DaisyPcos's profile picture. Dissecting Androgen excess & metabolic dysfunction – an Integrated SYstems approach to PolyCystic Ovary Syndrome. #WellcomeTrust funded, led by Prof @WiebkeArlt

DAISy-PCOS

@DaisyPcos

Dissecting Androgen excess & metabolic dysfunction – an Integrated SYstems approach to PolyCystic Ovary Syndrome. #WellcomeTrust funded, led by Prof @WiebkeArlt

The @LindAlliance Top 10 #PCOS Research Priorities are being announced today! Bravo to all involved, including members of the PCOS community who contributed questions & helped prioritisation. We can’t wait to hear what priorities have been identified! Exciting! Tune in 5pm 📣🌼

📢 Calling all #PCOS patients, healthcare professionals & researchers — big news! We’re announcing the Top 10 PCOS Research Priorities on a webinar, open for all. Tuesday, 21 Oct at 5pm. Register: 👉 lnkd.in/exPCT7m8 @cardiffuni @LindAlliance

veritypcos's tweet image. 📢 Calling all #PCOS patients, healthcare professionals & researchers — big news!

We’re announcing the Top 10 PCOS Research Priorities on a webinar, open for all.  Tuesday, 21 Oct at 5pm.

Register:
👉 lnkd.in/exPCT7m8

@cardiffuni @LindAlliance


DAISy-PCOS reposted

Registrations open soon for the #JLAPCOS webinar with @cardiffuni on #PCOS


DAISy-PCOS reposted

A big thank you to my local MP Laurence Turner @larry_turner for taking the time to respond to my invite & for joining us at the @APPG_PCOS report launch. I was pleased to have the opportunity to talk with you about #PCOS women’s health research & public engagement @unibirmingham

cdtgillett's tweet image. A big thank you to my local MP Laurence Turner @larry_turner for taking the time to respond to my invite & for joining us at the @APPG_PCOS report launch. I was pleased to have the opportunity to talk with you about #PCOS women’s health research & public engagement @unibirmingham
cdtgillett's tweet image. A big thank you to my local MP Laurence Turner @larry_turner for taking the time to respond to my invite & for joining us at the @APPG_PCOS report launch. I was pleased to have the opportunity to talk with you about #PCOS women’s health research & public engagement @unibirmingham
cdtgillett's tweet image. A big thank you to my local MP Laurence Turner @larry_turner for taking the time to respond to my invite & for joining us at the @APPG_PCOS report launch. I was pleased to have the opportunity to talk with you about #PCOS women’s health research & public engagement @unibirmingham
cdtgillett's tweet image. A big thank you to my local MP Laurence Turner @larry_turner for taking the time to respond to my invite & for joining us at the @APPG_PCOS report launch. I was pleased to have the opportunity to talk with you about #PCOS women’s health research & public engagement @unibirmingham

DAISy-PCOS reposted

Read the report here pcosappg.co.uk/2025-report-br… It features insights from one of our Hildas #PPIE advocates & @DAISyPCOS Leaders, Sunila! Thank you Sunila for all the work you’ve done with us on research engagement and involvement over the years! 🌼 #PCOSAPPG #pcosawarenessmonth 2/2

cdtgillett's tweet image. Read the report here pcosappg.co.uk/2025-report-br… It features insights from one of our Hildas #PPIE advocates & @DAISyPCOS Leaders, Sunila! Thank you Sunila for all the work you’ve done with us on research engagement and involvement over the years! 🌼 #PCOSAPPG #pcosawarenessmonth 2/2

DAISy-PCOS reposted

Delighted to have been at the Houses of Parliament today with @DAISyPCOS 🌼for the launch of the @APPG_PCOS inaugural report outlining recommendations for reform on #PCOS diagnosis, treatment & care. Incredible work by @verity & collaborators to get to this point! #PCOSAPPG 1/2

cdtgillett's tweet image. Delighted to have been at the Houses of Parliament today with @DAISyPCOS 🌼for the launch of the @APPG_PCOS inaugural report outlining recommendations for reform on #PCOS diagnosis, treatment & care. Incredible work by @verity & collaborators to get to this point! #PCOSAPPG 1/2
cdtgillett's tweet image. Delighted to have been at the Houses of Parliament today with @DAISyPCOS 🌼for the launch of the @APPG_PCOS inaugural report outlining recommendations for reform on #PCOS diagnosis, treatment & care. Incredible work by @verity & collaborators to get to this point! #PCOSAPPG 1/2
cdtgillett's tweet image. Delighted to have been at the Houses of Parliament today with @DAISyPCOS 🌼for the launch of the @APPG_PCOS inaugural report outlining recommendations for reform on #PCOS diagnosis, treatment & care. Incredible work by @verity & collaborators to get to this point! #PCOSAPPG 1/2
cdtgillett's tweet image. Delighted to have been at the Houses of Parliament today with @DAISyPCOS 🌼for the launch of the @APPG_PCOS inaugural report outlining recommendations for reform on #PCOS diagnosis, treatment & care. Incredible work by @verity & collaborators to get to this point! #PCOSAPPG 1/2

DAISy-PCOS reposted

Great day at the QE hospital engaging #PCOS patients (& partners!) on a discussion about the ongoing Seva clinic pathway development led by @drpunith & @Devicollab team. Special thanks to Dani & Sunila for helping co-develop this event & for sharing their own stories! ✨

cdtgillett's tweet image. Great day at the QE hospital engaging #PCOS patients (& partners!) on a discussion about the ongoing Seva clinic pathway development led by @drpunith & @Devicollab team. Special thanks to Dani & Sunila for helping co-develop this event & for sharing their own stories! ✨
cdtgillett's tweet image. Great day at the QE hospital engaging #PCOS patients (& partners!) on a discussion about the ongoing Seva clinic pathway development led by @drpunith & @Devicollab team. Special thanks to Dani & Sunila for helping co-develop this event & for sharing their own stories! ✨
cdtgillett's tweet image. Great day at the QE hospital engaging #PCOS patients (& partners!) on a discussion about the ongoing Seva clinic pathway development led by @drpunith & @Devicollab team. Special thanks to Dani & Sunila for helping co-develop this event & for sharing their own stories! ✨
cdtgillett's tweet image. Great day at the QE hospital engaging #PCOS patients (& partners!) on a discussion about the ongoing Seva clinic pathway development led by @drpunith & @Devicollab team. Special thanks to Dani & Sunila for helping co-develop this event & for sharing their own stories! ✨

DAISy-PCOS reposted

Get your friends involved in helping with #pcos research with our friends at @DaisyPcos

veritypcos's tweet image. Get your friends involved in helping with #pcos research with our friends at @DaisyPcos

📢 We need your voice! Help shape the future of PCOS research. We’ve narrowed down over 1400 suggestions to a shortlist of 51. Now, it’s time for patients and healthcare professionals to vote for the most important topics. 📷 It only takes 10 mins #PCOS #JLApcos #PCOSAwareness

DaisyPcos's tweet image. 📢 We need your voice! Help shape the future of PCOS research. We’ve narrowed down over 1400 suggestions to a shortlist of 51. Now, it’s time for patients and healthcare professionals to vote for the most important topics. 📷 It only takes 10 mins #PCOS #JLApcos #PCOSAwareness

DAISy-PCOS reposted

Thank you London! Another day of feedback from people with lived experience of PCOS for @DAISYPCOS #EMPOWERPCOS. We appreciate all the questions & suggestions received & will take them on board as we decision-make. Great to be joined by @carand2015 @veritypcos today as well! 😊

cdtgillett's tweet image. Thank you London! Another day of feedback from people with lived experience of PCOS for @DAISYPCOS #EMPOWERPCOS. We appreciate all the questions & suggestions received & will take them on board as we decision-make. Great to be joined by @carand2015 @veritypcos today as well! 😊
cdtgillett's tweet image. Thank you London! Another day of feedback from people with lived experience of PCOS for @DAISYPCOS #EMPOWERPCOS. We appreciate all the questions & suggestions received & will take them on board as we decision-make. Great to be joined by @carand2015 @veritypcos today as well! 😊
cdtgillett's tweet image. Thank you London! Another day of feedback from people with lived experience of PCOS for @DAISYPCOS #EMPOWERPCOS. We appreciate all the questions & suggestions received & will take them on board as we decision-make. Great to be joined by @carand2015 @veritypcos today as well! 😊
cdtgillett's tweet image. Thank you London! Another day of feedback from people with lived experience of PCOS for @DAISYPCOS #EMPOWERPCOS. We appreciate all the questions & suggestions received & will take them on board as we decision-make. Great to be joined by @carand2015 @veritypcos today as well! 😊

DAISy-PCOS reposted

Amazing afternoon of patient engagement with the team @DaisyPcos

Thank you London! Another day of feedback from people with lived experience of PCOS for @DAISYPCOS #EMPOWERPCOS. We appreciate all the questions & suggestions received & will take them on board as we decision-make. Great to be joined by @carand2015 @veritypcos today as well! 😊

cdtgillett's tweet image. Thank you London! Another day of feedback from people with lived experience of PCOS for @DAISYPCOS #EMPOWERPCOS. We appreciate all the questions & suggestions received & will take them on board as we decision-make. Great to be joined by @carand2015 @veritypcos today as well! 😊
cdtgillett's tweet image. Thank you London! Another day of feedback from people with lived experience of PCOS for @DAISYPCOS #EMPOWERPCOS. We appreciate all the questions & suggestions received & will take them on board as we decision-make. Great to be joined by @carand2015 @veritypcos today as well! 😊
cdtgillett's tweet image. Thank you London! Another day of feedback from people with lived experience of PCOS for @DAISYPCOS #EMPOWERPCOS. We appreciate all the questions & suggestions received & will take them on board as we decision-make. Great to be joined by @carand2015 @veritypcos today as well! 😊
cdtgillett's tweet image. Thank you London! Another day of feedback from people with lived experience of PCOS for @DAISYPCOS #EMPOWERPCOS. We appreciate all the questions & suggestions received & will take them on board as we decision-make. Great to be joined by @carand2015 @veritypcos today as well! 😊


DAISy-PCOS reposted

Thank you Birmingham attendees! Such a useful & enjoyable day getting your feedback @DAISyPCOS #EMPOWERPCOS. Special thanks @eka_melson for talking through plans & answering questions so thoroughly! Thanks Lida & Cadence for behind the scenes support! London… see you Monday! 😀

cdtgillett's tweet image. Thank you Birmingham attendees! Such a useful & enjoyable day getting your feedback @DAISyPCOS #EMPOWERPCOS. Special thanks @eka_melson for talking through plans & answering questions so thoroughly! Thanks Lida & Cadence for behind the scenes support! London… see you Monday! 😀
cdtgillett's tweet image. Thank you Birmingham attendees! Such a useful & enjoyable day getting your feedback @DAISyPCOS #EMPOWERPCOS. Special thanks @eka_melson for talking through plans & answering questions so thoroughly! Thanks Lida & Cadence for behind the scenes support! London… see you Monday! 😀

DAISy-PCOS reposted

Enjoyable day indeed! Thank you @cdtgillett, Lida and Cadence for the support! @DaisyPcos

Thank you Birmingham attendees! Such a useful & enjoyable day getting your feedback @DAISyPCOS #EMPOWERPCOS. Special thanks @eka_melson for talking through plans & answering questions so thoroughly! Thanks Lida & Cadence for behind the scenes support! London… see you Monday! 😀

cdtgillett's tweet image. Thank you Birmingham attendees! Such a useful & enjoyable day getting your feedback @DAISyPCOS #EMPOWERPCOS. Special thanks @eka_melson for talking through plans & answering questions so thoroughly! Thanks Lida & Cadence for behind the scenes support! London… see you Monday! 😀
cdtgillett's tweet image. Thank you Birmingham attendees! Such a useful & enjoyable day getting your feedback @DAISyPCOS #EMPOWERPCOS. Special thanks @eka_melson for talking through plans & answering questions so thoroughly! Thanks Lida & Cadence for behind the scenes support! London… see you Monday! 😀


DAISy-PCOS reposted

We have 2 workshops for women with PCOS interested in helping us with planning a future PCOS research project - one workshop is in London, the other one is in Birmingham. Last chance to sign up, we are almost fully booked! Scan poster QRs for more information.

cdtgillett's tweet image. We have 2 workshops for women with PCOS interested in helping us with planning a future PCOS research project - one workshop is in London, the other one is in Birmingham. Last chance to sign up, we are almost fully booked! Scan poster QRs for more information.
cdtgillett's tweet image. We have 2 workshops for women with PCOS interested in helping us with planning a future PCOS research project - one workshop is in London, the other one is in Birmingham. Last chance to sign up, we are almost fully booked! Scan poster QRs for more information.

DAISy-PCOS reposted

Thank you @veritypcos for the opportunity to be part of today's excellent @APPG_PCOS oral evidence session focusing on #PCOSTreatment, chaired by @MichelleWelshMP. Very proud of @DAISyPCOS patient advocate Sunila who shared her powerful reflections. Informative talks from all 1/3


DAISy-PCOS reposted

Thank you to the 467 that have completed our survey. We need a minimum of 1000 from as diverse a group as possible. If you have #PCOS & live in the UK please share your experiences. Will only take 15 mins. Pls RT if you can!

Do you have #PCOS & live in the UK? Please take our #PCOSconsultation survey, which will help inform a ** PARLIAMENTARY INQUIRY** into diagnosis & management of PCOS in the #NHS. Take the survey: surveymonkey.com/r/ZX8DD85 Please share!

veritypcos's tweet image. Do you have #PCOS & live in the UK? 

Please take our #PCOSconsultation survey, which will help inform a ** PARLIAMENTARY INQUIRY** into diagnosis & management of PCOS in the #NHS.

Take the survey:
surveymonkey.com/r/ZX8DD85

Please share!


DAISy-PCOS reposted

Thank you so much for coming and contributing- you have done such great work in the field of #PCOS and #PCOSDiagnosis it was great to have you there

Thank you @veritypcos for the invitation to be part of the oral evidence session on #PCOSDiagnosis in parliament today, chaired by @fivanmierlo. Well done to all scientists & lived experience voices who shared powerful data & testimonials, including our #PPIE partner Sunila!

cdtgillett's tweet image. Thank you @veritypcos for the invitation to be part of the oral evidence session on #PCOSDiagnosis in parliament today, chaired by @fivanmierlo. Well done to all scientists & lived experience voices who shared powerful data & testimonials, including our #PPIE partner Sunila!
cdtgillett's tweet image. Thank you @veritypcos for the invitation to be part of the oral evidence session on #PCOSDiagnosis in parliament today, chaired by @fivanmierlo. Well done to all scientists & lived experience voices who shared powerful data & testimonials, including our #PPIE partner Sunila!
cdtgillett's tweet image. Thank you @veritypcos for the invitation to be part of the oral evidence session on #PCOSDiagnosis in parliament today, chaired by @fivanmierlo. Well done to all scientists & lived experience voices who shared powerful data & testimonials, including our #PPIE partner Sunila!


DAISy-PCOS reposted

Thank you @veritypcos for the invitation to be part of the oral evidence session on #PCOSDiagnosis in parliament today, chaired by @fivanmierlo. Well done to all scientists & lived experience voices who shared powerful data & testimonials, including our #PPIE partner Sunila!

cdtgillett's tweet image. Thank you @veritypcos for the invitation to be part of the oral evidence session on #PCOSDiagnosis in parliament today, chaired by @fivanmierlo. Well done to all scientists & lived experience voices who shared powerful data & testimonials, including our #PPIE partner Sunila!
cdtgillett's tweet image. Thank you @veritypcos for the invitation to be part of the oral evidence session on #PCOSDiagnosis in parliament today, chaired by @fivanmierlo. Well done to all scientists & lived experience voices who shared powerful data & testimonials, including our #PPIE partner Sunila!
cdtgillett's tweet image. Thank you @veritypcos for the invitation to be part of the oral evidence session on #PCOSDiagnosis in parliament today, chaired by @fivanmierlo. Well done to all scientists & lived experience voices who shared powerful data & testimonials, including our #PPIE partner Sunila!

DAISy-PCOS reposted

#CoMICsLite #PCOS Ep 6 - PCOS and Teenage- Info in Tamil 🎥youtu.be/cCOZ6EJEUw4 Created by @SimbaComics team led by @Shams_Ali_Baig, @drpunith @vardanvenkates in collaboration with @DaisyPcos, @PCOSVitality, @britspag, @Soc_Endo & @ESEndocrinology.


DAISy-PCOS reposted

Patients & Health Professionals - we need you! What areas should #PCOS research focus on? Have your say by taking this important survey. The results will help focus tomorrows #pcosresearch. Take the survey here: verity-pcos.org.uk/jlapcos #jlapcos


Survey still open! Calling women with PCOS & in particular those from ethnic minority backgrounds, please let your voices be heard! Also calling healthcare professionals from the UK, they need to hear your perspectives on what future research into #PCOS should be focusing on!

Help shape the future of #PCOS research! We’re working with patients & experts to identify the top 10 priorities for #PCOSResearch in the UK. 🔗 Take the Survey: verity-pcos.org.uk/jlapcos.html 📣 Please help us get as many voices heard as possible and share this post #JLAPCOS

veritypcos's tweet image. Help shape the future of #PCOS research! We’re working with patients & experts to identify the top 10 priorities for #PCOSResearch in the UK.

🔗 Take the Survey: verity-pcos.org.uk/jlapcos.html

📣 Please help us get as many voices heard as possible and share this post #JLAPCOS


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