FlutterbyFUNdraisers
@Flutterby4CF
Cystic Fibrosis Charity raising awareness and funds to support research. 100% of donations currently go to UK CF Gene Therapy Consortium
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***URGENT FUNDRAISING APPEAL*** #livehopebreath #cf #cffamily #charity #inthistogether uk.virginmoneygiving.com/charity-web/ch…
If you need beds freed up @MattHancock why not follow the devolved nations lead and allow England to follow FDA licensing for Kaftrio 1,000s more wld be eligible you are failing CF patients in the pandemic its #inequality #EnglandNeedsKaftrio4All #KaftrioEqualityUK
delighted to be one of the chosen charities for this incredible challenge.
Some friends and I have chosen eight charities (close to our hearts)... Between now and the end of 2021 we will attempt eight separate fundraising cycles... 🚴🏻♂️👍🏻
Amazing news 💜🌹
'Life-transforming' cystic fibrosis wonder drug coming to Scotland soon thenational.scot/news/18554948.…
Guys I need some help for an upcoming YouTube video for CF week! This applies to anyone who has #cysticfibrosis or has a kid with CF or a partner with CF! I am looking for a short video (5-20seconds) telling me a small fact about your life with CF... (1/3) @CFAware @cftrust
👇👇#staysafe this is excellent advice 👇👇
'Life-transforming' cystic fibrosis wonder drug coming to Scotland soon thenational.scot/news/18554948.…
Anybody else out star gazing tonight? Our sky's are clearer than I've ever seen them here
The NHS is open…👇🏼
Don't ignore the early warning signs of serious conditions. If you or your child are unwell with non-coronavirus symptoms, it's important to seek medical help by contacting your GP. If your symptoms worsen out of hours, call 111. In an emergency, dial 999.
Our very own hero taking time out for the kids #cf #eventsbytlc #batman #happyeaster facebook.com/45309201810937…
The issue now appears to be fixed.
@scotgov @jasonleitch @jackiebmsp been informed that those in Scotland (not sure about rest of UK) who are texting their CHI number to 07860 064525(number giving in the official letter) will not be successful if you are on EE mobile network. Are you aware of this?
Please RT our family and friends need these urgently @piersmorgan @Lord_Sugar
***URGENT FUNDRAISING APPEAL*** #livehopebreath #cf #cffamily #charity #inthistogether uk.virginmoneygiving.com/charity-web/ch…
We are desperately looking for funding. Does anyone know of any grants we can apply for? #COVID19 #cf #cffamily #cfcharity #fundraising
***URGENT FUNDRAISING APPEAL*** #livehopebreath #cf #cffamily #charity #inthistogether uk.virginmoneygiving.com/charity-web/ch…
Please RT or friends and family need these urgently @GradySNP @AlexNeilSNP @neilgraysnp @DavidLinden @KennyMacAskill @StewartMcDonald @Stuart_McDonald @AnneMcLaughlin @CMonaghanSNP @DavidMundellDCT @GavNewlandsSNP @kirstenoswald @ChrisStephens @alisonthewliss
***URGENT FUNDRAISING APPEAL*** #livehopebreath #cf #cffamily #charity #inthistogether uk.virginmoneygiving.com/charity-web/ch…
Please RT Our family and friends need these urgently @AmyCallaghanSNP @DrLisaCameronMP @amcarmichaelMP @wendychambLD @DougChapmanSNP @joannaccherry @ronniecowan @AngelaCrawley30 @MartynDaySNP @MartinJDocherty @DaveDooganSNP @david_duguid @marionfellows @MargaretFerrier
***URGENT FUNDRAISING APPEAL*** #livehopebreath #cf #cffamily #charity #inthistogether uk.virginmoneygiving.com/charity-web/ch…
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