Neb 🤙
@Nebulow
#verysevereME | ND🏳️🌈♿ | Retired Twitch Partner, chronically ill & disabled. Author of A SPARE KEY: A Time Travel Romance Novella
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My downfall. I was fit and healthy. Thriving. Until I develop CCI and through that, ME/CFS. #mecfs #cci #chrinicillness #bedbound #verysevereme #millionsmissing #doyouseemenow
I wanted to delete my account but I can't because I can't access my password lol. But I'll remove the app, so bye!! Take care everyone 🫂
Since last September I’ve been working on my documentary-style photography series about my current life. “Enduring: Life with Severe ME/CFS” is featured as one of the launch exhibitions in our online art gallery A Quiet Storm. 1/3 #MECFS #pwME #SelfDocumentary #Photography
Hi, I've not been using X whatsoever for a while. It's time to delete this account for good. If you want to stay in touch, I'm on Instagram @ nebulow & author.line.langager.
I opened my Etsy with all the art I've been making from my hospital bed 🫂 there are weekly planners, posters, stickers, hats and more🥹 echoesbyline.etsy.com
‼️ Please repost to help ‼️ Need help for vital treatments before I can qualify for thymectomy Living with both #MECFS and #MyastheniaGravis has left me housebound at 28, unable to afford medications My story, medical requirements, and links in thread ⬇️ #pwME #chronicillness
Trying to fundraise for essential treatments could allow me to stabilize enough to do a thymectomy for myasthenia gravis. Fundraiser link: tinyurl.com/32z2bcpf PayPal: [email protected] Account details are on the 3rd slide. I appreciate everyone who helps 🙏
One of the most challenging things about ME/CFS awareness even at the level of patients being understood by the people around them is that it defies so many illness tropes. You cannot "will" yourself to "beat" ME/CFS. And trying to will only result in hellish severity. #MECFS
LETS GO!!!!! GRANTS RESTORED🔥🔥 “#LongCOVID research grants from the National Institutes of Health’s RECOVER program will be restored following news stories about their abrupt cancellations and advocacy to restore the funding” — @thesicktimes thesicktimes.org/2025/03/28/upd…
The municipality is going to send me home. I'm very severe and have benefitted greatly from being in this temporary nursing home. Why can't they see I need a permanent spot😭 #mecfs
DM me if you want to read and review my little book for free! This story is a fictionalised memoir of my time working for a criminal at a burger shop. #arcreader #booktwt
On Tuesday an ME doctor is coming to see me here at the nursing home!! They're actually coming TO SEE ME
I usually don't see angel numbers but today I've seen 111 4 times! And today was the release of my new book A Spare Key, so lets hope this means success and progress ✨🥹
Here's the link! 👇👇 a.co/d/cgoGNUF
I released a short story today about finding hope in the most unforeseeable places🥹❤️❤️ #books #KindleUnlimited
Posting about my passions on here always loses me followers, but oh well My books are my life. If you want to read a time travel romance novella or a short story with a happily ever after, you can DM me for a link 🌼
I released a short story today about finding hope in the most unforeseeable places🥹❤️❤️ #books #KindleUnlimited
Exercise Actually Makes Chronic Fatigue Syndrome Worse youtu.be/wxSwYUennBA?si… via @YouTube
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Exercise Actually Makes Chronic Fatigue Syndrome Worse
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