Proactive Genes
@ProactiveGenes
Empowering families to start a convo about family health history; Sharing news, wellness tips, support, and positivity for those at risk for hereditary cancer
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My heart is SO full today. 💗 Mom’s Genes is officially available! 🚀 Please check it out amzn.to/2wrvAhb and start a convo about family health. 📚 #family #health #cancerprevention
"Mom’s Genes” is a story you can use to talk to your kids about what genes while highlighting the impact that their #momsgenes or #dadsgenes can have on their health. #STEMeducation #familyhistory #genetics Get your copy here - amzn.to/2Tsg11i
Join us Thursday for an exclusive event at @AnaOnoIntimates headquarters in Philadelphia, which includes a panel of experts discussing sexual health & intimacy after surgery, plus a shop & fit event supporting young investigators at the Basser Center. alumni.upenn.edu/s/1587/gid2/wi…
Excellent interview of @EllenMatloff by @GreyGenetics discussing ACMG's lack of support for #HR3235 . Listen below! #GCChat #GeneticCounselors #GeneticCounseling #Genetics #Podcast @elo81
Happy Monday! We have a brand new episode on Genotypecast today with @EllenMatloff discussing the @TheACMG's lack of support for #HR3235. You can listen to the new episode now: anchor.fm/genotypecast/e… #gcchat #geneticcounselor #genetics #podcast
Amplify the voices of at least 10 incredible women and keep it going! 🤗🥰😘😍 @_GeorgiaHurst @BRCAresponder @BraveBosom @LguzzardiM @marleahdeank @KristieLKahl @Tracy67462263 @btrfly12 @DenaTalksDNA @EllenMatloff
And yet 95% of people carrying a Lynch mutation are unaware! ☹️
Lynch Syndrome is more common than hereditary breast cancer 😳 Sara Pirzadeh-Miller speaking at #WhatsNewinGI2020 @UTSWNews
Thanks for the shout out @BRCAresponder! Family History of Cancer: Hereditary Cancers And More #brca #familyhistory #healthcommunication yourteenmag.com/health/physica…
yourteenmag.com
Getting Ahead of Breast Cancer: Why Genetic Testing Can Save Your Life
About 1 in 500 Americans carry the BRCA1 or BRCA2 gene mutation, which can lead to hereditary cancers. Read about family history of cancers and more.
Sharing our interview with Amy Byer Shainman, @BRCAresponder, about teens with a family history of cancer and the health risks they face. Important info for parents of teens. #Cancer #Health yourteenmag.com/health/physica…
yourteenmag.com
Getting Ahead of Breast Cancer: Why Genetic Testing Can Save Your Life
About 1 in 500 Americans carry the BRCA1 or BRCA2 gene mutation, which can lead to hereditary cancers. Read about family history of cancers and more.
Let's ban together to get #HR3235 passed. There is power in a large, uniform presence. I created this graphic & together w/ @katiesagaser @EllenMatloff + other GCs, made HR3235.com. Please poke around, comment, share, retweet, etc #ISupportHr3235 #gcchat
Don't miss @BasserBRCA “BRCA Research Update: Looking Back at 2019 and Plans for the Future” on February 20th at 6pm. Register now: event.webcasts.com/starthere.jsp?… #brca #previvor #hboc #genetics #gencsm #genchat #bcsm
When an individual becomes a patient to a genetic counselor, so does their entire family. NSGC President @gillianhoo discusses with @MarketWatch how or if you should deliver difficult findings to family members: on.mktw.net/2QkaH1C #GCChat
marketwatch.com
23andMe can open a Pandora’s Box of a family’s medical secrets: ‘As hard as it is knowing, not...
Some people have been forced to balance disclosure of sensitive health news to relatives and their own privacy.
Telling Your Children About Inheritable Cancer Risk cancertodaymag.org/Pages/cancer-t… @BRCAresponder
cancertodaymag.org
Telling Your Children About Inheritable Cancer Risk | Cancer Today
The following tips can help parents who are looking to share news about a BRCA mutation.
With a #CDH1 mutation, Jean worries about her adult children's genetic test results. Her son reassures her: “When I saw you live a normal life after surgery, I have not been too worried about having the mutation or not. It’s something that has to be done.” bit.ly/2SP9Yaw
"...when parents test their children’s DNA before they are old enough to truly consent, those children lose their right not to know certain information." nytimes.com/2020/01/02/opi…
"Genetic privacy is just one part of a larger conversation about children’s privacy." nytimes.com/2020/01/02/opi…
"When parents share their children’s DNA on these sites, they are effectively sharing it with the world, including with the government and law enforcement investigators," writes @nilabala3 nyti.ms/2QHEyjB
nytimes.com
Opinion | Why Are You Publicly Sharing Your Child’s DNA Information? (Published 2020)
By uploading their children’s genetic information on public websites, parents are forever exposing their personal health data.
Your family members share with you more than just the same color eyes or the same kind of hair. When it comes to #BreastCancer, you’ll want to be aware of your family history. #bcsm bit.ly/37v0ipK
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