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For #RareDiseaseDay we need everyone to join the movement to redefine rare! More than 300 million people living with a rare disease, families & carers form the rare disease community 🌎 Rare is many. Rare is strong. Rare is proud. How will you redefine rare❓
Click here to learn how to participate in Rare Disease Day 2021, as virtual events around the globe raise awareness about rare diseases affecting hundreds of millions: buff.ly/3amC05v
Most of the infants are born normal and healthy at the time of birth and with no family history of disorders. Newborn screening helps in identifying diseases, which can affect a child’s health in the long run, at an early stage murphyshockeylaw.net/news/2311855/t…
What does a sickle cell crisis feel like? Tito Oye tried to describe it in a recent column. Visit our forums to find out what she had to say and share your own perspective about what a sickle cell crisis can feel like. buff.ly/2NiUjQg
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