ITP Support Assoc

It’s here & free to download. It’s a vital resource for anyone with any interest in ITP - The ITP Support Association - Shared decision making. #itpaware #itpawareness #global4itp #ITPStrongerTogether ⁦@rarediseaseuk⁩ ⁦@NHSEngland⁩ itpsupport.org.uk/index.php/en/h…

"ITP & Me": Your Free Guide for Young Adults and Teens💜 Are you a young person navigating a diagnosis of ITP? This book is for you! ITP and Me – An ITP Book for Young Adults and Teenagers is filled with 48 pages of vital information and, crucially, the real-life experiences of…

Living with ITP means managing an unpredictable autoimmune condition. The anxiety surrounding fluctuating platelet counts, the fear of bleeding, and the constant need for vigilance create a significant mental load that often goes unseen. It's crucial to acknowledge the emotional…

Platelet Power: A Pep Talk for Today ✨ Platelets might be tiny, but they do incredible work! Living with ITP can be a challenge, so today we're celebrating resilience and strength. We want to hear your voice! What's one thing you appreciate about your body, your mindset, or…

After years of managing fluctuating platelet counts, failed treatments, and severe bleeding, Pam mentioned a seemingly minor change—a long, light period—to her Haematology nurse. That conversation led to tests that revealed something entirely unexpected: Stage One Endometrial…

Is it safe to fly when you have Immune Thrombocytopenia? This question requires a personalized assessment, but here are some general considerations regarding platelet counts: Platelet Count ≥30: There is generally considered to be little risk of bleeding during air travel at…

This powerful message comes straight from Dave Farrow in his inspiring new article! Living with Immune Thrombocytopenia means managing a complex condition, but as Dave shares, it doesn't mean letting ITP define your life or steal your control. His perspective is a testament to…

Understanding ITP: The Common Symptoms 💜 ITP affects everyone differently, but recognizing common symptoms is a vital step in managing the condition. Swipe through to learn more about the signs that often lead to a diagnosis or require attention. From visible clues like easy…

Agne Zice – New Trustee and ITP Patient Agne was born and educated in Lithuania before moving to the UK in 2009 to pursue her university studies. She graduated from City University of London with a degree in Media Studies and Sociology and has since built a career in commercial…

Have you ever considered how your generosity could continue to make a profound difference for generations to come? Leaving a gift to the ITP Support Association in your Will is a truly special way to help fund our vital work in patient support and groundbreaking research into…

Where Did Your ITP Journey Begin? 💜 For many, the road to an ITP diagnosis is confusing and often starts with unexpected symptoms. That moment when you finally receive a name for what's happening to your body can be a powerful one. We want to hear from you. If you're…

Supporting the Pupil with ITP: A Guide for Schools 💜 For most children and teens with ITP, a low platelet count has little to no impact on the classroom routine. However, a few simple accommodations can make all the difference in their safety and well-being. Schools play a…

Did you know that there is no state funding for ITP research? The vital, groundbreaking work listed below happens entirely because of the generous donations and fundraising efforts of our incredible community! Your support is directly responsible for advancing our understanding…

Connect with the ITP Support Association on LinkedIn🤝 We have officially launched our presence on LinkedIn, and we invite you to connect with us! Following our company page is a great way to stay updated on our vital work. Follow our company page here: ➡️…

Give as You Live: Support ITP While You Shop! 💜 Did you know you can raise money for the ITP Support Association without it costing you an extra penny? It's easy with Give as you Live Online! Simply join the platform, and whenever you shop through their dashboard at any of…

Meet The Team: Professor Nichola Cooper trained at Cambridge University and Barts and the London School of Medicine and Dentistry. She completed her haematology training at University College Hospital and subsequently gained research experience at Cornel Medical College, New…

This is a video put together by Michelle who is part of the wonderful team looking after ITP patients in the Haematology Clinic at Hammersmith Hospital under ITPSA Trustee Prof Nichola Cooper. Thanks must also go to Deena Paul ITP CNS. #itpawareness youtube.com/shorts/-f6kUJW… via…

ITP can unfold in different ways, and recognising its phases can offer valuable insight into the journey. It's important to highlight these key stages, from initial diagnosis through to chronic ITP. Each phase brings its own set of experiences and considerations. #PhasesOfITP…

A Quick Summary of ITP from the Experts We are pleased to share a new resource: a quick summary of Immune Thrombocytopenia by our very own Chair, Professor Adrian Newland CBE. As a leading expert in Haematology, Professor Newland offers a clear and concise overview of the…

We're wearing purple today to stand with the global ITP community 💜 Purple is the official colour of ITP awareness—representing strength, resilience, and support for those living with Immune Thrombocytopenia.  Whether it’s a scarf, a t-shirt, or a pair of socks, every shade…

The strength of our community extends far beyond our local borders. We're proud to be part of the International ITP Alliance, a global network of ITP patient organisations working together across 31 countries. This alliance ensures that no matter where you are in the world, the…