Solve ME/CFS Initiative
@PlzSolveCFS
Making ME/CFS, Long Covid & associated conditions widely understood, diagnosable, & treatable. #SolveME #MECFS #LongCovid Donate @ https://ow.ly/jQji50Srbuv
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Register for our free Oct. 14 webinar, “The Unified Platform: Advancing Research Across #MECFS, #LongCovid, & Other Chronic Conditions" w/ @CJagdfeld (@BrainInflCollab), Megan L Fitzgerald, PhD, & Chris Nowak, and learn how you can get involved. Sign up: ow.ly/luTT50WGMXV
A UK-based research team has developed a new blood-based assay, the EpiSwitch CFS test, that may prove very effective for diagnosing people with #MECFS. Read our summary of the study (published in the Journal of Translational Medicine) here: ow.ly/UnXo50X9vyw
#MEAction's Executive Director, Laurie Jones, wrote an op-ed about how Medicaid work requirements could impact the #MECFS, #LongCOVID and chronic illness communities - published in MedPage Today! Check it out 👇 #pwME #MedicaidMatters #DisabilityRights #SaveMedicaid #Medicaid
"There is nothing beautiful about shifting the burden onto those least able to bear it. But this is precisely what our nation is now poised to do." ME/CFS and long COVID advocate @LaurieMichelleJ of @MEActNet writes on Medicaid work requirement impacts. medpagetoday.com/opinion/second…
Please join us for our upcoming Canadian conference on #MyalgicEncephalomyelitis (ME), taking place from November 4th-6th, 1-5 pm Eastern. We have focused on increasing accessibility at this conference, by keeping it VIRTUAL and FREE. 1/
1) It seems that glutamate is becoming a very important concept for both #LongCOVID and #MECFS. A recent study (see end of thread) found increased AMPA receptors and increased excitotoxicity risk. #networkanalysis and #machinelearning previously identified this
🎉It’s DAF Day 2025—a nationwide celebration of generosity through Donor-Advised Funds. Help make ME/CFS and Long Covid widely understood, diagnosable, and treatable. Join us and be part of the movement! 🧡 ow.ly/FNuU50X9pnb #DAFDay2025 #MECFS #LongCovid #givingtogether
ICYMI: Solve Ramsay Research Grant winner Dr. Jarred Younger explains the recent study by fellow Ramsay winner @C_Scheibenbogen on the effect of #Mestinon (Pyridostigmine) on hand strength in #MECFS ow.ly/YPzk50X8GYF #MEAwarenessHour
youtube.com
YouTube
074 - New study: Pyridostigmine may help ME/CFS muscle weakness
📢Big thanks to advocate and caregiver Rebecca Groble (pictured right) and her friend for hosting a booth at their local Nurtured by Nature health fair. They handed out free educational literature to help raise awareness about #MECFS. 👏💙 #MEAwarenessHour
UK scientists claim to have developed a blood test for #MECFS. Prof Dmitry Pshezhetskiy and team examined blood samples from 47 patients with severe ME/CFS and 61 healthy adults & found a unique pattern in people with ME/CFS not seen in healthy people. theguardian.com/society/2025/o…
Register for our free Oct. 14 webinar, “The Unified Platform: Advancing Research Across #MECFS, #LongCovid, & Other Chronic Conditions" w/ @CJagdfeld (@BrainInflCollab), Megan L Fitzgerald, PhD, & Chris Nowak, and learn how you can get involved. Sign up: ow.ly/luTT50WGMXV
Solve is a proud sponsor of the 2nd Intl Conf. on Clinical & Scientific Advances in ME & Long COVID (Nov 12-13, 2025) in Porto. Attend in person (limited seats) or online. Register for one or both days here: ow.ly/XU5r50X6sV0 #AliançaMillionsMissing #MECFSResearch
🎓 Solve is proud to sponsor this amazing event on Oct 31 for the IACC Case Competition at @MichiganRoss! Patients, advocates, & experts come together to tackle challenges like #LongCovid #ME/CFS #POTS & more. Registration (in-person or virtual) is free! ow.ly/XqgT50X6tQ5
The federal government has shut down, and the impacts are already being felt across systems and services our community depends on. Read our summary of the key areas of impact and tips on ways to stay connected. solvecfs.org/government-shu…
Upcoming learning sessions in the Long COVID & Fatiguing Illness Recovery Program include: •11/13: Physical Therapy, Occupational Therapy, and Long COVID •12/11: Pediatrics and Long COVID Register here: docs.google.com/forms/d/e/1FAI…
We hope you turned in to our livestream last week, where we premiered a video on Dr. Maureen Hanson, leader of 1 of the 2 NIH ME/CFS Research Centers. Dr. W. Ian Lipkin spoke on our panel, and is the leader of the other one. We’d like to share a video on him as well:
Dr. Lenny Jason (@CenterRes) invites those with #MECFS, their families, healthcare providers, and researchers to participate in a survey (link below) on case definitions and cardinal symptoms of this illness. redcap.is.depaul.edu/surveys/?s=PY7… #MEAwarenessHour
What a lovely idea! I am sure there are a lot of #PwME & those with other #EnergyLimitingConditions who will enjoy watching this film from our beds, chairs and sofas. Great to see the great outdoors. Such a vast open sky on the marsh #MEAwarenessHour
For all my dear Twitter pals who are stuck indoors this evening, come and walk out on the marsh as the sun begins to drop. The birds are calling and the plants crackle as we walk through them. Golden light touches everything with the colours of autumn.
☕ Introducing Coffee with a Clinician, launching Oct 2025: BHC's monthly webinar series bringing expertise on ME/CFS, Long COVID & related conditions. Optional $5 “coffee” donation helps us connect to more clinicians globally: bit.ly/4grlbXr #MECFS #LongCOVID #Fibro
🚨 I am very excited to share our new paper on #immunotherapies in #POTS, other common autonomic disorders and #LongCOVID. Congrats to @Jacobs_Med_UB medical students, Gabriela, Anna and Meagan, for their hard work on this comprehensive review! 👏👏👏🧠👩🔬 frontiersin.org/journals/cellu…
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