내가 좋아할 만한 콘텐츠
Full story in print today! So grateful to @people and to my pit crew/mentors/squad @asktheallergist @RuhoyMD @BluesteinLinda and Drs Francomano and Henderson. I feel very fortunate. #EDS #MCAS #POTS #InvisibleIllness people.com/health/doctor-…
#Nurses: Trying to get in touch with @NIAIDNews (a doc) emails bouncing. Presumably, operations...affected. On website directory giant list, no clue who to reach out to - decided to just look for #RN regardless of sub-specialty. Bc an RN will figure it out. THAT is nurses. 💕
BLACK WOMEN COUNT. Are we seriously@going back to POC counting as a fraction of a person??? Is the fraction 0/3??? This is so far beyond the limits of decency. businessinsider.com/gop-senator-la…
Accountability matters. If this patient suffered a complication due to her surgery being interrupted, being sent home that same day, etc., the doctor has all of the liability. The insurance company has none. This can change. What are we waiting for??? x.com/BillAckman/sta…
Yesterday, I made a critical post about @EPotterMD and her experience with United Healthcare. I took it down when my office heard from the Clare Locke firm which represents UNH which called and stated that the doctor’s claims were not true. We have used Clare Locke and think…
Human suffering is infinite Blame, Anger, Fear, Hatred: infinite Compassion can also be infinite Mourn each loss. Pray for each terrified/injured/hungry/sick/kidnapped/orphaned child Compassion for one need not diminish compassion for another Love & peace are not betrayals 🕊️
CP, OCD, Cancer - imagine a cardiologist's office "not taking pts w these dx". Unthinkable. #EDS : "outside scope" used by every specialty. Abdominal pain: GI "doesn't see EDS pts". Orthostatic Intolerance: Cards says same. #MedTwitter See @TheEDSociety @Dysautonomia for CME
Reunited w friend from college who toured prismsj.com today! Me: when you found out I had EDS, did it make so much sense? Him: no, actually. I was shocked! Me: Don't you remember me having to be carried up and down stairs a lot? Him: that wasn't bc you were drunk?
These break my 💔 but dogs can teach us so much. A person can go through this type of transition in so many ways, too. And they might look exactly the same to us before and after. Bc we can't really see someone just by looking.
10 weeks apart. That was her daily life and the end of the road for Faith. Now she looks like a million dollars, has a lovely safe home to go to and her healthy is back. You just love to see it ❤️ (7/7)
The world shows up for us sometimes. Had watched the video of this long jump and hug 2-3x already, without any background knowledge. And it felt so special. To now find out he is a double amputee Paralympian is so heart warming it almost feels selfish to be able to watch them.
10 weeks apart. That was her daily life and the end of the road for Faith. Now she looks like a million dollars, has a lovely safe home to go to and her healthy is back. You just love to see it ❤️ (7/7)
When the hand came out of the log I lost it.. 😂
@TheEDSociety #GLC in less than two weeks away! Please share widely. I've just learned we have a few spaces remaining in our FULL DAY PROGRAM: SUNDAY 7/21 & Peds 7/20! Register @ EDS Society website (need to create profile) Learn about Physiolign @ physiolign.com
Remembering Leigh tonight. She should be here with us, as a practicing Orthopaedic Surgeon and inspiration to us all. Sadly, she is only the latter. Leigh Sundem Memorial Scholarship | Center for Addiction Recovery | Georgia Southern University georgiasouthern.edu/jphcoph/addict…
My life will forever be divided into before and after my friend @drrachelrubin informed me about clitoral hood adhesions. Like Rachel, the vagina (colloquial usage) never ceases to amaze. Sadly, I've got my hands full w pelvic bones, ligaments, muscles, fascia!
13 years ago I graduated medical school and more importantly I got my first iPhone 📱 And today I’m #1 trending on @BuzzFeed talking about clitoral adhesions. While it’s not the New England journal of medicine….im helping a lot of people! buzzfeed.com/meganeliscomb/…
I haven't been posting much - putting all my energy into prism, education, foundation, and actually putting together a local care team. Saw my new #POTS cards in Nov. called 2 wks ago for f/u. No longer seeing POTS pts. Heard today lots of pts got the notice. Pls read my rxn.
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내가 좋아할 만한 콘텐츠
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Hypermobility MD: Dr Linda Bluestein
@BluesteinLinda -
Dysautonomia Intl.
@Dysautonomia -
S Blitshteyn MD, FAAN, FANA, Dysautonomia Clinic
@dysclinic -
Gez Medinger
@gezmedinger -
🕸️Dr.T, PhD
@chydorina -
PolyBio
@polybioRF -
BendyBrain: Dr Jessica Eccles
@BendyBrain -
Putrino Lab
@PutrinoLab -
Nele
@NeleHelena -
Hannah Davis
@ahandvanish -
angela mv/p 💁🏻♀️
@ItsAngInLA -
Jeannie Di Bon
@jdibon -
SEDSConnective
@SEDSConnective -
Julie Rehmeyer
@julierehmeyer -
hypermobility.org
@HMSACharity
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