eCysticFibrosis Review
@DKB_CF
eCysticFibrosis Review summarizes the latest cystic fibrosis clinical data and research into a monthly newsletter & podcast. #CF #CysticFibrosis #CME #MedEd
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This is an amazing story of scientific progress When it was first described, life expectancy in cystic fibrosis was about 7 months Today, since discovery of the causative gene (CFTR) and therapies that modulate it (like Trikafta), life expectancy is almost normal
We’ve published final guidance recommending #CysticFibrosis treatments, Kaftrio, Symkevi, and Orkambi, following a new commercial deal between @NHSEngland and Vertex. Find out more⤵️ nice.org.uk/guidance/ta988…
With the availability of modulators, the CF symptoms affecting quality of life are pain, fatigue, shortness of breath, and mental health. buff.ly/3PN6Bxn #cysticfibrosis #cfwarrior #curecf #cysticfibrosislife
We have a great variety of podcasts available for you, check them out on your favorite podcast app or by going to shows.acast.com/ecysticfibrosi… #Podcast #PodcastForClinicians #PodcastAboutMedicine #MedicinePodcasts #CysticFibrosis #PulmonologySpecialist
Promising news! Looking forward to hearing more about this!
Bacteriophage therapy may be a promising treatment for antibiotic-resistant infections in CF patients, according to a small review study. buff.ly/3qwNezv #cysticfibrosis #cfwarrior #curecf #cysticfibrosislife
Beam #cysticfibrosis youth, developed in collaboration with Johns Hopkins CF center and @YogaForCF is FREE all summer long! Please spread the word and help CF families from around the world benefit from this awesome resource. Read more here beamfeelgood.com/blogs/beam-cf-…
In June, over 2,000 researchers, doctors and CF teams gathered at the European CF research conference, organized by European CF Society (#ECFS), discussing the latest news in #cysticfibrosis. #ResearchAppreciationDay (1/3)
Check out the latest @DKBmed eCysticFibrosis Review Special Edition focusing on #CF Nutrition and highly effective modulator treatments (HEMT). CF patients have long struggled to gain and maintain their weight. How have HEMTs changed that situation? buff.ly/3Gm4CdZ
The advent of triple CFTR modulator therapy poses a number of clinical questions. Are 3 agents better than 2? For which patients, in what circumstances? Professor McKone, MD discusses in this eCysticFibrosis Review podcast. elit.dkbmed.com/issues/150
Raising children comes with a lot of germs. Christin Strong, a parent with cystic fibrosis, shares her tips for protecting your health and guarding against germs when you have kids in daycare. on.cff.org/3fQr59A
NEW @DKBmed eCysticFibrosis Review podcast - ETI (CFTR Triple Therapy): Clinical Opportunities. The advent of triple CFTR modulator therapy ETI (elexacaftor/tezacaftor/ivacaftor) poses a number of clinical questions. We explore these and more. buff.ly/3D6yrzr
Starting college is a big change for anyone. Kaitlyn Vargas, an adult with cystic fibrosis, shares 10 tips for navigating this life change while keeping up with your CF care. on.cff.org/3PP3mU5
Congratulations to Melanie Lawrence, an adult with cystic fibrosis, who was the recipient of this year’s Alex Award at #CFFVLC!
Check out the latest podcast from eCysticFibrosis Review @DKB_CF on Race, Ethnicity, and #CysticFibrosis featuring @JenTaylorCousar. elit.dkbmed.com/issues/141/pre…
Last week I had the privilege of attending #DIA2022 as a selected patient scholar and spoke on a panel with brilliant individuals in the healthcare landscape working collaboratively to improve patient’s lives. I also met a few wonderful fellow patient advocates!
As CF Awareness Month comes to a close, we want to thank you for sharing your stories all month long and helping us raise #CFAwareness. Together, we can make CF stand for Cure Found.
Dr. Mogayzel and @CF_Foundation board members and staff @MaryDwight are meeting with senators today in Washington DC to advocate for the PASTURE bill to support development of new #antibiotics to fight resistant bacteria.
The Johns Hopkins Great Strides team has a goal of raising $11,000 and needs your help to meet the goal. Your generous gift will help accelerate the CF Foundation’s pursuit of new therapies and provide vital support to meet the needs of those with CF fightcf.cff.org/site/TR?px=142…
Happy birthday to Dr. Dorothy Hansine Andersen! Dr. Andersen was the first person to identify #cysticfibrosis in 1938. #CFAwarenessMonth
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