Capricorn Elephant
@Capriphant
Surviving with Ehlers-Danlos Syndrome & its never-ending list of comorbidities | Enthusiastic E-Patient & nature loving elephant 🐘 fanatic
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Orthostatic hypotension and syncope in patients with ehlers-danlos syndrome sciencedirect.com/science/articl…
“Like many who go through the long, arduous journey of finding and diagnosing their #chronic health problems, as my illnesses began to stack up I fell into a sort of grieving process—grieving for the life that I once believed I could have.” buff.ly/2IDxX89 #chroniclife
13 of the 14 types of #EDS (as of 2018) have single tissue markers now. #hEDS requires clinical dx still buff.ly/1TVTCYK #meded #FOAMed
Whoop whoop!! Way to go @OregonZoo! $10K in grants for Asian elephant conservation shar.es/1u3dR7 via @sharethis
Beautifully put...
My invisible illness story- disabled parking, saving our spoons and invisibility #thinkB4Ujudge #Defypain mystripylife.blogspot.co.uk/2015/09/be-kin…
We should do this! -Photos give powerful visibility to chronic illness to.pbs.org/1hVGiTM via @NewsHour #EDS #spoonies #zebra
pbs.org
Photos give powerful visibility to chronic illness
“Suffering the Silence” is aimed at enabling those with chronic illness to discuss their illness publicly and on their own terms.
I'm tuning in, are you? Friday Twitter chat: How do 'invisible' illnesses affect people? to.pbs.org/1PMFkn7 via @NewsHour
Very interesting!
#EDS on a cellular level and why it’s important to “Moving your DNA.” ow.ly/Rk19J #MoveYourDNA #health
Yes @FibroFacts and arms also. Very disturbing. I've tried variety of things, all hit or miss.
Has anyone living with #EDS or other illness gone to or utilized grief counseling to help cope with their personal losses? I'd love to hear!
Farewell July, thank you for the lovely blue moon tonight!
Ok, I got my elle fix for the day! Look at this tiny baby elephant play with a flock of birds ti.me/1MtZpzy via @TIME
From the American Journal of Medical Case Reports - Article on EDS type IV: pubs.sciepub.com/ajmcr/3/7/2/ #EDS #zebra
Article on facilitating the treatment of #fibromyalgia & other chronic diseases with electrical stimulation: http:dx.doi.org/10.4172/2327-5…
We are all connected: Interesting article on conective tissue motherearthliving.com/health-and-wel… #zebra #spoonie #EDS
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