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ChasingLifeProj's profile picture. This is a project created to inspire others who are battling illnesses,diseases, disabilities to live a life full of adventure and without limitations.

Chasing Life Project

@ChasingLifeProj

This is a project created to inspire others who are battling illnesses,diseases, disabilities to live a life full of adventure and without limitations.

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ChasingLifeProj's profile picture.
Chasing Life Project
 @ChasingLifeProj
15 mar 2018

“Remember, look at the stars and not at your feet." -- Stephen Hawking

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Chasing Life Project
 @ChasingLifeProj
1 ene 2018

Hau’oli Makahiki Hou (Happy New Year) from our family to yours!! As 2017 comes to a close I pray that 2018 will be a year filled with blessings, love, family, faith and friendship 💕

ChasingLifeProj's tweet image. Hau’oli Makahiki Hou (Happy New Year) from our family to yours!! As 2017 comes to a close I pray that 2018 will be a year filled with blessings, love, family, faith and friendship 💕
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Chasing Life Project
 @ChasingLifeProj
25 dic 2017

Mele Kalikimaka 🎄 Wishing our friends and family a wonderful and blessed Christmas!

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Chasing Life Project reposteó
ddlovato's profile picture.
Demi Lovato
@ddlovato
11 dic 2017

I #StandwithKeaton. Keaton baby, just know you’re not alone. There are so many people who come out of bullying so much stronger and you will be one of them!! God bless you sweetheart.

OutKickBets's profile picture. Sports betting news and picks to help you lock in profit on a daily basis.
OutKick Bets
 @OutKickBets
9 dic 2017

This is Keaton Jones, he lives in Knoxville and he has a little something to say about bullying.

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Chasing Life Project
 @ChasingLifeProj
24 nov 2017

Happy Thanksgiving from our family to yours!

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Chasing Life Project reposteó
travisflores's profile picture.
Travis Flores
 @travisflores
8 oct 2017

Love you #YellowHeartSquad💛I'm recovering at @UCLAHealth WE DID IT -AGAIN! #GodBless #OrganDonors #LungTransplant @DonateLife @CF_Foundation

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Chasing Life Project
 @ChasingLifeProj
4 oct 2017

Love and prayers to our dear friend @travisflores who received his 2nd double lung transplant today 💛💛 #YellowHeartSquad #DonateLife

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Travis Flores
 @travisflores
4 oct 2017

#YellowHeartSquad, Travis received the call for transplant. Please pray in this time of waiting for transplant & for the donor/their family💛

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Chasing Life Project
 @ChasingLifeProj
18 sept 2017

Had a great week in California. Until next time.....

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Chasing Life Project
 @ChasingLifeProj
17 sept 2017

Tailen and I were honored to meet the @WeCarryKevan team at this year's #2017GGSumitt and Gala event #neverstopchasinglife

ChasingLifeProj's tweet image. Tailen and I were honored to meet the @WeCarryKevan team at this year's #2017GGSumitt and Gala event #neverstopchasinglife
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ChasingLifeProj's profile picture.
Chasing Life Project
 @ChasingLifeProj
17 sept 2017

Tailen with @MadisonMcLaugh at the Champions of Hope Gala

ChasingLifeProj's tweet image. Tailen with @MadisonMcLaugh at the Champions of Hope Gala
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Global Genes
 @GlobalGenes
17 sept 2017

Live at the #2017GGtribute as @stephricemusic performs pscp.tv/w/bIyiwzF6WUti…

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ChasingLifeProj's profile picture.
Chasing Life Project
 @ChasingLifeProj
17 sept 2017

Celebrating the Champions of Hope Gala @GlobalGenes

ChasingLifeProj's tweet image. Celebrating the Champions of Hope Gala @GlobalGenes
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RareBeacon's profile picture. Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.

Beacon for Rare Diseases

@RareBeacon
LaraBloom's profile picture. President & CEO @TheEDSociety•Prof of Practice Patient Engagement & Global Collaboration•Rare & Chronic Disease Advocate•🏳️‍🌈Gay•She/Her• Views my own

Professor Lara Bloom

@LaraBloom
RarePOV's profile picture. #Raredisease patient advocate & #stroke survivor.🦓 Member of @PARareDisease. Opinions are my own.

Stephanie Fischer

@RarePOV
HODAssoc's profile picture. Hypertrophic Olivary Degeneration Association official Twitter account

HODA

@HODAssoc
BrianHo23961173's profile picture. Looking for the 4/11 Field Artillery Regiment, contaminated in 1993!

Brian Holmes

@BrianHo23961173
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United Porphyrias Association

@UnitedPorphAssc
CRM__CRM's profile picture. #CRM #CustomerRelationshipManagement #CustomerExperience #CustomerEngagement #InboundMarketing

Customer Relationship Management

@CRM__CRM
Porphyria_Help's profile picture. Educating, advocating, connecting patients & supporting research for the prevention, treatment & cure of #porphyria #PorphyriaStrong 💜 #porphyriawarriors

American Porphyria Foundation

@Porphyria_Help
mbsciencesinc's profile picture. Connecting #Patients to the right #ClinicalTrial | #PatientsHavePower | #ClinicalTrialAdvocacy | #ChronicIllness #ClinicalTrials https://t.co/MAICwvfZya

M&B Sciences

@mbsciencesinc
esther_msaladie's profile picture. Diversity and Inclusion Advocate #esthermsaladié #reconnectingonlinkedin

Esther M Saladié

@esther_msaladie
growth_tybae's profile picture. 진지하게 파고드는 성격

배태연

@growth_tybae
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karen petitjean

@karenpetitjean
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Stacey

@WoodnuttStacey
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LLC

@LisaCoronado16
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Elizamary

@Elizamary12
SAAtaxia's profile picture. Just me

Just me in cape town

@SAAtaxia
O8pi8r34HfkcBNk's profile picture. นาย ร้อยตําตรวจโท บัญชาเวช🍐🍏🍊ขยัน.อดทน.ตรงต่อเวลา.รูหน้าที่ของตนเอง.ใฝ่หาความรู้.สู้คุณธรรมกับความเป็นจริง.เป็นคนร่าเริงแจ่มใส.สนุกร่าเริง.รักเพื่อนรักฝูง

นาย ร้อยตําตรวจโท บัญชาเวช เจริญยุทธ์ถหัตถี

@O8pi8r34HfkcBNk
ForwardRolling's profile picture. Helping women obtain leadership positions through the POWER of their Voice. CEO/Founder of VICKtorious|Keynote|BSA|STEAM|Ed. #chronicpain #rare #MGwarrior #EDS

ForwardRolling

@ForwardRolling
Rachitforhealth's profile picture. Master’s in business management with over 13 years of Investment Banking experience

Rachit Shah

@Rachitforhealth
DisorderRare's profile picture. Two rare disease dads took their films for Menkes Disease and USP7 & built them into a festival for all films on rare disease. https://t.co/Qjsl21HRH4

DISORDER: The Rare Disease Film Festival

@DisorderRare
PuttingRDPF's profile picture. We are a non-profit that provides eactionable information on clinical trials and drug development to patients with rare diseases. #rarediseases

Putting RDPF!

@PuttingRDPF
Axenfeld_Rieger's profile picture. Our mission is to find effective treatments for the Glaucoma caused by Axenfeld-Rieger Syndrome, which occurs as early as infancy & childhood.

Axenfeld-Rieger Foundation

@Axenfeld_Rieger
ChristyGreeley's profile picture. Rare Disease Advocate. University of Michigan Public Health. Mom to two of the best. Views are my own.

Christy Greeley

@ChristyGreeley
sweet_pea_315's profile picture.

Sheila M. Stefhon

@sweet_pea_315
SmithKingsmore's profile picture. Smith-Kingsmore Syndrome is a rare genetic disease. We are committed to improve quality of life through medical advancements and community support.

Smith-Kingsmore Syndrome Foundation

@SmithKingsmore
StrouthSteven's profile picture. Steve ( old boy) strouth smoking in Baltimore ☠️PSALM 23 am I evil yes I am☠️ I am a Democrat😀

steven strouth

@StrouthSteven
theCMForg's profile picture. 🎵 #Musicheals! 🎶 CMF is a nonprofit organization that provides #MusicTherapy to children with chronic conditions or life-altering illnesses.

Children's Music Fund

@theCMForg
TaraParham's profile picture. Once blind, daughter of USMC #VietnamVet #AgentOrange #COVVHA triple #RareDisease #AvascularNecrosis #IntracranialHypertension #IIH #InterstitialLungDisease

Tara Parham

@TaraParham
TdwilsonsrSr's profile picture. Head Football Coach Wakefield HS

Trent Wilson Sr

@TdwilsonsrSr
BlueRauisuchid's profile picture. husband, father, Teacher scientifically responsible Christian, History fan,Earth Science , Mechanic, Rare Disease advocate, dog lover,

Blue Collar Rauisuchid

@BlueRauisuchid
Bjdiazntx's profile picture. Living life the best I can! I am a Intractable Pain patient with in curable rare disease. Advocating for CPP Suffering due to governments injustice!

Pain is no gain

@Bjdiazntx
JulesC2022's profile picture. #Raredisease #Biotech Exec #Raredisease #Momvocate #speaker #health-equality activist #medical implicit bias fixer #LC MomX3 Proud #CSU Mom #GoRams

Julie Comperchio

@JulesC2022
JuliannaKustel1's profile picture.

Julianna Kustelski

@JuliannaKustel1
DrPas84Ele's profile picture. Communication | Advocacy | Policy | #Neuroscience #PhD | Founder n President of #RareSpecialPowers | #rarediseases | #pinksocks | Own views

DrPasEle

@DrPas84Ele
dannys_dose's profile picture. Campaign to change Emergency Treatment Protocols in every state for over 32 million Americans requiring specialized care. (501C3)

Danny's Dose

@dannys_dose
jenandtonicCo's profile picture.

JenAside

@jenandtonicCo
Allisonisme1323's profile picture. I🩶ANIMALS!Chronic illneses/pain/MH/Abuse changed my life.Eminem,NF,TOP,LP/COYS,Blazers,NOP,Sounders & Seahawks.💞Be kind & support others✌️Smile & Live happy!

Believe*in*Yourself☯🕊🤟🦋🪻

@Allisonisme1323
PFWarrior's profile picture. PF Warriors, a support network that provides education, inspiration, & hope to those living with pulmonary fibrosis.❤💙

Pulmonary Fibrosis Warrior

@PFWarrior
CdLSFoundation's profile picture. Cornelia de Lange Syndrome, promoting research & providing support to individuals with CdLS & their families 860.676.8166 #raredisease #cdlsawareness

CdLS Foundation

@CdLSFoundation
DeddyDarmadi6's profile picture. owner kratom borneo group

Deddy Darmadi

@DeddyDarmadi6
therarefair's profile picture. Powered by @tda4rare, The Rare Fair is the original virtual event designed for all members of the rare disease community. https://t.co/m4Ar9Fuzkl

TheRareFair

@therarefair
AdameJane's profile picture. Mom. Inventor. User researcher. Future gynecological trivia winner. (Then add “disabled” to the front of all of those)

Jane Hartman Adamé

@AdameJane
mckee_felicity's profile picture. Trustee for @DiscoverySVS Consultant with @ChangeDisabled She/They RT≠endorsement

Dr Felicity McGeown

@mckee_felicity
MarcYale's profile picture. Advocacy & Research Coordinator, International Pemphigus and Pemphigoid Foundation, #RareDisease Patient, Passionate Advocate and Father. #pemphigus, #pemhigoid

Marc Yale

@MarcYale
ProBonoOmics's profile picture. A journey to assist with rare disease challenges offering nil cost advice using computational modeling targeting personalized medicine for those in need.

Pro Bono Omics

@ProBonoOmics
jeanette_sealy's profile picture. Jeanette is a Yoga Therapist, Ayurvedic Doula, and Massage Therapist offering contemplative healing practices and education for health and happiness.

Jeanette Sealy

@jeanette_sealy
RCSFounder's profile picture. Founder & CEO @RareChannels / Visionary / Thought Leader #RareIsDifferent #SpectrumOfConnections #ConceptToCure #BeFound

Carol J. Dickerson, Pharm D

@RCSFounder
NFSDse's profile picture. Ågrenska har under åren 2012-2018 drivit Nationella Funktionen Sällsynta Diagnoser på uppdrag av Socialstyrelsen inom området sällsynta diagnoser.

NFSD #sällsyntaliv

@NFSDse
RP_Organization's profile picture. The RP Foundation’s purpose is to facilitate awareness, education, and research to improve the quality of life for patients with relapsing polychondritis (RP).

Relapsing Polychondritis Foundation

@RP_Organization
cutzeemomma's profile picture. Director-AP/Staff Devel #MarshallU, proud momma to MU alumna; chapter advisor to #MU_TriSigma; Rare disease survivor; I can and I will!

Juanita Parsons

@cutzeemomma
hopethezebra's profile picture. Bringing the rare disease community together by sharing Hope, laughter and support. hopethezebra@gmail.com

Hope the Zebra

@hopethezebra
doctweets3's profile picture. A doctor, willing to provide helpful medical information to the ones who need!

doctweets

@doctweets3
OptioBiopharma's profile picture. Specializes in providing biopharmaceutical companies with comprehensively experienced marketing and strategic commercial support.

Optio Biopharma Solutions

@OptioBiopharma
RareDiseases's profile picture. #NORD has been the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay. On Bluesky at @ https://t.co/D7PIT4k0Py

National Organization for Rare Disorders (NORD)

@RareDiseases
RarePOV's profile picture. #Raredisease patient advocate & #stroke survivor.🦓 Member of @PARareDisease. Opinions are my own.

Stephanie Fischer

@RarePOV
rarediseaseday's profile picture. 28 February 2026 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay

Rare Disease Day

@rarediseaseday
FieldWhs's profile picture. #runthrowjump #fastandfar

Wakefield HS Track & Field

@FieldWhs
WakefieldHS's profile picture. Wakefield HS official Twitter. Its all about the W! Facebook: https://t.co/hkY2592GwC Instagram: https://t.co/7SvVtZsyDZ

Wakefield HS

@WakefieldHS
NickCannon's profile picture. @NickCAtNight @dailycannonshow @counselculture_ @cannonsclasstv @bigdriveshow MR. NCREDIBLE aka THE KING of RAW&B

Nick Cannon

@NickCannon
howiemandel's profile picture. Check out my podcast, Howie Mandel Does Stuff!

Howie Mandel

@howiemandel
AGT's profile picture. ✨two minutes can change your life✨ #AGT is streaming now on @peacock

America’s Got Talent

@AGT
evieclair's profile picture. mom, recording artist, singer, pianist, songwriter

Evie Clair

@evieclair
angelicahale's profile picture. Artist🎤🎶🎹 AGT Runner-up🥈@agt ‘17🇺🇸 #AGTChampions Finalist🏅 SAG-AFTRA🎙Actress🎞 KidneyXplant & Sepsis Survivor🌟 ParentsRunAcct💖booking@angelicahale.com

Angelica Hale

@angelicahale
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Dori

@doreliarivera
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Vipin_Singh_Rajput 🌱♻️

@VipinSinghvns
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Sparsh Shah (Purhythm)

@SparshPurhythm
andadapt's profile picture. Storyteller, technologist, adventurer, inclusivity consultant. For speaking enquiries check https://t.co/frkwxcn6aX

Simon Wheatcroft

@andadapt
kikosys's profile picture.

kikosys

@kikosys
PattiMHall's profile picture. Master Story Alchemist. Book and writing coach. Creator of The Story House STUDIO https://t.co/oGQv3Sxyr2 and FOUNDATION masterclass

Patti M Hall

@PattiMHall
nicoleboice's profile picture. Founder RARE-X and Founder/Former CEO of Global Genes #CareAboutRARE #raredisease. Opinions are my own.

nicoleboice

@nicoleboice
RareInCommon's profile picture. MANY VOICES. ONE MISSION. A user-generated short-film about the inspiring people in the rare disease community — Rare in Common.

Rare In Common

@RareInCommon
shineonrare's profile picture. The Founder is Sika. She's a marketer, fundraiser, and works at Travere. She's her Sister's sister. Views shared here are her own.

Shine Light

@shineonrare
WeHealthNews's profile picture. Putting patients at the forefront of health outreach, advancing scientific advancement and promoting equitable healthcare for all communities ✨

WeHealth

@WeHealthNews
PatientWorthy's profile picture. We're a resource for engaging, informative content and rare patient news, well done.

Patient Worthy

@PatientWorthy
MartinFleming13's profile picture. Life, Business, Health, Success & Ability Coach in. Helping people to achieve their goals and potential, to help disabled people believe in their abilities

Your Holistic Solution Coaching

@MartinFleming13
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Star Squires

@StarDeSoul
ACushieLife's profile picture. I am a Cushing's Disease survivor. My hope is that by sharing the ups and downs of my journey, someone else may feel not so alone.

Cushing's Survivor

@ACushieLife
DivinitySkyyDu1's profile picture. 13 years old/ likes girls/also a huge Jason Michael Miller fan

DivinitySkyy Duchemi

@DivinitySkyyDu1
MarkDPritchard's profile picture. Author of I'M NEVER ILL (A journey through brain surgery & beyond). Get book here 👉https://t.co/Y7GAsDia7P

Mark D Pritchard

@MarkDPritchard
_CTSF_'s profile picture. Dedicated to funding ongoing research needed to find treatments & a cure for Tay-Sachs Disease. Hereditary, neurological, degenerative. https://t.co/y8wygEhm9c

Cure Tay-Sachs

@_CTSF_
Smee81's profile picture. 🙏🏼 Working to cure #TaySachs & #AlliedDiseases. @_CTSF_. JUSTBELIEVE in a cure! Love family (includes Hickory Belle, my cat), sports, Barack Obama, tech. ♿

Becky Warren • Democracy 💙

@Smee81
N0oLo's profile picture. ♿️ Graduate student @SFSU

Noelle Lopez

@N0oLo
HPSNetwork's profile picture. Hermansky-Pudlak Syndrome, a type of albinism that causes low vision as well as a bleeding disorder. It can cause a Crohns-like GI problem/pulmonary fibrosis

HPS Network

@HPSNetwork
marissamclaugh's profile picture. Just your average book huggin',screen lovin',musical theatre kid just rollin' through life on her own two wheels.| TikTok and Tumblr: marissamclaugh

Marissa Mclaughlin

@marissamclaugh
RareDiseaseAdv's profile picture. Little Miss Hannah's Mom #RareMom. Providing education & mentoring to #raredisease advocates. Comments and opinions are my own.

Carrie Ostrea, MBA

@RareDiseaseAdv
rarelifetalks's profile picture. building custom communities with integrated knowledge libraries

rareLife solutions

@rarelifetalks
AgilityClinical's profile picture. Clinical development experts with a special focus on rare diseases. Now part of Precision for Medicine ORD

Agility Clinical

@AgilityClinical
innerjellyfish's profile picture. Girl’s journey living with a rare, neurogenic disorder, chronic pain, Celiac & POTS #spoonie #raregenetics #resist #activist #goodtrouble #activism #resistance

🌊 JourneyOfAJellyfish 🌊

@innerjellyfish
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Nina Dobrev Fans

@ElenaDobrev__
Ash_Blankenship's profile picture. LA/NYC -actress/model/life lover -let your light shine Instagram&snapchat : @ash_blankenship

Ashley Blankenship

@Ash_Blankenship
basscasting's profile picture. bi coastal casting+production office - feature film/tv/theatre

bass/casting

@basscasting
chrisgiovannii's profile picture. Hollywood Talent Manager | CEO @CGEMTalent Romans 8:28

Chris ♔ Giovanni

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CGEMTalent's profile picture. Official Twitter of #CGEMTalent. 15 Years of Representing, Booking, and Publishing Stars in the Entertainment Industry.

cgem talent.

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lilbithuntstx's profile picture. I'm a 33 yr old mom to a MPS Warrior! I love penguins and cheese.

Emily

@lilbithuntstx
sicklecellpartn's profile picture. Founded in 2009 to support patients and families affected by Sickle Cell Anemia; to raise awareness and educate the community; and to advocate for a cure.

Sickle Cell Partners

@sicklecellpartn
PSRorphan's profile picture. We’ve moved! PSR Orphan Experts is now Ergomed. To stay updated on future news, please follow us on the Ergomed Twitter page at https://t.co/mWUAHD63Iq

PSR Orphan Experts (now Ergomed)

@PSRorphan
SCAGOSCD's profile picture. SCAGO is the largest patient organization supporting and advocating for families affected by sickle cell disease in Ontario learn more: https://t.co/k1Rg9bZcuN

Sickle Cell Awareness Group of Ontario (SCAGO)

@SCAGOSCD
RMCAwareness's profile picture. 501(c)(3) nonprofit for Renal Medullary Carcinoma, a rare kidney cancer associated with Sickle Cell Trait. Support|Awareness|Advocacy|Research|Cure

R.M.C. Inc

@RMCAwareness
DrFalsetti's profile picture. Drug development/ commercialization. Focused on #rarediseases, especially diagnosis/ access to care. Husband/ Father/ Pug owner/ PhD.

Sam Falsetti

@DrFalsetti
DNATestingChce's profile picture. DNA Testing Choice is the leading news and reviews site for the DNA tests you can take at home

DNA Testing Choice

@DNATestingChce
bohring_opitz's profile picture. Bohring-Opitz Syndrome Foundation, Inc.-a 501c3 non-profit organization-is dedicated to improving the lives of people affected by BOS. #BohringOpitz #BOSAware

Bohring-Opitz

@bohring_opitz
projectvisionhq's profile picture. Connecting people with their most motivated self. Preventing chronic disease.

ProjectVision

@projectvisionhq
sicklecellca's profile picture. Sickle Cell Disease Association of Canada. Advocating for those with SCD in Canada. Like us on Facebook https://t.co/oZX9osWbLi

SCDAC

@sicklecellca
PKUnity's profile picture. Co-founded by @haggarty_claire & @katebucklandPT PKUnity supports patients w/ #phenylketonuria RTs & recipe shares are not endorsements All views our own

PKUnity

@PKUnity
SpinalCordCom's profile picture. Resources & information for spinal cord & TBI Injury survivors, family/friends. Message us or visit https://t.co/i1EWYLq7W0 for advice.

Spinal Cord

@SpinalCordCom

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