PKUnity
@PKUnity
Co-founded by @haggarty_claire & @katebucklandPT PKUnity supports patients w/ #phenylketonuria RTs & recipe shares are not endorsements All views our own
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Be part of the change in February! Change your Facebook cover photo to the attached banner in order to create awareness of rare diseases!
February is here! As well as the cover photo, change your profile photo and become a part of the international campaign! #RareDiseaseDay
THE OFFICIAL RARE DISEASE DAY 2017 VIDEO IS OUT NOW! Share the video to become part of the international #RareDiseaseDay campaign!
'With research, possibilities are limitless'. What does this year's theme mean to you? rarediseaseday.org/page/news/2017…
I said we'd do these more often! Interested to know ur opinions on this: Should #PKU diet be "Diet-for-life"?
personally as Claire I agree&will b diet4life.But I have met many people who disagree. As @PKUnity I have to be open to all
During #UKCharityWeek we'd like to thank all those that support us, @JeansforGenes and children with #GenetcDisorders
Fate leek and sweet potato low protein soup - not just a soup for Xmas. Delcious and substantial!
Another classic and easy low protein recipe- Fate low protein truffles.
If left untreated in pregnancy #phenylketonuria may lead to #microcephaly in babies #PKU #genomics #100kGENOMES
mevalia_lp rice with #slowcooker #veggies #curry #lowprotein and #phenylketonuria friendly instagram.com/p/BKdzeFUBSAw/
Festive cakes from mr Kipling only 0.7g protein per cake #phenylketonuria #treat instagram.com/p/BMwGlBRhedM/
Mmm that #lowprotein soup & bread combo hit the spot #phenylketonuria #timelapse instagram.com/p/BMwF0S6Biyw/
Looks very healthy
#30minutemeals style #lowprotein pizza with violife_foods #vegan cheese #phenylketonuria #pku instagram.com/p/BM4fj8JFDyp/
The most amazing thing about #PKU is the people who live with it and their stories... Who's got one they want to share?
Thats my hero @PeteHegseth my mom overturned #federal #health #policy #CuresNow 4 #FDA #orphan #medicalfoods #PKU at pkupioneer.com
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