Deborah D. Perry
@DeborahDPerry
Author of "Somebody's Sister," a story of my sister's battle with a rare brain disease. #endFTD #AFTD #Writers
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"Everything about her was all just rushing away from me so fast. I needed to freeze frame her for a moment." Sharing my sister Lyndy's struggle with #PicksDisease on this thread to raise awareness for #FTD during the AFTD's #WithLove campaign throughout February. #EndFTD
Thank you for using your platform to raise #FTDawareness @MinPiwniuk. More people need to know that frontotemporal degeneration (#FTD) is the most common #DementiaUnder60: theaftd.org/what-is-ftd/di… #ThinkFTD #endFTD
Today is #RareDiseaseDay2022 I’m raising awareness for #FTD frontotemporal dementia, which affects less than 5% of dementia cases & affects people under the age of 60. There’s no cure or treatment, lets raise awareness to aid with research & to end this disease #mbpoli @AFTDHope
Just posted a photo in honor of the final day of #WorldFTDAwarenessWeek. @worldFTDunited instagram.com/p/CUlgUm7Mshs/…
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Deborah Perry (@deborahdperry) • Instagram photo
Deborah Perry (@deborahdperry) • Instagram photo
There are stories to tell. @worldftdunited has created A Global Conversation on FTD with videos from those affected, families & health professionals inc @RareDementia's @jonrohrer and @zimmo71. Be part of the conversation on 2 Oct: worldftdunited.net #WorldFTDAwarenessWeek
❗ Today is the premiere of the much-anticipated #GlobalConversationOnFTD! For #WorldFTDAwarenessWeek, AFTD worked with international coalition @WorldFTDUnited to produce a community-driven video broadcast featuring #FTDstories from around the world: worldftdunited.net 🌎
Join me in remembering people living with FTD and their loved ones during this #WorldFTDAwarenessWeek. @worldFTDunited #EndFTD
#WorldFTDAwarenessWeek Join us tomorrow at 7pm for the exclusive virtual screening of @2ndSpringFilm. The film will be followed by a Q&A with Dir. Andy Kelleher & @RareDementia's Prof. @jonrohrer. Claim your FREE ticket by using voucher code NBAFREE 👉 bit.ly/SSLIVE21
In advance of #WorldFTDAwarenessWeek, we’re giving away 100 FREE tickets for an exclusive virtual screening & Q&A of @2ndSpringFilm. Dir. Andy Kelleher spent time with @RareDementia's Prof. @jonrohrer, a leading expert in #FTD – to ensure the experience was accurately portrayed.
Today starts #worldftdawarenessweek. We decided to honor those living with #ftd, it would be great to get their perspective on life with #frontotemporaldementia.
Sending love to all #FTD caregivers and families during this #WorldFTDAwarenessWeek. @AFTDHope @EndFTDregistry @FTDandMe @FTDtalk
We've set an ambitious goal for AFTD's #FoodforThought2021🍽️ fundraising & awareness campaign: an event hosted in each of the 50 states! We still need hosts in the unrepresented (gray) states to meet our goal. Be the one to put your state on the map today: bit.ly/3mDbYSh
🌎 #WorldFTDAwarenessWeek 2021 runs from 9/26-10/3. All eyes 👀 will be focused on #FTDawareness. Share a 1-2 minute video 🎬 or your written #FTDstory by 9/10 to be included in a special @worldFTDunited broadcast and a global conversation about #FTD: bit.ly/3t8MYDK
This month's #AFTDAthleteSpotlight 🔦 shines on Mona S., whose mother was diagnosed w/ #bvFTD 10 years ago. Mona gets inspired knowing that every hike she logs on @CharityMiles advances AFTD's mission. Retweet to celebrate Mona's 540+ miles, then join her: bit.ly/38bcU7J
"To all those who are caring for a loved one, take a break when you need it and don’t be too hard on yourselves. It’s not easy." Two-time Super Bowl-winning head coach Tom Coughlin shares his experience & offers tips for other caregivers: nyti.ms/3BdHz0U via @nytimes
You're welcome! We're grateful to everyone who is working to raise awareness of FTD & bring us closer to a #FutureFreeOfFTD.
We took Lyndy to one doctor after another, retelling the story: something was wrong with our sister and we needed help. It’s depression, they would say. It’s not depression, we would tell them. It’s alcoholism, they would say. She hasn’t had a drink in months, we would argue.
We took Lyndy to one doctor after another, retelling the story: something was wrong with our sister and we needed help. It’s depression, they would say. It’s not depression, we would tell them. It’s alcoholism, they would say. She hasn’t had a drink in months, we would argue.
On average it takes 3.6 years to get an accurate #FTDdiagnosis & there is no test that can diagnose it with certainty in a living person. 🔬 But, a recent @Penn study suggests that 3 biomarkers used to identify #Alzheimers may be useful in diagnosing #FTD: bit.ly/3ywWUbV
On average it takes 3.6 years to get an accurate #FTDdiagnosis & there is no test that can diagnose it with certainty in a living person. 🔬 But, a recent @Penn study suggests that 3 biomarkers used to identify #Alzheimers may be useful in diagnosing #FTD: bit.ly/3ywWUbV
Happy Friday #WritingCommunity Let's celebrate with a #writerslift Follow me, I'll follow back Drop your #book links below so I can RT a bunch #readingcommunity #writers #BookBoost
"If the world hadn’t turned on its axis when it did, our paths might not have reconnected. But time was what we needed...for the two of us to be on the same journey once again, those two barefoot little girls in dresses..." More from #SomebodysSister: bit.ly/3b2NpHZ
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