#spoonie search results
Still version of the drawing above~ #sketchbookart #spoonie I also have a kofi if u would like to support me: ko-fi.com/fairybunni
"When I Don't Feel 'Disabled Enough' as Someone With a Chronic Illness" themighty.com/topic/fibromya… "How many of you who have fibromyalgia or similar chronic illness sometimes feel like you’re judged for not being 'disabled enough?'” #invisibleillness #Spoonie
“My “good hours” are spent working and my “bad hours” (rest of the day) are spent recovering… It’s a massive battle inside me all the time—like I need to prove to others that I’m not “lazy” by not actually taking the rest I need.” buff.ly/FaYiPuH #chronicillness #spoonie
A Great List Of Ideas For Simple Comforts On Those Difficult Pain Days - from @DespitePainBlog despitepain.com/2026/04/23/sim… #chronicpain #chronicillness #spoonie #invisibleillness #disability #pain #tips #lifestyle #mentalhealth #blog
Read this interview with #Spoonie author C. Helen and The Other Side of the Butterfly. Learn about the author's journey with #ChronicPain, why she wrote this novel, & where you can support her. 🔗 myseveralworlds.com/2025/10/22/aut… #SpoonieAuthor #AuthorInterview #MySeveralWorlds
I made this for the days I can't think clearly. A 45-page journal that starts where you are: exhausted, in pain, unable to plan. No pressure. Start anywhere. One page is enough. #spoonie #chronicillnessjournal
“We are so used to pushing through and fighting, but sometimes rest is exactly what we need. We don’t have superpowers and our bodies need rest to be able to keep going. Listen to your body.” 15 Tips for Coping With #ChronicPain buff.ly/430WAAq #Disabilities #Spoonie
“She didn’t always need a cane but would be heckled for parking in a #disability spot if she tried to brave it out without one… #ChronicPain put her in a bind: Underperform and you aren’t taken seriously; overperform and you become suspect.” buff.ly/43gMqMc #spoonie
Chronic pain is usually defined as pain lasting more than 3 months, but it’s really about pain continuing beyond expected healing. #chronicpain #painmanagement #spoonie #backpain #neckpain
Craving some gentle time together in community? Us, too! Join us on Feb. 1st at 12 pm PT/ 2 pm central/ 3 pm ET/ 8 pm GMT for our Keep the Light virtual community event. meaction.net/event-details/… #pwME #MECFS #spoonie
Before every doctor's appointment, I do this: Ask AI: "Help me turn these scattered notes into clear questions to ask my doctor." I paste my notes. It organizes them. I walk in prepared even on bad days. #chronicillness #spoonie #medicalappointment
24 years in. I still have days where getting dressed is the whole achievement. Not a failure. Not a setback. Just a chronic illness day. That's what those days are. #spoonie #chronicillness #invisibleillness
“It’s a daily battle…and am not someone they can depend on anymore… My health is so very unreliable…to the point of being unable to even care for myself… I feel like I’ve let everyone down…It’s out of my control but it’s not out of my heart.” buff.ly/42akp8G #spoonie
✨The reality of chronic illness isn’t always visible.✨ This week’s vlog is a more honest look at low spoons, and finding small moments of magic If you’re living this too, you’re not alone 💜 youtu.be/yTZ_rwsAq5M?si… #chronicillness #spoonie #disabledcreator #gentleliving
“When people ask if I’m OK I always say yeah I’m fine when I’m far from fine. If I told the truth I don’t think people would understand and I hate feeling like I’m depressing people.” When Pain Is Your Normal buff.ly/3XiXAyQ #chronicpain #chronicillness #spoonie
Must see film if you struggle with #chronicpain - "Pain Matters" Great to share with friends & family tinyurl.com/2f7k477r #painmatters #spoonie #opioids #RSD #fibromyalgia #endometriosis #migraines #pain #crps #lupus #womeninpain #hope
Gabapentin brain fog is not confusion, it is slowing. It feels like your thoughts take longer, words are harder to find, and focus takes more effort. #chronicpain #painmanagement #spoonie #brainfog #gabapentin
“When someone with #chronicillness says that they are tired, it means something very different than when someone without chronic illness says the same thing. There is no guarantee that our energy will be replenished after sleeping.” buff.ly/bYTXwuD #chronicpain #spoonie
Medication routines help keep symptoms in check. What tips do you have for staying consistent? #Spoonie
Your pain spikes beyond your normal, so you go to the ER. Hours later, tests are normal. That doesn’t mean your pain isn’t real, it means the system isn’t built for chronic pain. #chronicpain #painmanagement #spoonie #backpain #neckpain
Read this interview with #Spoonie author C. Helen and The Other Side of the Butterfly. Learn about the author's journey with #ChronicPain, why she wrote this novel, & where you can support her. 🔗 myseveralworlds.com/2025/10/22/aut… #SpoonieAuthor #AuthorInterview #MySeveralWorlds
Leave a 🔌 in the comments if you’re not ignoring people, just powering down. #Spoonie
“It’s a daily battle…and am not someone they can depend on anymore… My health is so very unreliable…to the point of being unable to even care for myself… I feel like I’ve let everyone down…It’s out of my control but it’s not out of my heart.” buff.ly/42akp8G #spoonie
I made this for the days I can't think clearly. A 45-page journal that starts where you are: exhausted, in pain, unable to plan. No pressure. Start anywhere. One page is enough. #spoonie #chronicillnessjournal
Chronic pain is usually defined as pain lasting more than 3 months, but it’s really about pain continuing beyond expected healing. #chronicpain #painmanagement #spoonie #backpain #neckpain
A Great List Of Ideas For Simple Comforts On Those Difficult Pain Days - from @DespitePainBlog despitepain.com/2026/04/23/sim… #chronicpain #chronicillness #spoonie #invisibleillness #disability #pain #tips #lifestyle #mentalhealth #blog
Before every doctor's appointment, I do this: Ask AI: "Help me turn these scattered notes into clear questions to ask my doctor." I paste my notes. It organizes them. I walk in prepared even on bad days. #chronicillness #spoonie #medicalappointment
Gabapentin brain fog is not confusion, it is slowing. It feels like your thoughts take longer, words are harder to find, and focus takes more effort. #chronicpain #painmanagement #spoonie #brainfog #gabapentin
Still version of the drawing above~ #sketchbookart #spoonie I also have a kofi if u would like to support me: ko-fi.com/fairybunni
Medication routines help keep symptoms in check. What tips do you have for staying consistent? #Spoonie
Day of rest for me today. No writing, no research, no crafts, just rest #spoonie #writer #crafter #disability
Ive been disabled4years.Goin thro a lot of nausea, pain,dizziness,vomitin,fatigue etc.Ive tried many meds.Even 1s w/ needles,Im scared of needles but Im desperate2b better.This is a way my disabilities r visible. #art #spoonie If u would like2support me⬇️ throne.com/fairybunniii
Funny Chronic Pain Awareness Shirt, Ow Ow Ow Stick Figure Tee, by KIMOVIBE etsy.me/42qglDH via @Etsy Minimalist stick figure. Maximum relatability. #ChronicPain #InvisibleIllness #Spoonie #ChronicIllness #FunnyShirt #Relatable #ChronicPainAwareness
"living with #ChronicIllness..[is] a rollercoaster built by some1 who was clearly drunk on Red Bull & bad intentions. U buckle in. U scream..Sometimes u even laugh because what else can u do?": buff.ly/ak8Wy9H #ChronicPain #spoonie #disabled #ChronicLife #EDS #diagnosis
A pain flare is not random. It builds, peaks, and lingers. It is not just intensity, it is how much it disrupts your ability to function and how long it takes to recover. #chronicpain #painmanagement #spoonie #backpain #neckpain
Throughout her life, extensive evidence shows that my severely abusive mother posed as a community organizer throughout her life. Extensive evidence shows that my mother’s motives for her fake community organizing were prototypical Machiavellian, to cover up her transphobic,
Regular hydration supports overall health. How do you remember to drink water? #Spoonie
24 years in. I still have days where getting dressed is the whole achievement. Not a failure. Not a setback. Just a chronic illness day. That's what those days are. #spoonie #chronicillness #invisibleillness
Craving some gentle time together in community? Us, too! Join us on Feb. 1st at 12 pm PT/ 2 pm central/ 3 pm ET/ 8 pm GMT for our Keep the Light virtual community event. meaction.net/event-details/… #pwME #MECFS #spoonie
I was really excited about a replacement SI brace I got and I thought it was comfy enough to wear next to my skin... The blistering welts tell me I was mistaken 😬 #spoonie #hEDS
“Have you tried [insert random treatment] to feel better?” You’re basically saying, “I don’t think you’re trying hard enough to feel better. If you really were, you’d try this treatment that I, a layperson with zero medical education, suggested.” buff.ly/nsxk6nq #spoonie
![APainPrincess's tweet image. “Have you tried [insert random treatment] to feel better?” You’re basically saying, “I don’t think you’re trying hard enough to feel better. If you really were, you’d try this treatment that I, a layperson with zero medical education, suggested.” buff.ly/nsxk6nq #spoonie](https://pbs.twimg.com/media/HEhImRkW4AEPfHm.jpg)
“Becoming suddenly #disabled means I’m currently bedbound and unable to walk…my room feels like a benevolent prison. My skin presses against my bedsheets all day… Everything seems so near yet so far…every minute…excruciatingly slow.” buff.ly/3BlF6Vp @AChVoice #spoonie
Every 1 to 2 weeks for about 9 years now, I've been willingly jabbing myself in the leg with what feels like a bee sting just to be able to function on some level. Shout-out to all others out there battling invisible illnesses ✊️ #spoonie #chronicillnesswarrior
Anamnesebogen der #Physio Praxis. 2 Mini Zeilen für Medikamente... 😂 Da lacht doch jeder mit #chronischerKrankheit. Ich drucke dann mal meine 2 Seiten Diagnosen & Medis aus... #spoonie #MECFS #SFN #ChronischeSchmerzen #ChronischKrank
Read this interview with #Spoonie author C. Helen and The Other Side of the Butterfly. Learn about the author's journey with #ChronicPain, why she wrote this novel, & where you can support her. 🔗 myseveralworlds.com/2025/10/22/aut… #SpoonieAuthor #AuthorInterview #MySeveralWorlds
“My symptoms can flare daily and my pain can be off the charts. I can go from being able to walk with aids to being completely crippled. It’s scary at how quickly my physical symptoms worsen.” My #ChronicIllness Rule Book buff.ly/aPB6hAS @My_MedMusings #spoonie
“The whole thought process of a #chronicallyill person is vastly different from a “healthy” person… they have no idea what it’s like—there may be 20 or more decisions you need to process before you can walk out your door.” buff.ly/4cEt5d3 @KimberlyJPenix #spoonie
“As a #spoonie we all know the struggle, fighting day after day for years. We are strong but they will never know our fight. Some days I think I will never survive—when every part of my body hurts.” 28 Things #Spoonies Wish Others Would Stop Saying to Them buff.ly/Pob9ddR
Mary has ME and she has given us the following description to use when we are highlighting it: "A fictionalisation of the struggles of a woman with Myalgic Encephalomyelitis (ME), and the obstacles she faces on a daily basis as a wheelchair-using mature student” #PwME #spoonie
“When people do not understand the state I’m in, it makes me feel even worse during a #flareup. So…I accept it and know it’s temporary. It will pass… I allow myself to rest and retreat, and surround myself with comforting resources.” buff.ly/4guiDX4 @AChVoice #spoonie
#Spoonie Price List PRICE LIST Showering 7 spoons Cooking 6 spoons Getting Ready 4 spoons Going Out 15 spoons Chill Day 1 spoon Credit Unknown #SpoonieLife #SpoonTheory #MySeveralWorlds #ChronicLife
Dealing with #ChronicIllness symptoms #SPOONIE: *googling* Is this symptom normal? GOOGLE: WHAT THE F*CK. NO GO TO THE HOSPITAL! SPOONIE: *googling* Is this symptom normal? + disorder GOOGLE: Oh, yeah, you're fine, life sucks doesn't it? Credit: dysfunctionalqueer #SpoonieProbs
Spider Spoonkie, Spider Spoonkie... 🕸️🕷️🥄 Does Whatever A Spoonie Can... Kickin' Ass, Forgetting Names & Taking Napticals #superheroday #spiderverse #spoonie #webcomics #cuteart
“I’ve lost track of the number of times in my life that I’ve wanted to give up. The number of days, of moments, when I felt I could no longer tolerate the #pain… But I’m STILL here… Just like you can’t see my illness, you can’t see my strength.” buff.ly/2Q9W4vQ #spoonie
“If you're struggling, you deserve to make #selfcare a priority… Quiet the voice telling you to do more and be more, and today, whatever you do, let it be enough… Be gentle with yourself. Acknowledge that you're doing the best you can to cope and survive.” #chronicpain #spoonie
"When Home Becomes a Healing Space" by an OT who specialises in ME/CFS & long Covid. onelifelivedwell.substack.com/p/when-home-be… This particular article is pretty general and suitable for people with lots of chronic illnesses #chronicillness #Spoonie
Did you know I published a #Spoonie coloring book? #MySeveralWorlds: A Coloring Adventure for Spoonies is made for Spoonies by a full-time #Spoonie who has been using art as a coping tool for chronic illness and chronic pain since 2009. 🔗 myseveralworlds.com/2024/08/08/my-…
News Release 9-Mar-2026 Telemedicine remains popular, but who uses it varies widely eurekalert.org/news-releases/… “Telemedicine is no longer just a pandemic workaround—it has become a routine part of care delivery,” #chronicillness #Spoonie
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