KylanMorris1's profile picture. ALS Patient Advocacy | @sandymorris333🌻

Kylan Morris

@KylanMorris1

ALS Patient Advocacy | @sandymorris333🌻

Mom loved her interactions with you, Pete! 🌻

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Kylan Morris hat repostet

Ron Faretra is a veteran living with #ALS who served 27 years in the U.S. Air Force. ✈️ @Ron_ALS shares his tenacity with the #ALS community by helping to move the needle for the next generation of people that will be diagnosed. In the past two years, Ron played an instrumental…

BrainstormCell's tweet image. Ron Faretra is a veteran living with #ALS who served 27 years in the U.S. Air Force. ✈️ @Ron_ALS shares his tenacity with the #ALS community by helping to move the needle for the next generation of people that will be diagnosed. In the past two years, Ron played an instrumental…

Kylan Morris hat repostet

This #VeteransDay, BrainStorm Cell Therapeutics recognizes Elizabeth Fassler, who served in the U.S. Army as a Tactical Control Officer for a Patriot missile battery. 🇺🇸 @ElizabethFassl2 continues to serve others as a fierce advocate for the #ALS community by contributing to…

BrainstormCell's tweet image. This #VeteransDay, BrainStorm Cell Therapeutics recognizes Elizabeth Fassler, who served in the U.S. Army as a Tactical Control Officer for a Patriot missile battery. 🇺🇸 @ElizabethFassl2 continues to serve others as a fierce advocate for the #ALS community by contributing to…

Kylan Morris hat repostet

#ThankYouVeterans for your sacrifice. 🇺🇸 We honor the extraordinary strength of those who continue to battle an #ALS diagnosis, in addition to your service. Your resilience inspires our mission at @BrainStormCell to help end the suffering caused by #ALS. 🤝 #BetterTogether

BrainstormCell's tweet image. #ThankYouVeterans for your sacrifice. 🇺🇸 We honor the extraordinary strength of those who continue to battle an #ALS diagnosis, in addition to your service. Your resilience inspires our mission at @BrainStormCell to help end the suffering caused by #ALS. 🤝

#BetterTogether…

Kylan Morris hat repostet

Exciting News! Next week, EverythingALS will participate in ALS ONE's 7th Annual ALS Research Symposium, a global gathering dedicated to advancing ALS research and hope. Date: November 13-15, 2024 Location: 100% virtual Cost: FREE

Are you reg'd for our 7th annual #ALSResearchSymposium? Once again taking place via zoom for anyone to attend from anywhere in the 🌎. 12 Keynote Speakers, presentations from 19 #ALS pharma's, & a full day dedicated to Neurotechnology. Reg for free at: alsoneresearchsymposium.org



Kylan Morris hat repostet

While we understand the frustration many in the #ALS community feel, it's important to focus on the future and the potential of our Phase 3b trial. We're thankful for SPA agreement granted by the FDA and are committed to working closely with the FDA to ensure success of the trial


Kylan Morris hat repostet

Thanks @KylanMorris1 for shouting out on our behalf to the caregivers. We are #BetterTogether and let's do all we can to #EndALS #Phase3B

November is #NationalCaregiversMonth. 👏🏼 @BrainStormCell recognizes the dedicated caregivers that support people navigating the evolving challenges of #ALS. We remain committed to delivering meaningful treatment options that enhance the quality of life for people living with #ALS

BrainstormCell's tweet image. November is #NationalCaregiversMonth. 👏🏼 @BrainStormCell recognizes the dedicated caregivers that support people navigating the evolving challenges of #ALS. We remain committed to delivering meaningful treatment options that enhance the quality of life for people living with #ALS…


No more perfect way to spend a Saturday than at the @youralsnetwork Walk & Roll for a Cure! ⚡️Grandma and I marched in memory of our person, 🌻@sandymorris333, & for all in this fight to #EndALS. We remain #BetterTogether@BrainstormCell @MarleneSeffern

KylanMorris1's tweet image. No more perfect way to spend a Saturday than at the @youralsnetwork Walk & Roll for a Cure! ⚡️Grandma and I marched in memory of our person, 🌻@sandymorris333, & for all in this fight to #EndALS. We remain #BetterTogether✨

@BrainstormCell @MarleneSeffern
KylanMorris1's tweet image. No more perfect way to spend a Saturday than at the @youralsnetwork Walk & Roll for a Cure! ⚡️Grandma and I marched in memory of our person, 🌻@sandymorris333, & for all in this fight to #EndALS. We remain #BetterTogether✨

@BrainstormCell @MarleneSeffern
KylanMorris1's tweet image. No more perfect way to spend a Saturday than at the @youralsnetwork Walk & Roll for a Cure! ⚡️Grandma and I marched in memory of our person, 🌻@sandymorris333, & for all in this fight to #EndALS. We remain #BetterTogether✨

@BrainstormCell @MarleneSeffern

Kylan Morris hat repostet
MaryKayTurner1's tweet image. We are walking today to #EndALS with @ALSAZ @sandymorris333 @KylanMorris1 @BrainstormCell
MaryKayTurner1's tweet image. We are walking today to #EndALS with @ALSAZ @sandymorris333 @KylanMorris1 @BrainstormCell

Kylan Morris hat repostet

Thinking of all those in ALS Land that are missing our OG Honeybadger @sandymorris333 today. Thank you, Sandy, for inviting us all to sit at your crowded table ❤️

RunningMama0522's tweet image. Thinking of all those in ALS Land that are missing our OG Honeybadger @sandymorris333 today. 

Thank you, Sandy, for inviting us all to sit at your crowded table ❤️

Two years without you doesn’t seem possible🌻 ours was (and is) a true and beautiful love story mama 💛⚡️@sandymorris333

KylanMorris1's tweet image. Two years without you doesn’t seem possible🌻 ours was (and is) a true and beautiful love story mama 💛⚡️@sandymorris333
KylanMorris1's tweet image. Two years without you doesn’t seem possible🌻 ours was (and is) a true and beautiful love story mama 💛⚡️@sandymorris333

Kylan Morris hat repostet

Amazing time at #ALSNexus meeting. So many important conversations! #EndALS@KylanMorris1⁩ ⁦@ALSHF⁩ ⁦@HeimanPatterson

MaryKayTurner1's tweet image. Amazing time at #ALSNexus meeting.  So many important conversations! #EndALS ⁦@KylanMorris1⁩ ⁦@ALSHF⁩ ⁦@HeimanPatterson⁩

Kylan Morris hat repostet

As a finalist for the 2023 Lou Gehrig Award, Mike Yastrzemski joined the Live Like Lou Foundation to present a scholarship to Elizabeth Duncan, an incoming college freshman, who has overcome the loss of her dad Jon, uncle Jeff and aunt Jennifer, all to ALS. #LouGehrigDay

SFGiants's tweet image. As a finalist for the 2023 Lou Gehrig Award, Mike Yastrzemski joined the Live Like Lou Foundation to present a scholarship to Elizabeth Duncan, an incoming college freshman, who has overcome the loss of her dad Jon, uncle Jeff and aunt Jennifer, all to ALS. #LouGehrigDay
SFGiants's tweet image. As a finalist for the 2023 Lou Gehrig Award, Mike Yastrzemski joined the Live Like Lou Foundation to present a scholarship to Elizabeth Duncan, an incoming college freshman, who has overcome the loss of her dad Jon, uncle Jeff and aunt Jennifer, all to ALS. #LouGehrigDay

🩵⚾️⚡️

We had a great #lougehrigday with the @sfgiants Sunday to present a scholarship to a deserving student whose dad, aunt, and uncle have all passed from ALS. We also celebrated @mikeyaz18 as a finalist for the Lou Gehrig Memorial Award. #mlb4als #lg4day #livelikelou

LiveLikeLou4's tweet image. We had a great #lougehrigday with the @sfgiants Sunday to present a scholarship to a deserving student whose dad, aunt, and uncle have all passed from ALS. We also celebrated @mikeyaz18 as a finalist for the Lou Gehrig Memorial Award. #mlb4als #lg4day #livelikelou
LiveLikeLou4's tweet image. We had a great #lougehrigday with the @sfgiants Sunday to present a scholarship to a deserving student whose dad, aunt, and uncle have all passed from ALS. We also celebrated @mikeyaz18 as a finalist for the Lou Gehrig Memorial Award. #mlb4als #lg4day #livelikelou
LiveLikeLou4's tweet image. We had a great #lougehrigday with the @sfgiants Sunday to present a scholarship to a deserving student whose dad, aunt, and uncle have all passed from ALS. We also celebrated @mikeyaz18 as a finalist for the Lou Gehrig Memorial Award. #mlb4als #lg4day #livelikelou
LiveLikeLou4's tweet image. We had a great #lougehrigday with the @sfgiants Sunday to present a scholarship to a deserving student whose dad, aunt, and uncle have all passed from ALS. We also celebrated @mikeyaz18 as a finalist for the Lou Gehrig Memorial Award. #mlb4als #lg4day #livelikelou


Kylan Morris hat repostet

Good to see my friends @OCLMendoza & @CoreyReich yesterday at Oracle Park to watch the @Yankees vs @SFGiants on #LouGehrigDay

pjgreen's tweet image. Good to see my friends @OCLMendoza & @CoreyReich yesterday at Oracle Park to watch the @Yankees vs @SFGiants on #LouGehrigDay
pjgreen's tweet image. Good to see my friends @OCLMendoza & @CoreyReich yesterday at Oracle Park to watch the @Yankees vs @SFGiants on #LouGehrigDay
pjgreen's tweet image. Good to see my friends @OCLMendoza & @CoreyReich yesterday at Oracle Park to watch the @Yankees vs @SFGiants on #LouGehrigDay
pjgreen's tweet image. Good to see my friends @OCLMendoza & @CoreyReich yesterday at Oracle Park to watch the @Yankees vs @SFGiants on #LouGehrigDay

Kylan Morris hat repostet

'By the time that you watch this I will no longer be here' A poignant final message from the Leeds Rhinos legend and MND campaigner recorded before his death for a special BBC documentary 'There's Only One Rob Burrow' @BBCOne @BBCiPlayer


Gosh I love my Greens!🌻 #LouGehrigDay @pjgreen

My heart 💜 is so happy. Three of my favorite people ⁦@pjgreen⁩ Jennifer Green and ⁦@KylanMorris1⁩ . #BetterTogether!

MaryKayTurner1's tweet image. My heart 💜 is so happy.  Three of my favorite people ⁦@pjgreen⁩ Jennifer Green and ⁦@KylanMorris1⁩ .  #BetterTogether!


Kylan Morris hat repostet

An honor to welcome Blair Casey and Phil Green of @TeamGleason to Apple Park. Thank you for your collaboration over the years, your tireless advocacy, and your commitment to supporting the ALS community through accessible technology. #ALSAwarenessMonth

tim_cook's tweet image. An honor to welcome Blair Casey and Phil Green of @TeamGleason to Apple Park. Thank you for your collaboration over the years, your tireless advocacy, and your commitment to supporting the ALS community through accessible technology. #ALSAwarenessMonth

The #ALS community is made up of some of the most incredible people that I have ever met🌻 made up of advocates that react to a devastating diagnosis by springing into action to enhance ‘ALS Land’ in their own unique ways. We are always #BetterTogether as we strive to #EndALS 💫

As #ALSawarenessMonth draws to a close, we're reminded that ALS doesn't pause for anything, leaving those affected and their loved ones without the luxury of time ⏰. This is why we, at BrainStorm Cell Therapeutics, continue to work tirelessly. @BrainStormCell honors all #ALS

BrainstormCell's tweet image. As #ALSawarenessMonth draws to a close, we're reminded that ALS doesn't pause for anything, leaving those affected and their loved ones without the luxury of time ⏰. This is why we, at BrainStorm Cell Therapeutics, continue to work tirelessly.

@BrainStormCell honors all #ALS…


Kylan Morris hat repostet

On the way to the @iamalsorg Flag Event and Summit in DC. Look forward to remembering & honoring those we’ve lost to #ALS including Lisa Stockman Mauriello, @becky_mourey & @sandymorris333. Thrilled to share the work of @Team_Thriving & The Mappers - the ALS Clinic Advisor.

LisaLegacy4ALS's tweet image. On the way to the @iamalsorg Flag Event and Summit in DC. 

Look forward to remembering & honoring those we’ve lost to #ALS including Lisa Stockman Mauriello, @becky_mourey & @sandymorris333. 

Thrilled to share the work of @Team_Thriving & The Mappers - the ALS Clinic Advisor.

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