Honeycomb Health
@HCombHealth
Helping patients living with #rarediseases through innovation. Support @takeheartlive, On the Road for Rare 👉 http://gofund.me/278cd59f.
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In the latest Health Design Podcast, patient advocate Rebecca Trahan and Elizabeth Apelles, founder of Honeycomb Health, talk with Moyez Jiwa, MD, to discuss rare diseases, data privacy, and the power of peer communities. soundcloud.com/user-499494424… #SCADHeart #FMD #rarediseases
Rare disease patients live by manually managing endless medical data from different doctors, tracking test results in 15lb binders, and constantly recording their own diagnostic tests. This can end. Can you help us? 👉 gofund.me/f1a33127.
Physical activity and exercise in patients with spontaneous coronary artery dissection and fibromuscular dysplasia academic.oup.com/eurheartj/arti…
Wishing you and your family a Merry Christmas 🎄! May you find lots of reasons to celebrate this special season. Thank you for being with us this year ❤️.
It's time to treat everyone who requires coronary revascularization based on their clinical indication, without letting sex, race, or ethnicity enter the picture. Give women, minorities a fair chance on coronary revascularization 👉 ow.ly/10U650HahQk. @medpagetoday
.@GMA health alert: Rare condition “SCAD” can affect young, healthy women. Thanks @washingtonpost’s @ErinatThePost for going public with your personal health story to raise awareness of #SCAD. I’m trying to do same. @SCADalliance goodmorningamerica.com/wellness/video…
goodmorningamerica.com
One woman details shocking bypass heart surgery after giving birth to 3rd child
In a new “GMA” health alert, a rare condition known as “SCAD” can affect young, healthy women often after having a baby.
What is SCAD? How is it different from atherosclerosis? These and other answers from Dr. @SharonneHayes, Mayo Clinic cardiologist, founder of the Women's Heart Clinic and director of the Spontaneous Coronary Artery Dissection Clinic. youtube.com/watch?v=5eui9i…
youtube.com
YouTube
Medicine/Disease Series: Spontaneous Coronary Artery Dissection (SCAD)
Important thread about spontaneous coronary artery dissection which we are studying in a large registry @iSCADregistry
Please, if you or someone you love feels weight on their chest, dizziness, aching arms or jaw, or a general “not right” feeling, get help even if they’re young and healthy. If something’s wrong when it seems nothing should be wrong, keep pressing for a diagnosis. 11/x
Spontaneous Coronary Artery Dissection and It's Relation to Fibromuscula... youtu.be/hRhsA8HjMq4 via @YouTube
Two new registry studies of spontaneous coronary artery dissection (#SCAD) presented at TCT 2021 emphasize the importance of medical therapy and proper diagnosis for this rare but important cause of ACS: tctmd.com/news/conservat…. @TCTMD
Get to know #DC area #nonprofits making a difference during the @YourDCTV #GivingTuesday Event. #SCADALLIANCE is a proud #DCTV grantee. Look for us! youtu.be/XJQE7RMcDoU via @YouTube
youtube.com
YouTube
2021 GIVING TUESDAY Promo 40
This #GivingTuesday we invite you to support us. Our nonprofit helps rare disease communities to better manage their disease, get early diagnosis and drive research 👉 gofund.me/f1a33127.
At this time of year, many people look for organizations and causes where they can help and show their generosity. At Honeycomb Health, we need your help to improve the lives of people suffering from a rare disease 👉 gofund.me/f1a33127. Thank you! #nonprofit #raredisease
Pay attention to good things. Gratitude is like a muscle that we can strengthen. "Think of what a precious privilege it is to be alive - to breathe, to think, to enjoy, to love." (Marcus Aurelius) Happy Thanksgiving! 🍂🍁🥧
Heart disease kills 1 in 3 women in U.S. The good news? 80% of heart disease is preventable. So let’s get the word out. Knowledge is power. @takeheartlive wants to ensure 100% of U.S. women are aware that heart disease is the leading cause of death 👉takeheart.live.
How can healthcare respond to the needs of patients with rare diseases? @takeheartlive and @eapelles tell us how they are leveraging digital tools and technology to respond to patients' needs. ow.ly/NMkl50GVige. #RareDiseases #HealthTech #Blockchain
soundcloud.com
SoundCloud: The Music You Love
Rebecca Trahan and Elizabeth Apelles from Honeycomb Health
Michele DeMarco was 33 years old when she woke up one Saturday morning with what felt like an elephant on her chest. She was suffering from a little-known heart attack that affects mostly young women ❤️🩹. #SCAD webmd.com/heart-disease/…
Spontaneous coronary artery dissection (SCAD) is an important cause of acute coronary syndrome (ACS) in predominantly young females. Treatment guidelines advocate conservative treatment of SCAD. Read the full article: hubs.la/H0_4bmh0 #coronary #artery #cardiology
Men's health can be affected by more than prostate cancer and low testosterone. Learn about other diseases that can pose #health threats. On International Men's Day, we want to emphasize the importance of getting regular medical checkups 👇👇 everydayhealth.com/news/rare-real…
When was the last time you made someone smile? 🤔 Today you can make someone who is suffering from a rare disease and their family smile. 😊 Let's donate! 👉 gofund.me/f1a33127
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