ENGAGe.ESGO
@EngageEsgo
The European Network of Gynaecological Cancer Advocacy Groups is an ESGO network. Organiser of @WorldGODay 💜
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One of the biggest barriers women often face when it comes to uterine cancer is stigma.*💜🧡 Often, symptoms are seen as taboo or embarrassing, leading to silence and delayed care. Awareness is dangerously low – both among women and healthcare professionals – and without…
It’s that time of year to get my pumpkins 🎃 out. Do check your vulva regularly. More information lichensclerosusguide.org.uk
I feel honored and privileged to receive this beautiful glass statuette. It means a great deal to me, and I want to extend a big thank you to IGCS and IGCAN for this amazing recognition. #cancer #patientadvocate #gynecologicalcancer
We had a great time making connections and advancing conversations about the patient’s perspective of gynae cancer treatment at #ESMO2025 earlier this week! ENGAGe’s Co-Chair Kim Hulscher, as well as Co-Chair Elect Anne De Middelaer and Past Co-Chair Ico Toth, Director Eva…
Don't ignore symptoms of Ovarian Cancer. Bloating. Feeling full. Abdominal pain. Toilet changes. #BEAT @TargetOvarian @ovacare
Girls diagnosed with prepubertal vulvar lichen sclerosus who adhered to topical corticosteroid treatment were significantly more likely to achieve remission and report better quality of life. 🔗 medscape.com/viewarticle/ad…
99% of women with LGSOC had never heard of it before diagnosis. The average time from symptoms to diagnosis? Nearly 3 years. Understanding the difference between borderline ovarian tumors and LGSOC could save your life. nottheseovaries.org/lgsoc-vs-bot/
You know your body best.🩵 👀👀If you notice something unusual, like bloating, feeling full too quickly after eating, or changes in how often you need to use the bathroom, get it checked out. When ovarian cancer is detected early, it is easier to treat.
Our 2025 campaign has been our largest yet! We are extremely grateful for the support of our partners, which has enabled us to continue to grow. Thank you for making a difference! 💜🩷🩵💙🧡💛🌎🌍🌏 @AstraZeneca @Genmab @Eisai_SDGs @GSK @EngageEsgo
We are fortunate to have patient representatives from ESGO’s European Network of Gynaecological Cancer Advocacy Groups (@EngageEsgo ) featured throughout the #ESGO2026 programme. Select delegates of the ENGAGe Patient Advocacy Seminar, which is designed especially for patients…
We are proud to support the Cancer Patients Europe Position Paper on Defining Unmet Medical Needs. 💜 The definition of Unmet Medical Need (UMN) will play a decisive role in how research is prioritised, how innovation is incentivised, and how patients gain timely access to new…
We’ve rebranded! 🌍✨ Being Africa has grown from an initiative into a bold, independent force in NCD advocacy. Our new logo reflects this evolution, new look, expanded mission, same heart. We’re still Being, just bigger. 💪🏾 #BeingAfrica #Rebrand #NCDs #HealthInnovation
As it's now Breast Cancer Awareness Month I wanted to remind you when you check your breasts then check the rest. Know your normal and any changes get checked! If in doubt get checked out! Check your vulva to and be vulva aware.
Jennifer Garam, friend of the Coalition, shares her journey from sudden symptoms to an ovarian cancer diagnosis. Early awareness is key - listen to your body. 💙 Read the full story here: loom.ly/OyIcVUQ
Know the symptoms. Trust your instincts. Advocate for your health. Learn more in Episode 1 of Changing the Ovarian Cancer Story with Hannah Vaughan Jones, Clara Mackay & Sbba Siddique. 🔗 Listen here: loom.ly/lZaGqng #Podcast #NoWomanLeftBehind #WomensHealthMatters
Olivia, our digital support tool for all those affected by ovarian cancer, was launched in Greece recently! A diagnosis of ovarian cancer can be overwhelming and confusing, and we recognise that many newly diagnosed patients, and those already living with ovarian cancer, want to…
Olivia, our digital support tool for all those affected by ovarian cancer, was launched in Greece this month! A diagnosis of ovarian cancer can be overwhelming and confusing, and we recognise that many newly diagnosed patients, and those already living with ovarian cancer, want…
We’re making it easier for you to understand our webinars! Attendees of the “Breaking the Silence” webinar will be able to use automatic translation to the language of their choice. We hope this will enable better accessibility for your members & communities so more people can…
The majority of cervical cancers are caused by the human papillomavirus. The good news is that it can largely be prevented by HPV vaccination in early puberty and attending HPV cervical screening when invited @HSEImm #cervicalcheck @NSShse @russellnoirin @WorldGOday
Some days you feel strong. Some days you struggle. That’s normal for gynae cancer patients as they work toward and through survivorship. This week’s #ToMySoul post has a quick exercise to help you on those hard days. Give it a try! 🦋💜
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