ITP Support Assoc

It’s here & free to download. It’s a vital resource for anyone with any interest in ITP - The ITP Support Association - Shared decision making. #itpaware #itpawareness #global4itp #ITPStrongerTogether ⁦@rarediseaseuk⁩ ⁦@NHSEngland⁩ itpsupport.org.uk/index.php/en/h…

👋 Meet Richard Blake – Trustee & ITP Patient We are delighted to introduce Richard Blake, one of our dedicated Trustees! Richard, a retired District Judge, brings a unique and highly valued patient perspective to our leadership team. His ITP journey began as a complete shock…

Splenectomy and ITP: Understanding the Procedure🩸 For some patients with chronic, severe ITP, a splenectomy (surgical removal of the spleen) remains a valid but thankfully, rarely used treatment option. But why remove the spleen? In ITP, the immune system mistakenly destroys…

Join the Platelet Mission: Become a Member of the ITP Support Association 💜 Joining the ITP Support Association means connecting with a community that truly understands. Whether you are a patient, a caregiver, a medical professional, or a supporter, your membership helps us…

65 Years and Counting: Dave Bagshaw's Incredible ITP Journey 💪💜 Some ITP stories span a lifetime, and few are as extensive as Dave Bagshaw's "Sixty-five year acquaintance with ITP." Dave's journey began in 1955 at age eleven. From enduring early, non-child-friendly hospital…

ITP Support Association Annual Patient Convention 2026 The ITPSA 2026 UK ITP Patient Convention will take place on Saturday 27th June 2026 at the Royal College of Pathologists in London. The ITP Support Association 2026 UK ITP Convention will take place on Saturday 27th June…

The ITP Registries: Turning Data into Progress 📊💜 Did you know that patient data is one of the most powerful tools we have in the fight against ITP? The ITP Support Association proudly supports the UK's vital ITP Registries - the Adult, Childhood, and Pregnancy Registries.…

Your Donation: Powering the ITP Community💜 Did you know the ITP Support Association relies entirely on the generosity of people like you? Every donation, large or small, helps us continue our mission to promote and improve the welfare of patients and families affected by…

ITP's Invisible Challenge: The Mental Load 🧠💜 Living with ITP means managing not just the physical symptoms, but also the significant mental and emotional load of an unpredictable condition - the worry, the anxiety, and the need for constant vigilance. We want to talk about…

"ITP & Me": Your Free Guide for Young Adults and Teens💜 Are you a young person navigating a diagnosis of ITP? This book is for you! ITP and Me – An ITP Book for Young Adults and Teenagers is filled with 48 pages of vital information and, crucially, the real-life experiences of…

Living with ITP means managing an unpredictable autoimmune condition. The anxiety surrounding fluctuating platelet counts, the fear of bleeding, and the constant need for vigilance create a significant mental load that often goes unseen. It's crucial to acknowledge the emotional…

Platelet Power: A Pep Talk for Today ✨ Platelets might be tiny, but they do incredible work! Living with ITP can be a challenge, so today we're celebrating resilience and strength. We want to hear your voice! What's one thing you appreciate about your body, your mindset, or…

After years of managing fluctuating platelet counts, failed treatments, and severe bleeding, Pam mentioned a seemingly minor change—a long, light period—to her Haematology nurse. That conversation led to tests that revealed something entirely unexpected: Stage One Endometrial…

Is it safe to fly when you have Immune Thrombocytopenia? This question requires a personalized assessment, but here are some general considerations regarding platelet counts: Platelet Count ≥30: There is generally considered to be little risk of bleeding during air travel at…

This powerful message comes straight from Dave Farrow in his inspiring new article! Living with Immune Thrombocytopenia means managing a complex condition, but as Dave shares, it doesn't mean letting ITP define your life or steal your control. His perspective is a testament to…

Understanding ITP: The Common Symptoms 💜 ITP affects everyone differently, but recognizing common symptoms is a vital step in managing the condition. Swipe through to learn more about the signs that often lead to a diagnosis or require attention. From visible clues like easy…

Agne Zice – New Trustee and ITP Patient Agne was born and educated in Lithuania before moving to the UK in 2009 to pursue her university studies. She graduated from City University of London with a degree in Media Studies and Sociology and has since built a career in commercial…

Have you ever considered how your generosity could continue to make a profound difference for generations to come? Leaving a gift to the ITP Support Association in your Will is a truly special way to help fund our vital work in patient support and groundbreaking research into…

Where Did Your ITP Journey Begin? 💜 For many, the road to an ITP diagnosis is confusing and often starts with unexpected symptoms. That moment when you finally receive a name for what's happening to your body can be a powerful one. We want to hear from you. If you're…

Supporting the Pupil with ITP: A Guide for Schools 💜 For most children and teens with ITP, a low platelet count has little to no impact on the classroom routine. However, a few simple accommodations can make all the difference in their safety and well-being. Schools play a…

Did you know that there is no state funding for ITP research? The vital, groundbreaking work listed below happens entirely because of the generous donations and fundraising efforts of our incredible community! Your support is directly responsible for advancing our understanding…