MECFScomrade's profile picture. she/her | life on pause due to severe ME & co (since 2019)♿️ land back! 🇵🇸🇨🇩🇸🇩🏳️‍⚧️

👻ghost of submersibles ablaze🌊

@MECFScomrade

she/her | life on pause due to severe ME & co (since 2019)♿️ land back! 🇵🇸🇨🇩🇸🇩🏳️‍⚧️

Megan has been in the hospital since Nov. 8. Will respond next week if she gets out.


What if you can’t do any of your hobbies due to your illness? Sit the fuck down, Autumn.

If you have a mental illness or a disability and you display that on your bio go and delete that right now. Replace it with something like a hobby or a profession or something fun you like to do. If you center your identity around your illness your psyche will do insane things to…



👻ghost of submersibles ablaze🌊 reposted

Hey everyone We need to get a fellow disabled friend out of shadowban purgatory. Being seen can save lives. Please share comment engage with their posts Follow ur not already! Let’s go fam

Literally what is the point of posting on here anymore if nobody sees it?



I’ve been doing rly strange things in my sleep recently (haven’t been sleeping well with CPAP) yesterday I woke up while typing something in my med diary. I remember feeling v confused about typing “Whitney” @DafoeWhitney hope you’re doing okay! Was thinking of you apparently 😅

MECFScomrade's tweet image. I’ve been doing rly strange things in my sleep recently (haven’t been sleeping well with CPAP) yesterday I woke up while typing something in my med diary. I remember feeling v confused about typing “Whitney” @DafoeWhitney hope you’re doing okay! Was thinking of you apparently 😅

I’m not as badly crashed as I thought I would be. All my lymph nodes swelled like they normally do in PEM but then nothing happened? How wild would it be if the gabapentin withdrawal cured my ME lmao. Probably cooked the virus while it was burning my nerves from the inside out.


i just ate 2 ice cream cones. i wonder what kind of wild antics i’ll get into next


And it makes it infinitely harder/impossible to get medical treatment for these things. I’ve already decided if I get cancer I’m just gonna let it take me bc I can’t get regular cancer screenings/getting regular treatments for it would be unbearable

Not only does ME bring with it immense suffering but also makes it WAY more likely for everything to go wrong in your body (infections, ingrown nails requiring surgery, canker/cold sores) -- the treatment of which causes PEM and crashes you further. Fucking cycle from hell.



👻ghost of submersibles ablaze🌊 reposted

Don’t stop pushing!! Let’s get this goal met!! It was due YESTERDAY

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The one to correct my fractured collarbone was pretty bad

What surgery do you think has the worst recovery?



I finally got my CPAP. Tried it out last night for the first time. Although the mask was surprisingly comfortable, it felt like I was choking on air the whole time. Went into settings and it’s on the lowest possible air pressure. Is it possible something is wrong with it?


It just occurred to me that I will probably never see/smell the ocean again


👻ghost of submersibles ablaze🌊 reposted

I can’t quite believe this 😮 800 downloads of my free ebook since Thursday!!! So many people reading it. I’m excited but also terrified 😅 I was expecting 50 Ends on Monday, can we get to 1000?!? It’s also brought 16 sales of the next two books which is better than nothing!

Sally_writes's tweet image. I can’t quite believe this 😮

800 downloads of my free ebook since Thursday!!!

So many people reading it. I’m excited but also terrified 😅 I was expecting 50

Ends on Monday, can we get to 1000?!?

It’s also brought 16 sales of the next two books which is better than nothing!

👻ghost of submersibles ablaze🌊 reposted

0 $ so far today in phundz!! This is DIRE! We can’t let Fernando become homeless!!

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Here comes the crash from my hospital stay… and here I was thinking I got away with it somehow 😖 *chuckles* I’m in danger


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