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SC Chapter

@SCscleroderma

SC Chapter รีโพสต์แล้ว

For this year's #SclerodermaAwarenessMonth in June, you can raise vital funds and awareness for those living with Scleroderma and Raynaud's by participating in our #SRUKWalk. Choose your distance and your own route, plus you'll get a medal! Sign up now: bit.ly/3fsNJCl

WeAreSRUK's tweet image. For this year's #SclerodermaAwarenessMonth in June, you can raise vital funds and awareness for those living with Scleroderma and Raynaud's by participating in our #SRUKWalk.

Choose your distance and your own route, plus you'll get a medal!

Sign up now: bit.ly/3fsNJCl

Don’t forget to register for the 2022 Virtual Amy K. Parrish Scleroderma Patient Education Conference! The last day to register will be Feb. 10, and the Zoom link will be sent Feb. 9. Register by emailing [email protected]. We hope to see you there!

SCscleroderma's tweet image. Don’t forget to register for the 2022 Virtual Amy K. Parrish Scleroderma Patient Education Conference! 

The last day to register will be Feb. 10, and the Zoom link will be sent Feb. 9. Register by emailing scchapter@scleroderma.org. 
We hope to see you there!

Join us for the 2022 Virtual Amy K. Parrish Scleroderma Patient Education Conference! The last day to register will be Feb. 10, and the Zoom link will be sent Feb. 9. Register by emailing [email protected]. We hope to see you there!

SCscleroderma's tweet image. Join us for the 2022 Virtual Amy K. Parrish Scleroderma Patient Education Conference! 
The last day to register will be Feb. 10, and the Zoom link will be sent Feb. 9. Register by emailing scchapter@scleroderma.org. 
We hope to see you there!

SC Chapter รีโพสต์แล้ว

During the Path to a Rare Diganosis Panel, advocates shared their experience getting their diagnosis and living with a rare autoimmune disease. Watch the recording now! ow.ly/LTgZ50H3cEl #raredisease #autoimmunedisease

AutoimmuneAssoc's tweet image. During the Path to a Rare Diganosis Panel, advocates shared their experience getting their diagnosis and living with a rare autoimmune disease. Watch the recording now! ow.ly/LTgZ50H3cEl #raredisease #autoimmunedisease

We've had a great day 2 of the 2021 Virtual Amy K. Parrish Scleroderma Patient Education Conference! Thanks so much to everyone who attended, and a special thank you to our speakers: Dr. Richard Silver, Dr. Faye Hant & Dr. Carol Fegahli-Bostwick!!

SCscleroderma's tweet image. We've had a great day 2 of the 2021 Virtual Amy K. Parrish Scleroderma Patient Education Conference! Thanks so much to everyone who attended, and a special thank you to our speakers: Dr. Richard Silver, Dr. Faye Hant & Dr. Carol Fegahli-Bostwick!!

We had a great turnout for day 1 of our first virtual Amy K. Parrish Scleroderma Patient Education Conference! Thanks so much to all who attended, and a special shout out to our guest speakers today, Dr. Silver with MUSC and Robert Riggs, CEO of the @scleroderma!

SCscleroderma's tweet image. We had a great turnout for day 1 of our first virtual Amy K. Parrish Scleroderma Patient Education Conference! Thanks so much to all who attended, and a special shout out to our guest speakers today, Dr. Silver with MUSC and Robert Riggs, CEO of the @scleroderma!
SCscleroderma's tweet image. We had a great turnout for day 1 of our first virtual Amy K. Parrish Scleroderma Patient Education Conference! Thanks so much to all who attended, and a special shout out to our guest speakers today, Dr. Silver with MUSC and Robert Riggs, CEO of the @scleroderma!

Don't forget to register for Day 2 of our Virtual Amy K. Parrish Scleroderma Patient Education Conference! Register here: eventbrite.com/e/2021-amy-k-p… @scleroderma

SCscleroderma's tweet image. Don't forget to register for Day 2 of our Virtual Amy K. Parrish Scleroderma Patient Education Conference! Register here: eventbrite.com/e/2021-amy-k-p… 
@scleroderma

Registration is open for the first day of our virtual 2021 Amy K. Parrish Scleroderma Patient Education Conference. Hear from our chapter leaders, the CEO of Scleroderma Foundation Robert Riggs, and from Dr. Richard Silver with MUSC. Register by Feb. 8: …rodermaconferencefeb13.eventbrite.com

SCscleroderma's tweet image. Registration is open for the first day of our virtual 2021 Amy K. Parrish Scleroderma Patient Education Conference. Hear from our chapter leaders, the CEO of Scleroderma Foundation Robert Riggs, and from Dr. Richard Silver with MUSC. Register by Feb. 8: …rodermaconferencefeb13.eventbrite.com

Save the dates for our virtual 2021 Amy K. Parrish Scleroderma Patient Education Confernece: Feb. 13 & 20! Registration coming soon!

SCscleroderma's tweet image. Save the dates for our virtual 2021 Amy K. Parrish Scleroderma Patient Education Confernece: Feb. 13 & 20! Registration coming soon!

Dr. Carol Feghali-Bostwick and the researchers in her her Scleroderma research lab at MUSC are showing off their Scleroderma Foundation masks. Dr. Fegahli-Bostwick says "Thank you to the Scleroderma Foundation South Carolina chapter and Susan Francis Melvin for our masks."

SCscleroderma's tweet image. Dr. Carol Feghali-Bostwick and the researchers in her her Scleroderma research lab at MUSC are showing off their Scleroderma Foundation masks. Dr. Fegahli-Bostwick says "Thank you to the Scleroderma Foundation South Carolina chapter and Susan Francis Melvin for our masks."

Today, our treasurer, Frances Parrish, walked with her horse Grace in honor of her mom, Amy Parrish. Today is the last day of our virtual walk,but there's still time to walk/donate! Let's challenge ourselves to raise $514 to reach $21,000! Donate at scleroderma.org/steppingouttho….

SCscleroderma's tweet image. Today, our treasurer, Frances Parrish, walked with her horse Grace in honor of her mom, Amy Parrish. Today is the last day of our virtual walk,but there's still time to walk/donate! Let's challenge ourselves to raise $514 to reach $21,000! Donate at scleroderma.org/steppingouttho….
SCscleroderma's tweet image. Today, our treasurer, Frances Parrish, walked with her horse Grace in honor of her mom, Amy Parrish. Today is the last day of our virtual walk,but there's still time to walk/donate! Let's challenge ourselves to raise $514 to reach $21,000! Donate at scleroderma.org/steppingouttho….
SCscleroderma's tweet image. Today, our treasurer, Frances Parrish, walked with her horse Grace in honor of her mom, Amy Parrish. Today is the last day of our virtual walk,but there's still time to walk/donate! Let's challenge ourselves to raise $514 to reach $21,000! Donate at scleroderma.org/steppingouttho….

Thanks so much Bobby Francis for #SteppingOutToCureScleroderma on the disc golf course this week for our virtual fundraiser! There's still time to donate at scleroderma.org/steppingouttho….

SCscleroderma's tweet image. Thanks so much Bobby Francis for #SteppingOutToCureScleroderma on the disc golf course this week for our virtual fundraiser! There's still time to donate at scleroderma.org/steppingouttho….

SC Chapter รีโพสต์แล้ว

@SCscleroderma Team Marti's Wings, honoring the memory of Marti Engle, stepped out to cure scleroderma on Saturday! So far, Team Marti's Wings has raised $2,140 toward a cure!

SCM19591's tweet image. @SCscleroderma   Team Marti's Wings, honoring the memory of Marti Engle, stepped out to cure scleroderma on Saturday!   So far, Team Marti's Wings has raised $2,140 toward a cure!

Thank you to those who have helped us raise over $20,000 for the 6th Thomas Mille Memorial Virtual Stepping Out to Cure Scleroderma event. Let's see if we can reach $21,000! Donate at scleroderma.org/steppingouttho…. Don't forget to tag us while you're out & about, walking, running, etc.

SCscleroderma's tweet image. Thank you to those who have helped us raise over $20,000 for the 6th Thomas Mille Memorial Virtual Stepping Out to Cure Scleroderma event. Let's see if we can reach $21,000! Donate at scleroderma.org/steppingouttho…. Don't forget to tag us while you're out & about, walking, running, etc.

SC Chapter รีโพสต์แล้ว

@SCscleroderma Thank you to John Houser for Stepping Out to Cure Scleroderma!

SCM19591's tweet image. @SCscleroderma Thank you to John Houser for Stepping Out to Cure Scleroderma!

Yesterday, we had Team TTomTough and Team Susan's Angels walk the Timmerman Trail in Cayce, SC for our virtual Thomas Mills Memorial Stepping Out to Cure Scleroderma.

SCscleroderma's tweet image. Yesterday, we had Team TTomTough and Team Susan's Angels walk the Timmerman Trail in Cayce, SC for our virtual Thomas Mills Memorial Stepping Out to Cure Scleroderma.
SCscleroderma's tweet image. Yesterday, we had Team TTomTough and Team Susan's Angels walk the Timmerman Trail in Cayce, SC for our virtual Thomas Mills Memorial Stepping Out to Cure Scleroderma.

Tomorrow is the start of our 6th Thomas Mills Stepping Out to Cure Scleroderma 5K Run and Walk! This year we have gone virtual, and our walk will be held from tomorrow until Sept. 30. We hope you'll join us tomorrow at 12:30 as we kick off our fundraiser via Facebook Live!

SCscleroderma's tweet image. Tomorrow is the start of our 6th Thomas Mills Stepping Out to Cure Scleroderma 5K Run and Walk! This year we have gone virtual, and our walk will be held from tomorrow until Sept. 30.  We hope you'll join us tomorrow at 12:30 as we kick off our fundraiser via Facebook Live!

The COVID-19 Pandemic can't stop us from holding our annual fundraiser...so we went VIRTUAL! Join us from your driveway, on a hiking trail, on your bike, on a horse, from Sept. 19-30 & show us how you're #SteppingOutToCureScleroderma Register by Sept. 19: scleroderma.org/steppingouttho…

SCscleroderma's tweet image. The COVID-19 Pandemic can't stop us from holding our annual fundraiser...so we went VIRTUAL! Join us from your driveway, on a hiking trail, on your bike, on a horse, from Sept. 19-30 & show us how you're #SteppingOutToCureScleroderma Register by Sept. 19: scleroderma.org/steppingouttho…

SC Chapter รีโพสต์แล้ว

The world has been through much in this first half of 2020, yet at SRF, we’re committed to forging ahead with you, our scleroderma community, to accelerate the pace of research — and we're doing so in many exciting ways. Read more conta.cc/31I9YNZ

srfcure's tweet image. The world has been through much in this first half of 2020, yet at SRF, we’re committed to forging ahead with you, our scleroderma community, to accelerate the pace of research — and we're doing so in many exciting ways. Read more conta.cc/31I9YNZ

You won’t want to miss this webinar with Dr. Farrell! @SclerodermaCAN @WeAreSRUK

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