おすすめツイート
Join us at the 5th Annual RARE Patient Advocacy Summit this September 22-23! Learn more & register: bit.ly/2016GGSummit #2016GGSummit
Photos: PHOTO GALLERY: Kids gather for Camp Sundown recordonline.com/photogallery/T… via @recordonline
Pope Francis calls for "globalization of empathy" and increased funding for rare disease research goo.gl/FcVt4d @Pontifex
Rare families: want to change healthcare? Volunteer to meet a medical student for the 2016 Cox Prize. Learn more: bit.ly/1e1oTpJ
Have you joined the #WRDD2016 event? Join! Share ideas, resources & support w/ others in the Rare Disease Community! facebook.com/events/1215311…
Exciting day! 2015 #chemistrynobelprize honors DNA repair research, central to many rare genetic diseases bit.ly/1L5UbWQ
Med students: 10 days to submit to the Cox Prize - 1st place gets $1,500 & chance of publication! Deadline: Aug 10! bit.ly/1e1oTpJ
Med students: consider this year's Cox Prize and share a rare experience you'll carry with you in the years ahead bit.ly/1e1oTpJ
2015 David R. Cox Prize for Rare Compassion now open to all US/Canada/UK med students (1st gets $1,500!), learn more: bit.ly/1RSdOXs
FDA to consider promising new combination therapy for Cystic Fibrosis bit.ly/1Fqe9uG
iflscience.com
Success Against Most Common Form Of Cystic Fibrosis
Success Against Most Common Form Of Cystic Fibrosis
Med student with Pompe running marathon for the United Pompe Foundation - a story worth hearing and supporting bit.ly/1Blmosg
FDA approved "41 first-of-a-kind drugs in 2014, including a record number of medicines for rare diseases" abcn.ws/14kxGPC @ABC
Congenica aims for fast, efficient, and definitive diagnosis of rare genetic diseases bit.ly/1s27AeX @SelectScience
David R. Cox Prize for Rare Compassion: Winner Announced! bit.ly/1taLwtd
Reminder that the unique challenges facing rare disease communities globally extend far beyond the science bit.ly/14dYZL3
"Orphan drug sales will make up 19% of the total share of prescription drug sales by 2020, totaling $176 billion" bit.ly/1uwHT6I
How could rare disease research help us combat Ebola? Studying Niemann-Pick has shed light on the infection: on.wsj.com/1qm8H2E @WSJ
High school senior who has ataxia-telangiectasia crowned homecoming queen in Illinois aol.it/1wrB3Or
Unique Myasthenia Gravis hike in Beijing brings valuable attention to the disease bit.ly/1uvpjWV @womenofchina
Exciting @US_FDA grants totaling >$19M for rare diseases 1.usa.gov/1vuMXF5
United States トレンド
- 1. Bill Belichick N/A
- 2. Bill Polian N/A
- 3. Hall of Fame N/A
- 4. Brady N/A
- 5. Palat N/A
- 6. Nebraska N/A
- 7. #WWENXT N/A
- 8. HOFer N/A
- 9. #TheMaskedSinger N/A
- 10. Spygate N/A
- 11. #DelcyLaVozDeLaPaz N/A
- 12. #DelcyPorLaPaz N/A
- 13. Rutgers N/A
- 14. Tsyplakov N/A
- 15. NFL HOF N/A
- 16. #MiguelCabrera N/A
- 17. Tillis N/A
- 18. The HOF N/A
- 19. Kraft N/A
- 20. Barry Bonds N/A
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