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I just wrote my member in a campaign for Disabled American Veterans! dav.quorum.us/campaign/41864/
Go deeper than headlines with @thedailyupside sparklp.co/a48d6976?utm_s…
🙋♀️ Volunteer Local Group Coordinators needed! 🙋♂️ We're looking to recruit Volunteer Local Group Coordinators to help support people living in: - North of Scotland - Northern Ireland - Manchester - Nottingham - London Learn more about the role at pspassociation.org.uk/get-involved/v…
Please share to help more people spot the signs and symptoms of PSP & CBD earlier so they can access the relevant support and care. #PSPAware #TuesdayTakeover #10000Voices
PSP is a terminal condition. With no simple tests for diagnosis, it can get misdiagnosed, but these red flags can help, acting as warning signs Progressive: worsens over time Supranuclear: it damages the nuclei that control eye movements Palsy: causes weakness #TuesdayTakeover
1st #autopsy report of anti-tau #immunotherapy related changes in human brain. Gosuranemab→ "perivascular vesicular astrocytes," accumulation of lysosomal #tau. No clearance of #tauopathy but at least treatment did something. #Alzheimer #PSP #CBD #FTD doi.org/10.1007/s00401…
Alzheimer's drug sparks emotional battle as FDA nears deadline on whether to approve. news.yahoo.com/alzheimers-dru… via @YahooNews
Alzheimer's drug sparks emotional battle as FDA nears deadline on whether to approve news.yahoo.com/alzheimers-dru… via @YahooNews
yahoo.com
Alzheimer's drug sparks emotional battle as FDA nears deadline on whether to approve
When Phil Gutis was diagnosed with early-stage Alzheimer's disease at 54, he immediately enrolled in a clinical trial for an experimental drug but had little hope of being helped. Over time, though,...
#PSP_ProgressiveSupranuclearPalsy Awareness Please RT thecourier.co.uk/fp/lifestyle/h…
thecourier.co.uk
'My jaw could have hit the floor': More awareness needed of rare neurological condition, says Fife...
Michael Alexander speaks to Fife woman Elizabeth Birrell who, following the death of her husband Ian, is continuing to fundraise and campaign for
Often the correct diagnosis can take years, causing such heartache for the families knowing the diagnosis is wrong and they often feel their voice isn't heard. The diagnosis of PSP/CBD is bitter-sweet, thank heavens someone knows what it is (sweet), but no treatment/cure (bitter)
Research indicates up to 50% of people living with PSP & CBD are initially diagnosed with other neurological conditions inc Parkinson’s. Share our ‘Its not Parkinson’s’ animation to help more people spot PSP & CBD: youtu.be/-tVFyfL_wzk #10000Voices #RareDiseasesDay #PSPAware
youtube.com
YouTube
It's not Parkinson's
We ask you to view treatingcbs.com. My husband participated in #TauBasket trial with #Biogen #Gosuranemab The results were a REVERSAL in neuro symptoms. He was denied access for 10 months and has now received another dose. Follow us as we share this new phase.
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