #WorldNarcolepsyDay is Sept 22. #PWN4PWN #ProjectSleep #NeurodivergentVoices
1 in 2,000 people have narcolepsy, but most go undiagnosed for years. World Narcolepsy Day is Sept 22 โ help us raise awareness and end the stigma. #WorldNarcolepsyDay #PWN4PWN #SleepDisorders
Whatโs one tool, tip, or accommodation thatโs helped most with your narcolepsy/IH? Big or small โ drop it below ๐ง ๐ค Letโs build a community toolkit. #NarcolepsyAwareness #IHsupport #PWN4PWN #DisabilityTools #NeurodivergentLife
You might not see it, but that doesnโt mean itโs not there. People with #Narcolepsy & #IH get really good at faking โfine.โ Holding it together. Smiling through exhaustion. Powering through fog. Drop a ๐ฅ if you've been there. #PWN4PWN #InvisibleStruggles #NeurodiverseVoices
Living with Narcolepsy or IH means starting every day with less in the tankโyet still being expected to run the same race. Whatโs something you wish people understood about your โenergy budgetโ? Letโs talk about it. #PWN4PWN #SpoonieLife #NarcolepsyAwareness #IHTruth
Happy Halloween from #PWN4PWN! ๐ Some battles happen in the dark, but for people with narcolepsy, they happen every day. This Halloween, we celebrate every dreamer still fighting to stay awake... literally and spiritually. ๐ Live #BeyondTheSleep โ youtu.be/S4RnmKEzFIQ
๐ Next #NapChat: Sept 3 @ 8:30PM EDT! Join us as Dan Liss shares his personal story about navigating the ups & downs of #Narcolepsy. Check out Dan's last NapChat feature here: bit.ly/47JO3be A safe space to connect, listen & support ๐ Donโt miss it โ #PWN4PWN
๐ฌ Lights! Camera! Visibility! The real faces of Beyond the Sleep. Theyโve lived the fatigue, the misdiagnoses, the silence. Now theyโre front & center with something to say. ๐ฅ Premiering Sept 22 ๐ Watch the trailer: youtu.be/q4tRqdI1K4o #Fight4Rest #BeyondTheSleep #PWN4PWN
๐ฅ Teresa Durhamโs NapChat was ๐ฅ ๐ช โFind your courageโeven when itโs hard.โ ๐ Watch the highlights โ bit.ly/4lqjGKd #NapChatLive #PWN4PWN #DisabilityAwareness #ChronicIllnessSupport
Clinicians: PWN4PWNโs Doctors Resource Page is now live. Share peerโsupported tools like NapChat, Med Info Cards, & more with your narcolepsy & IH patients. Collaborate, learn, and help reduce diagnostic delays. #PWN4PWN #NarcolepsyCare #IHawareness bit.ly/41gOnu7
๐ TONIGHT ๐ ๐ถ Beyond the Sleep premieres for World Narcolepsy Day. ๐ Sept 22 | 7pm ET | YouTube Foo Fighters energy. Purpose-driven heart. ๐ ๐ Set a reminder now: linktr.ee/pwn4pwn #BeyondTheSleep #WorldNarcolepsyDay #pwn4pwn
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