Margaret Rumney
@RedRubyGem
Mother of 32 year old daughter who has severe M.E, she has been ill since the age of 11 & is now mostly housebound. Aiming to raise awareness for M.E
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Margret Williams has written to Natasha Devon responding to Simon Wessely's claim that "he's never suggested that ME or Chronic Fatigue Syndrome are non diseases"
A fantastic segment on the #GreatestMedicalScandal Full segment (44 mins edited) LBC call in with Natasha Devon discussing #MECFS, Simon Wessely, George Monbiot's recent article, the history of ME and the impact of Graded Exercise and CBT. youtu.be/g8jYj7dIM7w?si…
youtube.com
YouTube
The ME Scandal - LBC call in with Natasha Devon (2024)
Day 3 the Telegraph (Full article) NHS staff treated woman who died from ME ‘as if she was to blame’ archive.ph/2024.07.24-193…
archive.ph
Woman who died from ME 'treated by NHS staff as if she was to blame f…
archived 24 Jul 2024 19:36:40 UTC
Day 3 The Independent “it would appear a considerable proportion of the staff at the Royal Devon and Exeter Hospital, including some consultants, still hold an outdated understanding that ME/CFS has psychological causes.” independent.co.uk/news/uk/exeter…
Day 3 The Times A Harley Street consultant warned an NHS chief executive that a young patient with ME who was at risk of death was being failed by hospital staff who held “outdated attitudes” that her condition was self-inflicted, an inquest has heard. archive.ph/2024.07.24-141…
archive.ph
NHS staff thought patient’s illness was self-inflicted, inquest told
archived 24 Jul 2024 14:15:27 UTC
Sean O'Neill on BBC Radio 4 Today talking about his daughter Maeve Boothby-O'Neill who died of Severe ME in October 2021 and the upcoming inquest which starts on Monday to examine failings in her care. Full Interview (6 mins 30) youtu.be/8o6NItkBSJI?si…
youtube.com
YouTube
BBC Radio 4 Today - Maeve Boothby-O'Neill Inquest (2024)
Trigger Warning - death of a young woman A lack of NHS treatment for people with myalgic encephalomyelitis (ME) is set to be interrogated at an inquest into the death of a 27-year-old woman.. ow.ly/JuHG50SGwIl #MyalgicEncephalomyelitis #VerySevereME
telegraph.co.uk
NHS treatment for ME patients to be examined
Maeve Boothby-O’Neill, 27, who died in October 2021, faced barriers to receiving proper care
Trigger Warning - death of a young women @TimesONeill talks movingly to Emma Barnett about the death of his daughter, Maeve Boothby O’Neill, from ME and her upcoming inquest. His interview around 7.40am. ow.ly/sCRh50SGwMb #MyalgicEncephalomyelitis #VerySevereME
An excellent letter from a friend to Sajid Javid prior to the debate he’s heading on #ME next week. It could serve as a template for anyone that wishes to write to him or any MP. email address below. drive.google.com/file/d/1oZlv8C…
Dragons' Den entrepreneur accused of 'selling snake oil' mol.im/a/12995703 via @Femail
dailymail.co.uk
Dragons' Den entrepreneur accused of 'selling snake oil'
Giselle Boxer, 31, from Sheffield, appeared on the BBC show this week and asked for £50,000 for a 10 per cent stake in her business, Acu Seeds.
. @itvnews Dragons' Den: ME charities criticise BBC show for 'promoting unproven treatment' "ME charities, including the ME Association, have criticised Dragons' Den for promoting an "unproven treatment" for the condition." itv.com/news/2024-01-2… #pwME #MECFS #MyalgicE…
itv.com
ME charities criticise Dragons' Den for 'promoting unproven treatment' | ITV News
Myalgic encephalomyelitis charities have written an open letter to two parliamentary committees to express their concerns about the episode. | ITV National News
Hold the Met Police criminally accountable for the barbaric killing of two leashed dogs - Sign the Petition! chng.it/JPrGbwFK via @UKChange
9/ "Facilitating Aids & Adaptations" From a new summary of the NICE ME/CFS guidelines #MyalgicEncephalomyelitis #MEcfs #CFS #MyalgicE #PwME #ChronicFatigueSyndrome
Petition: Call an immediate general election to end the chaos of the current government petition.parliament.uk/petitions/6197…
New study reveals first genetic links in ME and chronic fatigue syndrome labiotech.eu/trends-news/pr… via @Labiotech_eu
labiotech.eu
New study reveals first genetic links in ME and chronic fatigue syndrome
For the first time in many years, replicable genetic findings have been reported in the study into ME/CFS, has announced PrecisionLife.
'If they don't stay in the UK they get deported somewhere that you're saying is a safe place with a good future. I'm not sure where the deterrent is?' @susannareid100 quizzes Foreign Secretary Liz Truss
For someone with ME, going out for coffee can be a multi-day endeavour. Rest days before and after, likely in bed. Of course, your friends only see the small bit in the middle at the cafe with you - the bit where you look fine. #MEAwarenessHour
‘Living with Myalgic Encephalomyelitis: An Invisible Disability’, a new comic focussing on people’s experiences of living with ME, developed by Dundee academics in partnership with comic artists and people who have ME. Follow link to download. #MECFS dundee.ac.uk/stories/invisi…
So it turns out we did find “something in the blood” of #ME/CFS patients: fibrinaloid microclots + hyperactivated platelets (that you can see with your own eyes). Thank you so much to @polybioRF donors who helped support part of the study: researchsquare.com/article/rs-172…
United States Tendances
- 1. #WWERaw N/A
- 2. Bovino N/A
- 3. Homan N/A
- 4. AJ Styles N/A
- 5. Pro Bowl N/A
- 6. #RawOnNetflix N/A
- 7. El Centro N/A
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- 9. Pat Kelsey N/A
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- 11. #AmericanIdol N/A
- 12. Senator Young N/A
- 13. Rising Stars N/A
- 14. Stephanie Vaquer N/A
- 15. The Atlantic N/A
- 16. #90dayfiancetheotherway N/A
- 17. Sanders N/A
- 18. #BelowDeckMed N/A
- 19. Jrue N/A
- 20. Sal Buscema N/A
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